Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 There is some controversy about genetic testing for profit. While I don't have an opinion on that, I am concerned that this information could be used unethically or be a violation of individual rights. Another observation, I have a friend who is a genetics scientist and has become incredibly neurotic after having genetic testing. Every cold, cough or headache is related to something in her genes, according to her. Maybe there are some things we don't need to know about our ancestors until we learn how to put it in perspective.Since this board asks for references....The brave new era of human genetic testing.Bandelt HJ, Yao YG, s MB, Salas A.Department of Mathematics, University of Hamburg, 20146 Hamburg, Germany.The commercialization of 'big science' is in full swing, leading to situations in which the ethical principles of academia are beginning to be compromised. This is exemplified by the profitable business of genetic ancestry testing. The goals of this sort of 'big science' are not necessarily in any way novel, however. In particular, large genotyping projects have a certain start-up time when their design is frozen in, so that the projects often lag behind the development of genetic knowledge. On the other hand, extremely provisional knowledge about potential disease markers is being rapidly turned into questionable 'tests', purporting to determine risk factors for complex disorders, by private companies that are eager to get their share of a profitable market of the future. The flow of money generated by such concerns looks likely to erode traditional research operations and small-scale projects, which risk becoming pebbles on the 'big science' landscape.PMID: 18937378 [PubMed - indexed for MEDLINE]I am considering having the same type DNA test (by a company called Decode me" or something like that. )Do you think it was worth the expense?Are you going to be able to benefit from the information?Were the results simple enough to understand?>> I recently had my DNA tested for health, traits and ancestry. The results show my risk for about 100 diseases, and traits, as well as ancestry. I used a company called 23andme. The results were worrisome and very interesting. I was curious if anyone else in the C.R.O.N. community has tried....> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Having seen that in a gson, as a necessary thing, I doubt it will ever be useful or profitable to the patient. It is my impression, most things that I would discover are already known and mostly untreatable. I suppose if you have the money and are just curious, it might tell me how old I'll live - I doubt it. But even if it did, that would be the thing they would hide from me. Regards Re: [ ] Re: DNA Testing... There is some controversy about genetic testing for profit. While I don't have an opinion on that, I am concerned that this information could be used unethically or be a violation of individual rights. Another observation, I have a friend who is a genetics scientist and has become incredibly neurotic after having genetic testing. Every cold, cough or headache is related to something in her genes, according to her. Maybe there are some things we don't need to know about our ancestors until we learn how to put it in perspective. Since this board asks for references.... The brave new era of human genetic testing. Bandelt HJ, Yao YG, s MB, Salas A. Department of Mathematics, University of Hamburg, 20146 Hamburg, Germany. The commercialization of 'big science' is in full swing, leading to situations in which the ethical principles of academia are beginning to be compromised. This is exemplified by the profitable business of genetic ancestry testing. The goals of this sort of 'big science' are not necessarily in any way novel, however. In particular, large genotyping projects have a certain start-up time when their design is frozen in, so that the projects often lag behind the development of genetic knowledge. On the other hand, extremely provisional knowledge about potential disease markers is being rapidly turned into questionable 'tests', purporting to determine risk factors for complex disorders, by private companies that are eager to get their share of a profitable market of the future. The flow of money generated by such concerns looks likely to erode traditional research operations and small-scale projects, which risk becoming pebbles on the 'big science' landscape. PMID: 18937378 [PubMed - indexed for MEDLINE] Quote Link to comment Share on other sites More sharing options...
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