Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Dorcus, That is so fantastic. Thanks for sharing that. I have a seven year old with Asperger's and we are using the enzymes also. I can really relate at how proud you must be of him being able to sit in a service and enjoy the music. We are getting better but are not there yet. And out skating with his dad. That is super!!! I am so thankful thay I found this board this summer because the enzymes are really helping my son. I am glad you are seeing results too!!! DonnaC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 That is wonderful! Have you noticed anything else? Tana > -----Original Message----- > From: TnT Pilger [mailto:tntpilger@...] > >... my son > is saying and communiticating with amazing clarity. ... > > Wanted to share, Happy Holidays all, Mom to Blake..4 > y.o. regresssive autism > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 > This is a question for those of you who chelate due to mercury toxicity. Is the improvements dramatic with each cycle? I have been chelating my son with DAMS/ALA for 3 months and the improvements has been dramatic, is this the normal process? My son's speech has moved from 2 year level to 3 1/2 years in 3 months. I look at my son 3 1/2 year old son with tears in my eyes as he return home. Thanks to all of you for all the excellent information. This kind of dramatic improvement in children this young is common. See the love letters file. Andy . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 If you want to know what LDN is doing for you do this simple little test If you are at all like me I promise no permanent harm will come of it. Take your LDN for a year,Remember we are only asking LDN to do what Copax or Rebif was supposed to do but never did very well in my books as far as others have testified to. Then stop taking it for a week if you can stand too.. The return of symptoms in my case were just enuf too prove to me that it sure was doing it's job. When I read how the Nueros say "well obviously the (one of the CRAB's) has stopped working for you so lets try something else" I wonder just what goes thru their mind (or their wallet)when they are prescribing one of these drugs! They obviously know of the side effects,as that is their job,they probably know of the cost incurred as they get their cut in the form of bogus training or consulting payments. OK I will stop now. Reg -- [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Reg, I truly think you have written a very sensible letter. yes, When you injection stops working, and i think mune has, been o it for 11 years, it is time to try something else, but nit, as you say one of their expensive new drugs. i am sick of rug companys making millioms off thebacks of MS and other sufferers. This pat spring, my husband almost died from lipitor. his kidneys shut downand he was in intensive care for three weeks. The doctor missed all the warnig signs, mainly pain in the nuscles. it is called rhabdomyolitis. The muscles break down. here it is dec. and he is stil in pain, he was healthy and active, with no pain until this. if you know anyone on this drug, please urge them to get their blood checj=ked at least every two months, his barber gets his checked every ,month. The drug companys are making a fortune and seem to be untpuchable if you complain. What do you think??? roxanne [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Or urge them to try vitamin C instead. [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 How many of you out there had stiffness at first and sleep disturbances and how long did it take to go away? Or did it go away? Realize its very individual but would appreciate some thoughts. I am stiffer than normal (day 7 on LDN - 3mg) although it is very very very very cold here which makes me stiff anyways. Will stay at 3mg for awhile (any suggestions how long?) 4.5 is the suggested dose so will try to reach that level. This has been discussed lots in past posts but I didnt save any of them and my memory is non existant. Thanks for anyones suggestions. Kathy > Or urge them to try vitamin C instead. > [low dose naltrexone] Improvement >  > > That's wonderful news, Raelene. Folks, please don't be discouraged if > your progress is slow. We all respond differently. > > > > ________________________________________________________________ > Juno Gift Certificates > Give the gift of Internet access this holiday season. > http://www.juno.com/give > > > >  > > <imstp_emo_en.gif> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Hi Kathy, As for stiffness..still have it after almost a year, tho' not too bad. Soo, I stretch some, and exercise some. Had the vivid dreams for a couple of weeks at first, but then I don't remember having "Any" dreams for quite awhile before that. (Kinda miss the vivid dreams now!) As far as when to up the dose, it's really up to you and how well your body will tolerate it. Personally, I was on 3mg for a month, then went up to 4.5mg and have been on it ever since. Just my 2cents worth. Hope it helps some. Have a Great Day!!! Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Thanks Jim...that helps lots. Was thinking I'd stay on 3mg for a month and stretching always helps. If I'm having vivid dreams...dont remember them, but that would be a bonus . Kathy On 7-Dec-04, at 8:45 PM, jsgarvin wrote: > Hi Kathy, >  > As for stiffness..still have it after almost a year, tho' not too > bad. Soo, > I stretch some, and exercise some. Had the vivid dreams for a couple > of weeks at first, but then I don't remember having " Any " dreams for > quite awhile before that. (Kinda miss the vivid dreams now!) >  > As far as when to up the dose, it's really up to you and how well your > body will tolerate it. Personally, I was on 3mg for a month, then went > up to 4.5mg and have been on it ever since. Just my 2cents worth. > Hope it helps some. Have a Great Day!!! >  > Jim > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Kathy, I am taking 4.5mgs LDN. I started on this dosage about 48 days ago. I stopped oral steroids a few days before starting LDN. The results have been wonderful. I am so very much better. I did experience stiffness and vivid dreams for about the first two weeks. I was not clear about the stiffness being LDN or the result of steroid addiction? The dreams and the stiffness are gone and for the first time in 12 years I am getting better and better. The quality of my life has turned around. I am looking forward to gardening and living the small stuff maybe even going back to work. (LDN gives me bladder control, clarity of thought, less leg and arm spasms are reduced, I am standing and working around the house for longer periods of time, sitting longer and typing better, hand writing has improved, these improvements have effected everyday life in a very positive manner.) As of last week I was and still I am experiencing some nausea from time to time it is livable compared to what my life was like before LDN. But not pleasant. May the white light of heaven shine on all of you today and send you blessings this holiday season. CU Joanne L. -----Original Message-----From: Kathy Huget [mailto:etna@...]Sent: Tuesday, December 07, 2004 10:09 PMlow dose naltrexone Subject: Re: [low dose naltrexone] ImprovementHow many of you out there had stiffness at first and sleep disturbances and how long did it take to go away? Or did it go away? Realize its very individual but would appreciate some thoughts. I am stiffer than normal (day 7 on LDN - 3mg) although it is very very very very cold here which makes me stiff anyways. Will stay at 3mg for awhile (any suggestions how long?) 4.5 is the suggested dose s . o will try to reach that level.This has been discussed lots in past posts but I didnt save any of them and my memory is non existant.Thanks for anyones suggestions.Kathy Or urge them to try vitamin C instead. [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give <imstp_emo_en.gif> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Hi, i had stiffness for 87 days. Now I occasionally have trouble sleeping but I don,t place that on LDN. I just started CS 2 days ago and this morning my legs were very stiff. I'm sure it's because of the cleaning results from the CS Johanne F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Thank you so much Joanne for your encouragement and experience and so very happy it is working so well for you! Today is a very bad day for stiffness but I slept better last night. Still woke up frequently but fell back to sleep easier (considering I napped yesterday that is terrific!). I think the bladder is slowly improving. So many of you on this forum have had such positive experiences that I can only hope and pray that this will be the case with me. I too was an avid gardener so hopefully will be able to enjoy that once again. Nausea is a common thing with MS and I get that even without the LDN but like you, it is manageable. Blessings to all this holiday season. Kathy On 8-Dec-04, at 5:03 AM, Joanne Longley wrote: > Kathy, >  > I am  taking 4.5mgs LDN. I started on this dosage about 48 days ago. > I stopped oral steroids a few days before starting LDN. The results > have been wonderful. I am so very much better. I did experience > stiffness and vivid dreams for about the first two weeks. I was not > clear about the stiffness being LDN or the result of steroid > addiction? > The dreams and the stiffness are gone and for the first time in 12 > years I am getting better