Re: Off Subject- just chat

[Guest guest]

Joanne,

First symptom, optic neuritis Dec '96. Official diagnosis. Feb '98. Two years of Avonex and in the wheelchair Nov '99. Happened very fast! Not much time to try and wrap my brain around the thought that this situation could still be going on five years down the road! It was like having the rug pulled out from under my life! I walked until absolutely I couldn't take a step. It was like my feet were nailed to the floor!

I have two sons, 23, soon to be 24, and 21 years of age. The oldest will graduate from Texas Tech on Dec 18th! Whew! Glad that's nearly over. He's already teaching school. Auto Mechanics/Intro to Agriculture. The youngest is In Iraq. What a way to grow up! He's a Marine. Survived Fallujah, thank God! Says he knows they have killed some innocent people, but when they won't stop when ordered to, they don't wait to see if they have a bomb strapped to themselves! Like I told him, he's just doing his job. It's not on his head. Says it gets dumber every day.

Hubby of 22 years was a total financial disaster. I divorced him after 22 years 2 1/2 years ago after he refused to get help. Like I needed that stress! Damned if I did, damned if I didn't! Don't think I'll ever get over that. I had invested my whole life/self into that relationship. Dr Phil says not to invest more than you can afford to lose! I feel like I lost everything. Where was Dr Phil 22 years ago??! If I could move on, it might be different, but...

Stress is a killer! People need to avoid it if at all possible!

I drive a modified van if I need to go to town. BIG difference in WANTS and NEEDS!! At least I can get out if I have to now! Couldn't when hubby was in the picture! My boys are good to me, and I have some good friends. I manage somehow! Sometimes I wonder how!

I've tried every diet and supplement out there! Spent money that I didn't have! I've been annointed and had hands laid on! We are easy prey!! There are no easy answers.

I know that it would be noble to think 'why not me' rather than 'why me.' But I don't want to be the poster girl for MS! I want to get better so that other people might have hope.

I'm rambling and don't want to do that!

Marcie

In a message dated 11/28/2004 8:00:46 PM Central Standard Time, painter907@... writes:

Please tell me what is going on? How long have you been in the wheelchair? When were you diagnosed? Do you have kids? I got a scooter may 21st 2004 I use it for shopping and I walk around the house. I am thinking of walking more to shop and expanding the distance I walk slowly the LDN is working slowly, but surly. It is the best progress I have made in twelve years. Winter is hardest for me as the snow keeps me at home the cold is disabling as much as the heat of summer.

[Guest guest]

I try Tom! I thought about you as I was writing! A good title for a book would be 'Between a Rock and a Hard Spot'!! You know how scary the diagnosis is, and at first, one will do anything to try to keep from getting worse. Just thought I would share!

Marcie

In a message dated 11/29/2004 8:39:00 AM Central Standard Time, tbayuk@... writes:

Hi Marcie,

Your not rambling your not whining, your saying things that need to be said. Your comments are very helpful to many. Thankfully, you have a "Good Grip" on this scourge.

Regards,

Tom

[Guest guest]

Hay Marcie,

I am glad I asked questions you are a wonderful person recently a dear friend who is a Special Education Teacher and has been for 35 years well she is taking a message therapy class and has been giving me "free" messages. Coreen said "MS strikes: smart, attractive, active, outgoing, successful, creative, people. "Dam strange disease" I give you that.

I had t-6 back surgery in 1995. The doctor at the Layhe clinic came into the room before the surgery and said "there are "O" bands in your spinal fluid which would indicate you have MS. Should we do the surgery? You may be the same after surgery as before." I said "proceed fix the disk and they did" I walked for three more years and I forgot the MS nightmare. In 1999 while student teaching ( a stressful time) walking became a problem. We consulted many famous Doctors my case was a puzzlement to all. Then in 2004 I returned to the layhe, based on symtomolgy and the 1995 test they diagnosed today's problem as MS. To date I have had ten Mri"s no liaisons are on my brain or are large enough to show on MRI of my spinal cord. My doctor in Lebanon NH does not want me to have a spinal tape because he believes I have arcnodial tissue inflammation of the spinal cord. I to have that feet nailed to the floor feeling also.

Marcie through all this I am walking a little if you can call it that. I want to "hike yellow stone" like Sammy Jo. Hehehe. Texas Hay! So were you raised in Texas?

I am a New Englander all my life but as a child I traveled the USA as my older brother was in the Air force and My Dad a world War II veteran needed time to recover from a heart attack at 38 years of age.

