Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 HI & welcome to our group! Some babies plagio does correct with the aid of repositioning and such, but I'd say it does not correct itself for the most part. My daughter graduated from her DOCband at 15.5 mos of age, she rec'd good correction, however still had some residual flatness. She turns 3 next month and I have not seen any addt'l correcton of her rounding on it's own I of course wish I could tell you different, but it hasn't been the case for my daughter. Do you have a plagio baby? Would you mind sharing more information about him/her with us? Thanks & welcome again. Debbie Abby's mom DOCGrad MI > How anyones babies plagio corrected itself as they got older? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 or is it pondering? whatever. Yesterday I was reading a post to someone just starting on one of the CRABs, Avonex, I think, but no matter, I have heard these things over and over, regardless of the drug. They were wondering about the side effects, and if they would last long, or forever. The response was that they'll eventually "go away". That always got me thinking. What does that really mean? The body will eventually get used to it? What are side effects? One substance is added to the body, so the body has to do something different to make up for it, or fight it, hence, the affect of something else in the body. So you take Avonex, and your body RESPONDS to the Avonex, you get chills, fever, flu-like (whatever that means) symptoms. Some drugs give rushes, rashes, whatever. The BODY knows what it's doing, it's Responding to something it DON'T like. If it liked it, it wouldn't give you a fever, it would give you 98.6, you wouldn't get chills, you'd be comfortable, etc. So WHAT is really happening when you NO LONGER get those side effects? Does that mean the drug you're taking is being better received -OR- did your body just GIVE UP fighting that invasion? =OR= is your body now no longer able to try to do what it was doing, hence no more side-effects. Now, with LDN, it seems that any side effects are because the LDN is doing it's thing, your body is reacting by trying to 'be normal' or fix things it deems could be better. Hence, better bladder control, faster growing hair, stronger and faster nails, restless legs quiet down, and many of us get stiffer legs. I saw someone else ask "how come we never hear from people doing well on the CRABs?" and the answer was that those people don't post very often. How come? They don't need or join support groups? They're doing well, so they're doing other things? I've witnessed a few people start Avonex recently. ALL of them were asking the same questions, having the same complaints, the same problems, and nothing good to say. I've witnessed people start LDN. How come the ones who are doing GREAT are POSTING? Shouldn't they be following the Doing Well on CRABs crowd out the door? I do see some people who do say they're "doing well on XXXX, but ____, ___, ______" As if those But's (side effects, skin necrosis, etc) are Acceptable and AOK. Anyone follow my pondering or am I off on a tangent in left-field or another ball park entirely? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I think you are " right on " Larry. I was just thinking of similar stuff today. I like to lurk around several different groups (MS related) - and this is the ONLY ONE where the people are moving forward, not back. Yes, many of this group has significant problems and difficulties because of their disease state, but no where else have I ever read anyone say that they feel better, are improving and or are thinking they MAY be able to return to work - like I read twice here today. LDN is the ONLY drug that people are using that they like. Sure, I know there are some on the CRAB's who claim to be happy, but like you said, their positive comments are always followed up with a " but! " and a long list of negative side effects. It has been 9 months since my MS dx - and 7.5 since I started with LDN. I can honestly say that I am better off today than I was a year ago - before I ever knew I had MS. Thanks mostly to the wonderful people that I found here using LDN. I tell everyone about it. I think that if the conventional meds were better, we would hear good stories about them, too. Human nature is to share when good stuff happens. Makes me think that not too much good happens to those on the CRABs. Bummer for them and shame on their doctors who push those drugs. I have said it before, but will say it again - THANKS TO ALL OF YOU who post here about LDN. You are making a huge difference in not only your life, but in the lives of people like me, too. THANKS, THANKS, THANKS!!!!! Cinders Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 On Mon, 6 Dec 2004 19:18:57 -0500, you wrote: >Anyone follow my pondering or am I off on a tangent in left-field or another ball park entirely? dh was on betaferon.. or for you yankees ;-) betaseron his side effects were depression, flu like symptoms.. and cos he has ppms, it was all a waste... 2.5 years on the rubbish 2 weeks on ldn, and he feels better, has a bug at the moment, so he is not walking well, but he looks happy... just lack of sleep... i dont think your body every gets used to some of this stuff... suppressing your immune system means you get everything... copaxone was the next drug of choice... and i will add to your pondering... who funded the research that debunked copaxone... ???? which major drug corporation??? I think too many people have been helped by copaxone, for the latest study to be quite on the mark remove the sand to reply to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 CINDERS YOU SOUND SO POSITIVE NOW I AM REALLY LOOKING FORWARD TO GOING TO NEUROLOGIST AND GETTING SCRIPT. FOR L.D.N.....CANDY Wishing You All The Best This Holiday Season,,,,,Candy & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Larry. ypu are right on. i was on Betaseron for 11 years, i had flu symptoms all the time, and they say they will disappear after the start, mine didn;t,,I have been on LDN for only one month 3 mg. My balance and walking are really bad, but it has been really bad on beta too. We just took a trip to paris which involved a lot of walking fpr 10 days, that was in Oct., I think that might have contributed to it. it has happened before after a trip ro Paris. or, i might have been going through a mild relapse right after we returned home. I agree with all of your "ponderings" Roxanne Take care [low dose naltrexone] just