and better. The quality of my life has > turned around. I am looking forward to gardening and living the > small stuff maybe even going back to work. (LDN gives me bladder > control, clarity of thought, less leg and arm spasms are reduced, I am > standing and working around the house for longer periods of time, > sitting longer and typing better, hand writing has improved, these > improvements have effected everyday life in a very positive manner.) > As of last week I was and still I am experiencing some nausea from > time to time it is livable compared to what my life was like before > LDN. But not pleasant. >  > May the white light of heaven shine on all of you today and send you > blessings this holiday season. CU Joanne L. > Re: [low dose naltrexone] Improvement > > How many of you out there had stiffness at first and sleep > disturbances and how long did it take to go away? Or did it go away? > Realize its very individual but would appreciate some thoughts. > > I am stiffer than normal (day 7 on LDN - 3mg) although it is very very > very very cold here which makes me stiff anyways. Will stay at 3mg for > awhile (any suggestions how long?) 4.5 is the suggested dose s .  o > will try to reach that level. > > This has been discussed lots in past posts but I didnt save any of > them and my memory is non existant. > > Thanks for anyones suggestions. > > Kathy > > > > Or urge them to try vitamin C instead. > [low dose naltrexone] Improvement > >  > > That's wonderful news, Raelene. Folks, please don't be discouraged if > your progress is slow. We all respond differently. > > > > ________________________________________________________________ > Juno Gift Certificates > Give the gift of Internet access this holiday season. > http://www.juno.com/give > > > >  > > <imstp_emo_en.gif> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Kathy, Yes I understand the MS nausea thing I also take 30 milligrams prvisaid but this nausea is different. It happens fast and goes away fast could also be menipause. I am 48 and many things are due to that they the PCP says anyway. Today was a day of stiffness for me also I am in NH and we had snow yesterday that melted today. Moisture is stiffening I think! Kathy I hope LDN help you with bladder control I know first hand how very important it is. Blessings to you Kathy and eveyone Joanne L : Kathy Huget [mailto:etna@...]Sent: Wednesday, December 08, 2004 2:59 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Improvement Thank you so much Joanne for your encouragement and experience and so very happy it is working so well for you!Today is a very bad day for stiffness but I slept better last night. Still woke up frequently but fell back to sleep easier (considering I napped yesterday that is terrific!). I think the bladder is slowly improving. So many of you on this forum have had such positive experiences that I can only hope and pray that this will be the case with me. I too was an avid gardener so hopefully will be able to enjoy that once again. Nausea is a common thing with MS and I get that even without the LDN but like you, it is manageable. Blessings to all this holiday season.KathyOn 8-Dec-04, at 5:03 AM, Joanne Longley wrote: Kathy, I am taking 4.5mgs LDN. I started on this dosage about 48 days ago. I stopped oral steroids a few days before starting LDN. The results have been wonderful. I am so very much better. I did experience stiffness and vivid dreams for about the first two weeks. I was not clear about the stiffness being LDN or the result of steroid addiction?The dreams and the stiffness are gone and for the first time in 12 years I am getting better and better. The quality of my life has turned around. I am looking forward to gardening and living the small stuff maybe even going back to work. (LDN gives me bladder control, clarity of thought, less leg and arm spasms are reduced, I am standing and working around the house for longer periods of time, sitting longer and typing better, hand writing has improved, these improvements have effected everyday life in a very positive manner.)As of last week I was and still I am experiencing some nausea from time to time it is livable compared to what my life was like before LDN. But not pleasant. May the white light of heaven shine on all of you today and send you blessings this holiday season. CU Joanne L.