Re: Bihari

[Guest guest]

My thoughts exactly. Even Dr Swank, with all of his research, never got the recognition and acceptance that was deserved. Once again, I believe it goes back to the almighty dollar! Not enough can be made!

Marcie

In a message dated 12/4/2004 7:48:54 PM Central Standard Time, jatrac1@... writes:

Even after all the years it's been in use many/most doctors are not interested in hearing about it, least of all the neurologists that most people with MS are depending on for help.

[Guest guest]

,

That's great you are seeing him. I take it you live in the NY area. I

don't. To state I'm speaking out of ignorance is a shot at me. When

were you dx. I was dx in 1993 so I have been dealing with this for

over 11 years. As far as if it wasn't for Bihari I wouldn't get LDN.

Well if he had published his findings and pushed them earlier like

when he started back in the 80's maybe LDN would have been more

accepted. I would not be in a f@#$@#$ & scooter for the last 6 years.

I've busted my butt since I was dx. not sitting on disability like

some. Which I've seen ones that get around better than me. Yes, it

depends on the type of job they did.

Yes, you psst me off with your shot.

My comment was more directed that why pay $500 when you can call

someone cheaper. I still think $500 is way out of line.

ADJ

>

> For the record, ADJ, Dr. Bihari has been my neurologist since last

> December, when I was first diagnosed with MS. During my first

visit, he

> spent two hours talking to me. If I call with a question, I get a

phone

> call back THAT day. So no, I just don't want someone who's going

to

> prescribe LDN. I consider him my doctor.

>

> There are several members of this group that are also his patients

and

> can attest to how wonderful he is.

>

> I have nothing against Dr. and I think it's great that people

have

> had satisfactory phone consultations with him, but you are speaking

out

> of ignorance when it comes to Bihari. You wouldn't be taking LDN

if it

> wasn't for him, and frankly, if I was having a problem, I would

prefer to

> deal with someone who's been prescribing LDN for a long time.

>

> And speaking of Bihari, he's finally back in the office and I'll be

> seeing him at the end of December. Several people had given me

questions

> to ask him, but they are months old and I want to make sure you're

still

> looking for answers. They are: Martha, Dar, Friday, Louise, and

Karina.

> I'm more than willing to ask him for you, but please understand

that he

> may say that he needs more information about you individually.

>

>

>

> ________________________________________________________________

> Juno Gift Certificates

> Give the gift of Internet access this holiday season.

> http://www.juno.com/give

[Guest guest]

May I have Dr. Bihari's phone number please?

in Arizona

lee10@...

[Guest guest]

If we had the widespread use of the internet back in the 80's we'd all have been on LDN sooner. In fact, if I had believed what I'd read on the internet I'd have been on LDN about 8 months sooner than I was. I got a push from a friend who tried it and wanted to share his good fortune. I believe the fairly widespread use of LDN has occurred because we are able to use the power of the internet to research our own health conditions and interact with others... In the '80s I don't see what Dr Bihari could have done to gain any greater acceptance of LDN than exists currently. Even after all the years it's been in use many/most doctors are not interested in hearing about it, least of all the neurologists that most people with MS are depending on for help. We're getting it because most of us found out about it on the WWW. I am very grateful to Dr B for his gift, and can't criticize him at all for not making it widely known. How was he to accomplish that?

As for his fees, they are not unreasonable if you are interested in having a doctor to follow your progress, even via phone consult. If you only want a doctor to prescribe the medication then by all means try someone who charges less. You may still have a doctor to follow your progress, you may not. You should be happy with your prescribing doctor, that is what counts.

