Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Everyone responds differently and at different doses. I have finally settled at 3 mg from Skips. I am still up a couple of times each night- but after midnight it seems that I can get about 6 uninterupted hours in.... I am noticing little changes...slowly.... Lori [low dose naltrexone] Bladder problems!! I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Beegirl, depending on your age you may also be dealing with bladder issues related to hormone changes. You could try using evening primrose oil, which tends to help some of the symptoms of approaching menopause. Bladder control, frequency, and urgency can all occur as a result of hormone changes that occur around menopause. JT [low dose naltrexone] Bladder problems!! I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Yes I feel lucky that my bladder problems have changed for the better. You need to understand I had "no" bladder control at all. I still have had several accidents since starting on LDN 40 days ago. I was wearing adult diapers and now I wear poise pads. LDN was like a light switch in terms of gaining bladder contol. Sorry it was not for you. I am walking better daily but I still use a scooter "no" full recovery yet. Progress is very slow for me on LDN. Joanne -----Original Message-----From: beegirl502000 [mailto:beegirl502000@...]Sent: Thursday, December 02, 2004 6:56 PMlow dose naltrexone Subject: [low dose naltrexone] Bladder problems!!I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever done. i also feel great and am smiling again. i'm spms and feel better now than in a very long time raelene australia -- RE: [low dose naltrexone] Bladder problems!! Yes I feel lucky that my bladder problems have changed for the better. You need to understand I had "no" bladder control at all. I still have had several accidents since starting on LDN 40 days ago. I was wearing adult diapers and now I wear poise pads. LDN was like a light switch in terms of gaining bladder contol. Sorry it was not for you. I am walking better daily but I still use a scooter "no" full recovery yet. Progress is very slow for me on LDN. Joanne -----Original Message-----From: beegirl502000 [mailto:beegirl502000@...]Sent: Thursday, December 02, 2004 6:56 PMlow dose naltrexone Subject: [low dose naltrexone] Bladder problems!!I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Raelene, Hi I too have many new benefits from LDN: less leg and arm spasms, more energy, clearer thinking,it factors into everything I do, bladder control restoration after 12 year decline, laugher and hope for the first time in years, steroids controlled the symptoms for me but ldn balances the immune system it functions differently my understanding is that steroids shut the system down. I prefer the LDN plus no side effects. I hope to have a recovery like Sammy Jo and hike yellow stone or hike anywhere again. I first noted systems trying to hike around a lake in Bar Harbor Maine 14 years ago. Being able to do that would be wonderful. I wish you all great hope and recovery, in all things Joanne RE: [low dose naltrexone] Bladder problems!! Yes I feel lucky that my bladder problems have changed for the better. You need to understand I had "no" bladder control at all. I still have had several accidents since starting on LDN 40 days ago. I was wearing adult diapers and now I wear poise pads. LDN was like a light switch in terms of gaining bladder contol. Sorry it was not for you. I am walking better daily but I still use a scooter "no" full recovery yet. Progress is very slow for me on LDN. Joanne -----Original Message-----From: beegirl502000 [mailto:beegirl502000@...]Sent: Thursday, December 02, 2004 6:56 PMlow dose naltrexone Subject: [low dose naltrexone] Bladder problems!!I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 great news.congrats...I have been on LDN for 4 weeks also.....I use a walker and scooter but last night I noticed that I was moving bout without the walker , although holding but taking 1 or 2 steps unaided........so I have continued faith DeLores decrosby@... -----Original Message-----From: arlizotte@... [mailto:arlizotte@...] Sent: Friday, December 03, 2004 8:14 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 neil: i have only been on it for 5 days and am having same results as you.great stuff if you acn get it.arlizotte@... wrote: In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Lori, many of us have experienced the benefits of LDN s-l-o-w-ly. Hang in there! ________________________________________________________________ Juno Gift Certificates Give the gift of Internet access this holiday season. http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Me to s-l-o-w but sure. you always have good advice. Thanks Joanne -----Original Message-----From: Landau [mailto:carrieland2@...]Sent: Friday, December 03, 2004 5:48 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Bladder problems!!Lori, many of us have experienced the benefits of LDN s-l-o-w-ly. Hangin there!