Re: first time ldn user

Posted December 9, 2004 · December 9, 2004

hi i to am spms. although chemo ws going to be my option i found ldn

first and am doing good. it is the best thing i ever done. i have been on

all the drugs, betaferon, avonex and copaxone. they did little or nothing

for me. i have had ms for 13 years. been on intavenous steriods as well. i

know someone who is having chemo as well as ldn and says it's fine they kind

of help each other . he is ppms. you should have a go at the ldn...what have

you got to lose. not sure what other people think but i say go for it, it is

the best thing i could have ever done. i'm starting to get my life back and

have only been on ldn for 5 weeks. i keeping hoping its going to stay that

way. i hope you do decide and things get better for you. we all deserve a

better chance than what the neuros want us to have....good luck with

whatever you decide.raelene

---- [low dose naltrexone]

first time ldn userDate: 09/12/04 19:21hi, i'm Delilah,

i'm 26 yrs. old & have secondary proggressive ms.i was dx dec.99,

i've been on all the abc's and now on rebif for 14 months...and have had

my 3rd dose of novantrone. i recently became aware of ldn,and

immediately got my neuros on the line!! i went to my diagnosing neuro

the next week,he said no. my m.s. specialist said to wait & discuss

it at my next appt. dec 16....I Don't Think So!... so i went to my

g.p. and he gave me a 10 month supply,i think it was b-cuz he figured

there's no harm in letting me try,considering it probably wouldn't work

anyway...guys im nervous about giving up on the shots,chemo, and a

chance atfinally trying antigren,if someone out there will give me some

reassurance about ldn,i would really appreciate it. i know im not

the only person here who had to make this decision...but it feels

like it,i hope someone,anyone who's been here,no matter what

agewould "talk to me". i've been reading ur posts, & i feel like i

can't pass up a opp. like this one, i filled it at Skips,received

it.4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the

wrist bands are a GREAT idea! God Bless Us All, not matter what

sickness/disease, were All Carrying Our Own Cross+...but we can help

eachother in some way...but i see you guys already help eachother!

:)reassurance

Sponsor

Posted December 9, 2004 · December 9, 2004

Thanks for the information Raelene I am so very glad LDN is helping you so much. Raelene as you get your life back are thinking about work or do you work now and what do you do? The reason I am asking is I have been only part time employed as of the last few years and I to am feeling better with LDN. I was a teacher special education/ most recently a kindergarten teacher. I am trying to find less stressful pursuits. This coming spring I maybe head gardener at my house. We are having winter I think you are in Australia and you are therefore experiencing summer. Have a great day. I would love to hear about Astralian life. CU Joanne L.

-----Original Message-----From: Bluemoonta [mailto:bluemoonta@...]Sent: Thursday, December 09, 2004 6:36 AMlow dose naltrexone Subject: Re: [low dose naltrexone] first time ldn userhi i to am spms. although chemo ws going to be my option i found ldn first and am doing good. it is the best thing i ever done. i have been on all the drugs, betaferon, avonex and copaxone. they did little or nothing for me. i have had ms for 13 years. been on intavenous steriods as well. i know someone who is having chemo as well as ldn and says it's fine they kind of help each other . he is ppms. you should have a go at the ldn...what have you got to lose. not sure what other people think but i say go for it, it is the best thing i could have ever done. i'm starting to get my life back and have only been on ldn for 5 weeks. i keeping hoping its going to stay that way. i hope you do decide and things get better for you. we all deserve a better chance than what the neuros want us to have....good luck with whatever you decide.raelene

---- [low dose naltrexone] first time ldn userDate: 09/12/04 19:21hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.i was dx dec.99, i've been on all the abc's and now on rebif for 14 months...and have had my 3rd dose of novantrone. i recently became aware of ldn,and immediately got my neuros on the line!! i went to my diagnosing neuro the next week,he said no. my m.s. specialist said to wait & discuss it at my next appt. dec 16....I Don't Think So!... so i went to my g.p. and he gave me a 10 month supply,i think it was b-cuz he figured there's no harm in letting me try,considering it probably wouldn't work anyway...guys im nervous about giving up on the shots,chemo, and a chance atfinally trying antigren,if someone out there will give me some reassurance about ldn,i would really appreciate it. i know im not the only person here who had to make this decision...but it feels like it,i hope someone,anyone who's been here,no matter what agewould "talk to me". i've been reading ur posts, & i feel like i can't pass up a opp. like this one, i filled it at Skips,received it.4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the wrist bands are a GREAT idea! God Bless Us All, not matter what sickness/disease, were All Carrying Our Own Cross+...but we can help eachother in some way...but i see you guys already help eachother! :)reassurance

Posted December 9, 2004 · December 9, 2004

Delilah,

Of course this has to be your decision and I can share in your story. I have

had MS for 27 years and I have tried everything. For many years, I was on

nothing and felt pretty good. Then I had an MRI in 2003 and the left side of

my brain was covered with small plaques. I panicked and let the neurologist

talk me into using Avonex. I gave myself a shot every week for a year and felt

lousy the entire year. I had read about LDN 2 years ago, but that same neuro

said no. After I stopped the Avonex,I waited for 4 weeks. My neuro would not

give me a script but my family doctor did for a year. I worried that by

stopping the Avonex, I might get worse. I didn't. So, I started the LDN, and

I have felt better than I have in years. That's my story. Sometimes yo just

have to take a chance in Life to make it better.

