Re: E: SMA family on the news - lori

[Guest guest]

I appreciate your thought-provoking post. Each of us are unique in our own way.

L

Sent from my Verizon BlackBerry

Re: SMA family on the news - lori

Hi Lori

imp not sure what Ur getting at by saying 'we' are not normal who is this we?

Yes I do have SMA but yet I have still to find any one on this who I can fully

relate to

after reading over ur long list of the 'un-normal' things 'we' again need done

personally I tick about two of them and I don’t need them done I need

assistance to carry such tasks as to move around my bed or chair and assistance

to clear my lungs if I have a cheats infection

and to imply that people cannot accept that they are not 'normal' whatever u

have defined normal as is a total insult and misunderstanding of me personally

possibly others in here

Yes I can’t walk I do the toilet though a tube I use a c-pap to breath at

night and I need assistance with all personal care

but I also go to university go out every weekend to night clubs with my friends

and do everything else a 18 year old within my society dose so if u fell the

need to have a definition of normal witch by the way dose not exist and put ur

self in a box PLEASE do not put me in it just because I have sma does not make

me un normal or anything near it I fully accept my condition and who I am but I

don’t accept some one putting me in a box

lauramechelle