________________________________________________________________Juno Gift CertificatesGive the gift of Internet access this holiday season.http://www.juno.com/give Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 just on natural stuff, omega system, 3-6-9. evening primrose oil. i have antidepressants for 8 years now. been able to chuck the tegratol and valpro away cos of the ldn is working so good. had 7 attacks since jan. the last too were back to back and very aggressive. thats when i ended up in the wheel chair. late sept .had 7 days of steroids, which got me back walking very slowly. was walking on a walker most of the year.....now unaided..... as i'm only 41 was having trouble facing the possibility of what was happening to me. i've been diagnosed for 13 years. all i can say is keep going with the LDN i just wanted the progression to stop and everything is an added bonus and a great one too. raelene -- Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 thanks joanne, i glad its all happening so well i'm looking forward to good things also. i agree with you about the steroids this this the best thing...i hope it continues. good luck to you also and everyone taking LDN for whatever purpose. raelene -- RE: [low dose naltrexone] Bladder problems!! Yes I feel lucky that my bladder problems have changed for the better. You need to understand I had "no" bladder control at all. I still have had several accidents since starting on LDN 40 days ago. I was wearing adult diapers and now I wear poise pads. LDN was like a light switch in terms of gaining bladder contol. Sorry it was not for you. I am walking better daily but I still use a scooter "no" full recovery yet. Progress is very slow for me on LDN. Joanne -----Original Message-----From: beegirl502000 [mailto:beegirl502000@...]Sent: Thursday, December 02, 2004 6:56 PMlow dose naltrexone Subject: [low dose naltrexone] Bladder problems!!I have been on LDN since February '04. I have not worsened, however, so many of you report your bladder problems greatly improved or that they have gone away. Mine have not changed. Still up all night and running to the bathroom all day. Has anyone else experienced this?(My script is filled at Skips Pharmacy) Any words of encouragement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 wonderful news, keep on it we have to hope it will get better, good luck improvement is coming i'm sure. raelene -- RE: [low dose naltrexone] Bladder problems!! great news.congrats...I have been on LDN for 4 weeks also.....I use a walker and scooter but last night I noticed that I was moving bout without the walker , although holding but taking 1 or 2 steps unaided........so I have continued faith DeLores decrosby@... -----Original Message-----From: arlizotte@... [mailto:arlizotte@...] Sent: Friday, December 03, 2004 8:14 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Realene, 41 is young. I am 48 and have been experiencing symtoms since about age 33 yet I still have not got a clear-cut Dx. Somedays it is overwhelming somedays it is not as important to give it a name as to cure it. The LDN seems to be working leaps and bounds above the steriods. I am saddened to hear there are still some people with "little or no" symtom relief with LDN. I have a feeling we are not far from a cure for MS. We need a Lance Armstrong to raise funds for MS research. Lance recently brought-in 15 million for cancer research with the sale of yellow arm bands one dollar an arm band. We could sell multi-colored arm bands to raise funds for MS research. Nike produced the bands we need an organization to sponsor us or a group of them. Not sure why I am telling you this just an idea. Joanne Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 thanks joanne, i also am upset about people not getting relief, i no how frustrating it can be when you just want to have rest from the day to day stuff that happens and wears you down. i agree this much better than steroids works much faster and is less toxic and side effects also. you got to wonder what happens with steroids in the long term. have had then around 8 times in the last 10 years, different lengths of time. this time was the longest 5 days, then 3 days later 2more days. i was pleasant i can tell you. i agree with you it needs someone to research funds for research only. they do that here but how much goes into the research i don't know. they run the societies as well so all those people get paid from it also, and for what i ask. i don't seem to think they do much. if they used that money maybe we would have a cure, who knows. they should live with the frustration. but at least the LDN is around for us and working for lots of people. hope it stops peoples progression and maybe get symptom relief a little if not more. there has to be something out there. i want all those people with ms to get better no matter what there