VCL

hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.

i was dx dec.99, i've been on all the abc's and now on rebif for 14

months...and have had my 3rd dose of novantrone. i recently became

aware of ldn,and immediately got my neuros on the line!!

i went to my diagnosing neuro the next week,he said no. my m.s.

specialist said to wait & discuss it at my next appt. dec 16....

I Don't Think So!... so i went to my g.p. and he gave me a 10

month supply,i think it was b-cuz he figured there's no harm in

letting me try,considering it probably wouldn't work anyway...

guys im nervous about giving up on the shots,chemo, and a chance at

finally trying antigren,if someone out there will give me some

reassurance about ldn,i would really appreciate it. i know im not

the only person here who had to make this decision...but it feels

like it,i hope someone,anyone who's been here,no matter what age

would " talk to me " . i've been reading ur posts, & i feel like i can't

pass up a opp. like this one, i filled it at Skips,received it.

4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the

wrist bands are a GREAT idea! God Bless Us All, not matter what

sickness/disease, were All Carrying Our Own Cross+...but we can help

eachother in some way...but i see you guys already help eachother!

reassurance

Posted December 9, 2004 · December 9, 2004

Only you can decide what to take. Foe me, I am so glad I found ldn. I wish I found it years before. I have not had miraculous results- yet, but the improvements are impressive and I feel that much of my life has been given back to me.

[low dose naltrexone] first time ldn user

hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.i was dx dec.99, i've been on all the abc's and now on rebif for 14 months...and have had my 3rd dose of novantrone. i recently became aware of ldn,and immediately got my neuros on the line!! i went to my diagnosing neuro the next week,he said no. my m.s. specialist said to wait & discuss it at my next appt. dec 16....I Don't Think So!... so i went to my g.p. and he gave me a 10 month supply,i think it was b-cuz he figured there's no harm in letting me try,considering it probably wouldn't work anyway...guys im nervous about giving up on the shots,chemo, and a chance atfinally trying antigren,if someone out there will give me some reassurance about ldn,i would really appreciate it. i know im not the only person here who had to make this decision...but it feels like it,i hope someone,anyone who's been here,no matter what agewould "talk to me". i've been reading ur posts, & i feel like i can't pass up a opp. like this one, i filled it at Skips,received it.4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the wrist bands are a GREAT idea! God Bless Us All, not matter what sickness/disease, were All Carrying Our Own Cross+...but we can help eachother in some way...but i see you guys already help eachother! :)reassurance

Posted December 9, 2004 · December 9, 2004

>

> hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.

> i was dx dec.99, i've been on all the abc's and now on rebif for 14

> months...and have had my 3rd dose of novantrone. i recently became

> aware of ldn,and immediately got my neuros on the line!!

> i went to my diagnosing neuro the next week,he said no. my m.s.

> specialist said to wait & discuss it at my next appt. dec 16....

> I Don't Think So!... so i went to my g.p. and he gave me a 10

> month supply,i think it was b-cuz he figured there's no harm in

> letting me try,considering it probably wouldn't work anyway...

> guys im nervous about giving up on the shots,chemo, and a chance at

> finally trying antigren,if someone out there will give me some

> reassurance about ldn,i would really appreciate it. i know im not

> the only person here who had to make this decision...but it feels

> like it,i hope someone,anyone who's been here,no matter what age

> would " talk to me " . i've been reading ur posts, & i feel like i can't

> pass up a opp. like this one, i filled it at Skips,received it.

> 4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the

> wrist bands are a GREAT idea! God Bless Us All, not matter what

> sickness/disease, were All Carrying Our Own Cross+...but we can help

> eachother in some way...but i see you guys already help eachother!

>

> reassurance

==========

Delilah

You may find that while you are on immune suppressants(Novantrone), LDN may not

be as effective. LDN is an immune system booster/upregulator and Novantrone,

Rebif, Avonex, Betaseron & steroids are all immune system suppressants. LDN and

these immune suppressants battle one another. Take LDN anyway and see what it

can do for you. I wish you well.

Bren

Posted December 9, 2004 · December 9, 2004