E: SMA family on the news - lori

[Guest guest]

When I say that I’m not normal, I mean that I’m unique and exceptionally

different from anybody I know! To me normal is boring. In my opinion, people

with SMA either try to blend in by being conservative and “normalâ€, or they

try to stand out by getting tattoos, piercing, and unusual hair styles and

styles of dress. I don’t like to be labeled, or put in a box, but we do have

similarities with others!

Kemp

Director, OurGV Rewards

<http://www.ourgvrewards.com/> http://www.ourgvrewards.com

Phone: 714-974-5799

Business Phone: 714-974-5693

Cell Phone: 714-244-5920

Phone: 949-579-9465

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Email 2: dkemp@...

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From: [mailto: ] On Behalf

Of as if

Sent: Sunday, November 23, 2008 2:16 PM

Subject: Re: SMA family on the news - lori

Hi Lori

imp not sure what Ur getting at by saying 'we' are not normal who is this we?

Yes I do have SMA but yet I have still to find any one on this who I can fully

relate to

after reading over ur long list of the 'un-normal' things 'we' again need done

personally I tick about two of them and I don’t need them done I need

assistance to carry such tasks as to move around my bed or chair and assistance

to clear my lungs if I have a cheats infection

and to imply that people cannot accept that they are not 'normal' whatever u

have defined normal as is a total insult and misunderstanding of me personally

possibly others in here

Yes I can’t walk I do the toilet though a tube I use a c-pap to breath at

night and I need assistance with all personal care

but I also go to university go out every weekend to night clubs with my friends

and do everything else a 18 year old within my society dose so if u fell the

need to have a definition of normal witch by the way dose not exist and put ur

self in a box PLEASE do not put me in it just because I have sma does not make

me un normal or anything near it I fully accept my condition and who I am but I

don’t accept some one putting me in a box

lauramechelle