progression. there is so many people with this dam disease it has to stop. thanks for listening to my whining raelene. -- Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Raelene, I can give you the low-down on the long term effects of steroids (ie, prednisone). When I was diagnosed in 1977, that is all they put me on - for five years. I took 80 mg of prednisone in the morning, 5 mg Valium at noon to calm me down, and 20 mg Dalmane at night to put me to sleep. I was a suicidal maniac the entire time. I finally stopped cold turkey in 1982. That was rough but well worth it. Anyway, because of the prednisone, the lining of my stomach was completely eaten up so, today, I do not enjoy food and can barely eat. (It is almost like gastric bypass surgery - my stomach is the size of a small finger.) It changed my taste buds so that everything I put in my mouth tastes like mush. I was never depressed before prednisone, but now I am in a chronic depression daily. No drug helps that. I told my neurologist that I will never take prednisone again for the rest of my life. This coming Wednesday, my mother, who is 75 and has just been diagnosed with MS, has to see a neurologist and I plan on giving him my speech on prednisone and the CRAB drugs. Good luck! Peace! VCL thanks joanne, i also am upset about people not getting relief, i no how frustrating it can be when you just want to have rest from the day to day stuff that happens and wears you down. i agree this much better than steroids works much faster and is less toxic and side effects also. you got to wonder what happens with steroids in the long term. have had then around 8 times in the last 10 years, different lengths of time. this time was the longest 5 days, then 3 days later 2more days. i was pleasant i can tell you. i agree with you it needs someone to research funds for research only. they do that here but how much goes into the research i don't know. they run the societies as well so all those people get paid from it also, and for what i ask. i don't seem to think they do much. if they used that money maybe we would have a cure, who knows. they should live with the frustration. but at least the LDN is around for us and working for lots of people. hope it stops peoples progression and maybe get symptom relief a little if not more. there has to be something out there. i want all those people with ms to get better no matter what there progression. there is so many people with this dam disease it has to stop. thanks for listening to my whining raelene. -- Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 thanks vcl it sounds horrid.....ugh. the steroids i have are intravenous so i think it may be a little different? not sure. you poor mum at 75 being diagnosed. ldn is the way to go i think. you are right the other drugs are a waste of time. i have taken them all and none worked. just lots of site reactions etc. good luck to you and your mum i hope you find some relief somewhere with the drugs raelene -- RE: [low dose naltrexone] Bladder problems!! Raelene,I can give you the low-down on the long term effects of steroids (ie, prednisone). When I was diagnosed in 1977, that is all they put me on - for five years. I took 80 mg of prednisone in the morning, 5 mg Valium at noon to calm me down, and 20 mg Dalmane at night to put me to sleep. I was a suicidal maniac the entire time. I finally stopped cold turkey in 1982. That was rough but well worth it. Anyway, because of the prednisone, the lining of my stomach was completely eaten up so, today, I do not enjoy food and can barely eat. (It is almost like gastric bypass surgery - my stomach is the size of a small finger.) It changed my taste buds so that everything I put in my mouth tastes like mush. I was never depressed before prednisone, but now I am in a chronic depression daily. No drug helps that. I told my neurologist that I will never take prednisone again for the rest of my life. This coming Wednesday, my mother, who is 75 and has just been diagnosed with MS, has to see a neurologist and I plan on giving him my speech on prednisone and the CRAB drugs. Good luck!Peace!VCL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 www.mylinrepair.org is a website that talks about healing MS. Re: [low dose naltrexone] Bladder problems!! In a message dated 12/2/2004 11:43:05 PM Eastern Standard Time, bluemoonta@... writes: hi, bladder control for me has been great since LDN also. 4 weeks on the stuff and getting better with each day. feel like my life is getting new boost. muscle spasm are gone, a little pain still but not everyday. walking unaided. thats get considering i was in a wheelchair recently. itching has left and various other probs are clearing up. this is the best thing i have ever Raelene Are you on any other meds or supplements? Also how long have you been dx'd? Thanks Arlene Quote Link to comment Share on other sites More sharing options...
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