wondering or is it pondering? whatever. Yesterday I was reading a post to someone just starting on one of the CRABs, Avonex, I think, but no matter, I have heard these things over and over, regardless of the drug. They were wondering about the side effects, and if they would last long, or forever. The response was that they'll eventually "go away". That always got me thinking. What does that really mean? The body will eventually get used to it? What are side effects? One substance is added to the body, so the body has to do something different to make up for it, or fight it, hence, the affect of something else in the body. So you take Avonex, and your body RESPONDS to the Avonex, you get chills, fever, flu-like (whatever that means) symptoms. Some drugs give rushes, rashes, whatever. The BODY knows what it's doing, it's Responding to something it DON'T like. If it liked it, it wouldn't give you a fever, it would give you 98.6, you wouldn't get chills, you'd be comfortable, etc. So WHAT is really happening when you NO LONGER get those side effects? Does that mean the drug you're taking is being better received -OR- did your body just GIVE UP fighting that invasion? =OR= is your body now no longer able to try to do what it was doing, hence no more side-effects. Now, with LDN, it seems that any side effects are because the LDN is doing it's thing, your body is reacting by trying to 'be normal' or fix things it deems could be better. Hence, better bladder control, faster growing hair, stronger and faster nails, restless legs quiet down, and many of us get stiffer legs. I saw someone else ask "how come we never hear from people doing well on the CRABs?" and the answer was that those people don't post very often. How come? They don't need or join support groups? They're doing well, so they're doing other things? I've witnessed a few people start Avonex recently. ALL of them were asking the same questions, having the same complaints, the same problems, and nothing good to say. I've witnessed people start LDN. How come the ones who are doing GREAT are POSTING? Shouldn't they be following the Doing Well on CRABs crowd out the door? I do see some people who do say they're "doing well on XXXX, but ____, ___, ______" As if those But's (side effects, skin necrosis, etc) are Acceptable and AOK. Anyone follow my pondering or am I off on a tangent in left-field or another ball park entirely? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 There is a document on one of the State sites (New York? Conn?) describing an acute mold infection from exposure. This sounds like it couldbe that. Are you treating yourself with anything? Generally, when I was being exposed, I got no colds or flus, but had some cold sores etc that did not go away. After getting rid of the toxins, I did catch a cold from time to time, but it was just a normal cold, no stiff neck. Do you have Strep? That can cause a stiff neck, maybe you could go in and get checked. That can be cultured, and cured, and if not can be very serious. Hope you feel better. > > Hi everyone... > > I seem to have caught a cold. Since our mold exposure, everytime I > catch a cold, my body aches, neck gets stiff, mucous is (ok this is > nasty) bloody and brown, headachey and the worst sore throat. This is > the 3rd cold I've had since July 1st 2008. Do any of you experience > such severity when you get sick since your exposure??? > > Thanks... > Adrean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 I have to say the exact opposite. Since my exposure and leaving my moldy school I haven't had any more allergies, sore throats, sinus problems, aches/pains or even a common cold. Sue Hi everyone... I seem to have caught a cold. Since our mold exposure, everytime I catch a cold, my body aches, neck gets stiff, mucous is (ok this is nasty) bloody and brown, headachey and the worst sore throat. This is the 3rd cold I've had since July 1st 2008. Do any of you experience such severity when you get sick since your exposure??? Thanks... Adrean **************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 HI, I just signed up for this group yesterday. I feel that my MCS symptoms are mostly due to bad mold exposure. I am now on disability for depression and chronic back pain, but now I have the MCS. Thanks, Deb On Mon, Oct 6, 2008 at 11:04 PM, kl_clayton <kl_clayton@...> wrote: > There is a document on one of the State sites (New York? Conn?) > describing an acute mold infection from exposure. This sounds like it > couldbe that. Are you treating yourself with anything? > > Generally, when I was being exposed, I got no colds or flus, but had > some cold sores etc that did not go away. After getting rid of the > toxins, I did catch a cold from time to time, but it was just a normal > cold, no stiff neck. Do you have Strep? That can cause a stiff neck, > maybe you could go in and get checked. That can be cultured, and > cured, and if not can be very serious. > > Hope you feel better. > > > > > > Hi everyone... > > > > I seem to have caught a cold. Since our mold exposure, everytime I > > catch a cold, my body aches, neck gets stiff, mucous is (ok this is > > nasty) bloody and brown, headachey and the worst sore throat. This is > > the 3rd cold I've had since July 1st 2008. Do any of you experience > > such severity when you get sick since your exposure??? > > > > Thanks... > > Adrean > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Welcome Deb! From: Deborah Chandler <debchandler411@...> Subject: Re: [] Re: Just wondering Date: Tuesday, October 7, 2008, 7:32 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Sue, What, if any meds did you take? From: ssr3351@... <ssr3351@...> Subject: Re: [] Just wondering Date: Tuesday, October 7, 2008, 8:36 AM I have to say the exact opposite. Since my exposure and leaving my moldy school I haven't had any more allergies, sore throats, sinus problems, aches/pains or even a common cold. Sue Hi everyone... I seem to have caught a cold. Since our mold exposure, everytime I catch a cold, my body aches, neck gets stiff, mucous is (ok this is nasty) bloody and brown, headachey and the worst sore throat. This is the 3rd cold I've had since July 1st 2008. Do any of you experience such severity when you get sick since your exposure??? Thanks... Adrean ************ **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local. mapquest. com/?ncid= emlcntnew0000000 2) Quote Link to comment Share on other sites More sharing options...
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