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I was just wondering what your PFT results were for those on NIV or with

a trach? What was your PFTs before that? And how about those not on NIV

or a vent - what are yours if you don't mind sharing?

I just did mine and the percentage is in the low 20s. I know I am

getting weaker and have very little strength to breath okay when my body

gets too cold or when I try to hurry or under a lot of stress. It helps

to keep it in perspective when I read about your abilities and how you

deal with getting weaker.

TIA,

Lori in MN with SMA II

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