Talk soon I would like to read more about life in Texas it must have been fun and challenging raising two boys and a husband he sounds like a real dummy. Men, can't live with or shot 'em legally. talk soon Joanne

! Like I told him, he's just doing his job. It's not on his head. Says it gets dumber every day. Hubby of 22 years was a total financial disaster. I divorced him after 22 years 2 1/2 years ago after he refused to get help. Like I needed that stress! Damned if I did, damned if I didn't! Don't think I'll ever get over that. I had invested my whole life/self into that relationship. Dr Phil says not to invest more than you can afford to lose! I feel like I lost everything. Where was Dr Phil 22 years ago??! If I could move on, it might be different, but... Stress is a killer! People need to avoid it if at all possible! I drive a modified van if I need to go to town. BIG difference in WANTS and NEEDS!! At least I can get out if I have to now! Couldn't when hubby was in the picture! My boys are good to me, and I have some good friends. I manage somehow! Sometimes I wonder how! I've tried every diet and supplement out there! Spent money that I didn't have! I've been annointed and had hands laid on! We are easy prey!! There are no easy answers. I know that it would be noble to think 'why not me' rather than 'why me.' But I don't want to be the poster girl for MS! I want to get better so that other people might have hope. I'm rambling and don't want to do that! Marcie In a message dated 11/28/2004 8:00:46 PM Central Standard Time, painter907@... writes:

Please tell me what is going on? How long have you been in the wheelchair? When were you diagnosed? Do you have kids? I got a scooter may 21st 2004 I use it for shopping and I walk around the house. I am thinking of walking more to shop and expanding the distance I walk slowly the LDN is working slowly, but surly. It is the best progress I have made in twelve years. Winter is hardest for me as the snow keeps me at home the cold is disabling as much as the heat of summer.

[Guest guest]

Hi Marcie,

Your not rambling your not whining, your saying things that need to be said. Your comments are very helpful to many. Thankfully, you have a "Good Grip" on this scourge.

Regards,

Tom

Re: [low dose naltrexone] Off Subject- just chat

Joanne, First symptom, optic neuritis Dec '96. Official diagnosis. Feb '98. Two years of Avonex and in the wheelchair Nov '99. Happened very fast! Not much time to try and wrap my brain around the thought that this situation could still be going on five years down the road! It was like having the rug pulled out from under my life! I walked until absolutely I couldn't take a step. It was like my feet were nailed to the floor! I have two sons, 23, soon to be 24, and 21 years of age. The oldest will graduate from Texas Tech on Dec 18th! Whew! Glad that's nearly over. He's already teaching school. Auto Mechanics/Intro to Agriculture. The youngest is In Iraq. What a way to grow up! He's a Marine. Survived Fallujah, thank God! Says he knows they have killed some innocent people, but when they won't stop when ordered to, they don't wait to see if they have a bomb strapped to themselves! Like I told him, he's just doing his job. It's not on his head. Says it gets dumber every day. Hubby of 22 years was a total financial disaster. I divorced him after 22 years 2 1/2 years ago after he refused to get help. Like I needed that stress! Damned if I did, damned if I didn't! Don't think I'll ever get over that. I had invested my whole life/self into that relationship. Dr Phil says not to invest more than you can afford to lose! I feel like I lost everything. Where was Dr Phil 22 years ago??! If I could move on, it might be different, but... Stress is a killer! People need to avoid it if at all possible! I drive a modified van if I need to go to town. BIG difference in WANTS and NEEDS!! At least I can get out if I have to now! Couldn't when hubby was in the picture! My boys are good to me, and I have some good friends. I manage somehow! Sometimes I wonder how! I've tried every diet and supplement out there! Spent money that I didn't have! I've been annointed and had hands laid on! We are easy prey!! There are no easy answers. I know that it would be noble to think 'why not me' rather than 'why me.' But I don't want to be the poster girl for MS! I want to get better so that other people might have hope. I'm rambling and don't want to do that! Marcie In a message dated 11/28/2004 8:00:46 PM Central Standard Time, painter907@... writes:

Please tell me what is going on? How long have you been in the wheelchair? When were you diagnosed? Do you have kids? I got a scooter may 21st 2004 I use it for shopping and I walk around the house. I am thinking of walking more to shop and expanding the distance I walk slowly the LDN is working slowly, but surly. It is the best progress I have made in twelve years. Winter is hardest for me as the snow keeps me at home the cold is disabling as much as the heat of summer.