Negative or HATE email

[Guest guest]

Hi All

I get "hate email" weekly. In fact, it feels wierd if I don't get one. Mostly the hate mail comes from neurodiverse folks who think I want to cure them.

Which by the way, is the furthest thing from my mind. Especially if they are tax payers and can type me a note - I think they are doing great.

The scariest note I ever got: from a priest. (And I am catholic.) Swear to God (now I am going to hell I know it.)

So... some of those emails could be the web site I host or just my mouth in general.

My response:

Lets pretend you are married and have a child. That child is born into the world with love and great anticipation for their arrival. That child develops typically and before their 2nd birthday – they get really sick and regress losing all developed skills. They are drastically different from earlier. This beloved child has a lot of issues that were not there before.

Issues including:

¢¢ Sleep: goes from sleeping well to waking up every 2 hours crying in pain. Often being up for 2 to 6 hours at a time.

¢¢ Poops: goes from normal poops in the diaper to up to 5-6 diarrhea filled diapers a day. Each stool brings on cries of pain. The stools so fowl that double bagging them in plastic in the outside trash still makes them absolutely intolerable from the horrific smell.

¢¢ Rashes: a once beautiful complexion goes to rashes from head to toe that cause great pain. Especially on their bottoms where it is blistered and painful.

¢¢ Behaviors: a child that had no behaviors and once was happy and content to self injurious activities that cause great pain – self inflicted.

¢¢ Eating: a child that once ate all the foods healthy and wise for good development to eating very few things.

¢¢ Voice: a child that once had a voice that now is mute – except for crying and screaming. Not only did his voice disappear it seems like hearing mine did too. He stopped hearing me tell him I love you.

¢¢ Love: a child that once hugged and loved kisses – to give and receive to a child that cringed when you touched him.

¢¢ Future: a child that once had a future to become whatever he wanted to be with a future that is so uncertain.

Lets pretend this is your child. Would you try to help them with these medically based symptoms or would you let him be and not attempt to ¡Ècure¡É him of autism?

Please tell me – I need to know.

I usually don¡Çt get a response after I send this note along. It is so frustrating. What message do these folks send? AND MORE IMPORTANTLY: Autism should be more than the slosh bucket it is covering so many indivudals that are different that it is my biggest pet peeve. The folks who wrote me don't seem to have the ¡Èautism¡É that many of our kids have. It is something quite different.

Grrrrrr¡Ä..

A Jeff's mom

From: EOHarm [mailto:EOHarm ] On Behalf Of christine zichittella-heerenSent: Tuesday, June 06, 2006 5:18 PMEOHarm Subject: Re: Re: vaccines mentioned on ATWT

on 6/6/06 5:16 PM, CG at gammicca@... wrote:

,Are you serious...someone actually sent this to you? Unreal and they obviously don't know you and all you've done for folks across the country. Yikes let me at em'.CGP.S. Hey I agree on the yoga. Helps both the bod and the mind. We just opened our pool too and spending an hour a day, while I make my phone calls walking around in a cicle is great too. Gotta do it for ourselves, especially when there is all of this negativity being thrown our way.Carolyn,Her name is . She is from the Long Island area and has a son with autism around 12-13 years old. She uses the same email to harrass people as she does to post- so it wasn't hard to figure her out. She also sent me this positive email in Oct.> From: Hhitter8@...> Date: Thu, 6 Oct 2005 20:20:40 EDT> christine@...> Subject: (no subject)> > You are a moronOne from today:> > From: hhitter2@...> Date: Tue, 06 Jun 2006 15:23:58 -0400> christine@...> Subject: As The World Turns> > Lady -- you have entirely too much free time on your hands. I guess it's no > wonder you get sicker and sicker. Just make sure you don't kill your kid when > you chelate him.Here is one of her many posts where she actually one thing and does another;>> From: Hhitter2@... >> Date: Sun Apr 13, 2003 6:39 am >> Subject: This list Hhitter2@... >> If people spent more time caring for their children (both with and without>> special needs) and less time on their computer and the drivel and the>> mean-spiritness that has appeared on this list within the past few days, they and their kids would be a lot better off.>> Enough said.>> >> So, as you can read from her emails- she's full of crap. Archives from the LI list are full of additional dribble- but I won't bore everyone more than I already have.