-----Original Message-----From: Kathy Huget [mailto:etna@...]Sent: Tuesday, December 07, 2004 10:09 PMlow dose naltrexone Subject: Re: [low dose naltrexone] ImprovementHow many of you out there had stiffness at first and sleep disturbances and how long did it take to go away? Or did it go away? Realize its very individual but would appreciate some thoughts. I am stiffer than normal (day 7 on LDN - 3mg) although it is very very very very cold here which makes me stiff anyways. Will stay at 3mg for awhile (any suggestions how long?) 4.5 is the suggested dose s . o will try to reach that level.This has been discussed lots in past posts but I didnt save any of them and my memory is non existant.Thanks for anyones suggestions.KathyOr urge them to try vitamin C instead. Re: [low dose naltrexone] ImprovementIf you want to know what LDN is doing for you do this simple little test If you are at all like me I promise no permanent harm will come of it.Take your LDN for a year,Remember we are only asking LDN to do what Copax or Rebif was supposed to do but never did very well in my books as far as others have testified to.Then stop taking it for a week if you can stand too..The return of symptoms in my case were just enuf too prove to me that it sure was doing it's job.When I read how the Nueros say "well obviously the (one of the CRAB's) has stopped working for you so lets try something else" I wonder just what goes thru their mind (or their wallet)when they are prescribing one of these drugs!They obviously know of the side effects,as that is their job,they probably know of the cost incurred as they get their cut in the form of bogus training or consulting payments.OK I will stop now.Reg -------Original Message------- From: low dose naltrexone Date: 12/03/04 16:39:34low dose naltrexone Subject: [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give <imstp_emo_en.gif> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Vit C is good I know, guys don't get UTIs much if at all, but I still think the reason I never have one is from the large amounts of "C"I take daily.Plus the liter and a half of water daily doesn't hurt.Reg -- Re: [low dose naltrexone] Improvement Or urge them to try vitamin C instead. [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Good news Joanne. May God bless you. have a wonderful Christmas an holiday season Roxanne [low dose naltrexone] Improvement That's wonderful news, Raelene. Folks, please don't be discouraged ifyour progress is slow. We all respond differently.________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give <imstp_emo_en.gif> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Thanks Joanne for the update on how LDN is working for you. Im on day 20 and the stiffness has eased up quite a bit. I do think clearer and believe in time there will be more improvements;) Wishing all of you a blessed Christmas this year! Kathy H On 21-Dec-04, at 1:58 AM, edie wrote: > Good news Joanne. May God bless you. have a wonderful Christmas an > holiday season Roxanne > RE: [low dose naltrexone] Improvement > > Kathy, >  > I am  taking 4.5mgs LDN. I started on this dosage about 48 days ago. > I stopped oral steroids a few days before starting LDN. The results > have been wonderful. I am so very much better. I did experience > stiffness and vivid dreams for about the first two weeks. I was not > clear about the stiffness being LDN or the result of steroid > addiction? > The dreams and the stiffness are gone and for the first time in 12 > years I am getting better and better. The quality of my life has > turned around. I am looking forward to gardening and living the > small stuff maybe even going back to work. (LDN gives me bladder > control, clarity of thought, less leg and arm spasms are reduced, I am > standing and working around the house for longer periods of time, > sitting longer and typing better, hand writing has improved, these > improvements have effected everyday life in a very positive manner.) > As of last week I was and still I am experiencing some nausea from > time to time it is livable compared to what my life was like before > LDN. But not pleasant. >  > May the white light of heaven shine on all of you today and send you > blessings this holiday season. CU Joanne L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Thanks for the ideas! > > > > > > > > > > Just wondering what the quickest improvement anyone has seen > > > with the > > > > > helmet therapy? > > > > > > > > > > My son has been wearing his for about 5 days...and I can > swear > > I > > > see > > > > > improvement already...is this possible? > > > > > > > > > > We are also trying to do a lot more tummy techniques to > > > strengthen is > > > > > neck muscles...as our craniofacial doctor has told us those > > > muscles in > > > > > the base of his skull help to round out the back of the head > > > more. > > > > > With these exercises, we are seeing a definite definition in > > the > > > base > > > > > of his skull that was not as defined a month ago. > > > > > > > > > > Thoughts? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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