JT

[low dose naltrexone] Re: Bihari

,That's great you are seeing him. I take it you live in the NY area. I don't. To state I'm speaking out of ignorance is a shot at me. When were you dx. I was dx in 1993 so I have been dealing with this for over 11 years. As far as if it wasn't for Bihari I wouldn't get LDN. Well if he had published his findings and pushed them earlier like when he started back in the 80's maybe LDN would have been more accepted. I would not be in a f@#$@#$ & scooter for the last 6 years.I've busted my butt since I was dx. not sitting on disability like some. Which I've seen ones that get around better than me. Yes, it depends on the type of job they did.Yes, you psst me off with your shot.My comment was more directed that why pay $500 when you can call someone cheaper. I still think $500 is way out of line.ADJ> > For the record, ADJ, Dr. Bihari has been my neurologist since last> December, when I was first diagnosed with MS. During my first visit, he> spent two hours talking to me. If I call with a question, I get a phone> call back THAT day. So no, I just don't want someone who's going to> prescribe LDN. I consider him my doctor.> > There are several members of this group that are also his patients and> can attest to how wonderful he is. > > I have nothing against Dr. and I think it's great that people have> had satisfactory phone consultations with him, but you are speaking out> of ignorance when it comes to Bihari. You wouldn't be taking LDN if it> wasn't for him, and frankly, if I was having a problem, I would prefer to> deal with someone who's been prescribing LDN for a long time. > > And speaking of Bihari, he's finally back in the office and I'll be> seeing him at the end of December. Several people had given me questions> to ask him, but they are months old and I want to make sure you're still> looking for answers. They are: Martha, Dar, Friday, Louise, and Karina.> I'm more than willing to ask him for you, but please understand that he> may say that he needs more information about you individually.> > > > ________________________________________________________________> Juno Gift Certificates> Give the gift of Internet access this holiday season.> http://www.juno.com/give

[Guest guest]

Hi ,

I dont actually remember what my question for Dr Bihari was, but I

wouldnt mind if you asked him if he was coming to Australia one day

to give a talk about LDN as an awareness/information night.

That would be fantastic and many of us would like to meet him

personally.

Thanks for remembering me anyhow,

Friday

Several people had given me

> questions

> > to ask him, but they are months old and I want to make sure

you're

> still

> > looking for answers. They are: Martha, Dar, Friday, Louise,

and

> Karina.

> > I'm more than willing to ask him for you, but please understand

> that he

> > may say that he needs more information about you individually.

> >

> >

> >

> > ________________________________________________________________

> > Juno Gift Certificates

> > Give the gift of Internet access this holiday season.

> > http://www.juno.com/give

[Guest guest]

Okay, guys...Realistically speaking, I think that very few of us are

using the doctor we use to get LDN as our neuro, so we have to

realize that we are looking at this situation from two different

places, right?

I would love to talk to Dr. Bihari and to have done the consult with

him for my son. However, I, too, am one of those who believe that

$500 for a phone consult is WAY out of line. I can't afford it since

my insurance won't cover it, and I won't pay it because I believe it

is way too much. I think this is the situation for alot of people.

If I lived in NY and could go to his office and see him in person,

that would be a different story.

I also think that Dr. and some of the other docs who are doing

phone consults are sneaking their prices up slowly but surely, and

they may soon rival Dr. Bihari's, so we may all be in the same boat,

so to speak. Every time I see a post on here about Dr. , the

pricing is different, usually higher. And, the long distance phone

call is on us, as well.

But, you know what? My son has LDN, and he's doing better than he

has done since he got this lousy diagnosis over 3 years ago, and he

has been doing fantastic since he started LDN in June. Knock on

wood, we haven't needed a neuro since he started it. I bet if you

could see the docs office notes prior to that, there would be a note

for every week regarding my son's problems. I can't stop smiling.

Neither can he. We're going on 7 months of pure sunshine, doesn't

matter what the weather is doing outside!

We all have different circumstances. And we all have a mission.

That mission is to do what we can to get the word out about LDN to

all who need to know. Anything else that we accomplish in this

effort is pure bonus.

Hope you're having a great weekend! Take care!

Kim

>

> ,

> That's great you are seeing him. I take it you live in the NY area.

I

> don't. To state I'm speaking out of ignorance is a shot at me. When

> were you dx. I was dx in 1993 so I have been dealing with this for

> over 11 years. As far as if it wasn't for Bihari I wouldn't get

LDN.

> Well if he had published his findings and pushed them earlier like

> when he started back in the 80's maybe LDN would have been more

> accepted. I would not be in a f@#$@#$ & scooter for the last 6 years.

> I've busted my butt since I was dx. not sitting on disability like

> some. Which I've seen ones that get around better than me. Yes, it

> depends on the type of job they did.

> Yes, you psst me off with your shot.

> My comment was more directed that why pay $500 when you can call

> someone cheaper. I still think $500 is way out of line.

> ADJ

>

[Guest guest]

And one more angle on the phone doctor thing... Once you have been on LDN for some time your primary care physician is bound to have noticed the changes in your condition, if you see one regularly. When it is time to renew your prescription you have a much greater chance of getting your PCP to write it for you when you can show the success you've been having. It would help a lot to keep a brief log of before and after symptoms and degree of impairment. Sure, a lot of doctors are going to say "You're doing great, keep on doing whatever you're doing," especially the neuros with their CRABS mentality. But you do have a chance to help your own doctor believe based on the changes (or even lack of them) in your condition, and some doctors will be willing to write your prescription when you can demonstrate the effectiveness of LDN personally instead of sharing second and third hand stories. The level of understanding can continue to evolve if we use rational presentations with our doctors. Just don't hope for much help from your neurologist, stick with your PCP.

JT

[low dose naltrexone] Re: Bihari

Okay, guys...Realistically speaking, I think that very few of us are using the doctor we use to get LDN as our neuro, so we have to realize that we are looking at this situation from two different places, right? >

[Guest guest]

Well, Dr. B's prices are in-line with neuros from Manhattan. Anyone outside of NYC that tries to get their prices that high may just be trying to slow down their applications a bit. Definitely can't justify Dr. B's prices, outside of NYC.

My neuro costs about the same, except I only pay $10.00 copay per visit.

When I called Dr. B I was told I could come see him or talk on the phone, when I found out it was the same cost structure, I figured I'd go see him. Made an appointment... and already had one with my neuro before my Dr. B visit. My neuro surprised me and gave me a script.

I was supposed to go see him again after my MRI but so much time has passed, I think I need a new referral, or wait til next month when my plan changes to referral-less!

[low dose naltrexone] Re: Bihari

I also think that Dr. and some of the other docs who are doing phone consults are sneaking their prices up slowly but surely, and they may soon rival Dr. Bihari's, so we may all be in the same boat, so to speak. Every time I see a post on here about Dr. , the pricing is different, usually higher. And, the long distance phone call is on us, as well.

[Guest guest]

hi i am from australia also and that would be a great opportunity if he was in adelaide count me in and i could definitely find others

raelene

-- [low dose naltrexone] Re: Bihari

Hi ,I dont actually remember what my question for Dr Bihari was, but I wouldnt mind if you asked him if he was coming to Australia one day to give a talk about LDN as an awareness/information night.That would be fantastic and many of us would like to meet him personally.Thanks for remembering me anyhow,FridaySeveral people had given me > questions> > to ask him, but they are months old and I want to make sure you're > still> > looking for answers. They are: Martha, Dar, Friday, Louise, and > Karina.> > I'm more than willing to ask him for you, but please understand > that he> > may say that he needs more information about you individually.> > > > > > > > ________________________________________________________________> > Juno Gift Certificates> > Give the gift of Internet access this holiday season.> > http://www.juno.com/give

[Guest guest]

Aussie here too, for me. My gp was a neuro in his old country and has delt with ms since 65 handy......

Penny

[low dose naltrexone] Re: Bihari

Hi ,I dont actually remember what my question for Dr Bihari was, but I wouldnt mind if you asked him if he was coming to Australia one day to give a talk about LDN as an awareness/information night.That would be fantastic and many of us would like to meet him personally.Thanks for remembering me anyhow,FridaySeveral people had given me > questions> > to ask him, but they are months old and I want to make sure you're > still> > looking for answers. They are: Martha, Dar, Friday, Louise, and > Karina.> > I'm more than willing to ask him for you, but please understand > that he> > may say that he needs more information about you individually.> > > > > > > > ________________________________________________________________> > Juno Gift Certificates> > ; Give the gift of Internet access this holiday season.> > http://www.juno.com/give

[Guest guest]

my gp is great, by my neuro is an idiot. mainly rely only on my gp.

raelene

-- Re: [low dose naltrexone] Re: Bihari

Aussie here too, for me. My gp was a neuro in his old country and has delt with ms since 65 handy......

Penny

[low dose naltrexone] Re: Bihari

Hi ,I dont actually remember what my question for Dr Bihari was, but I wouldnt mind if you asked him if he was coming to Australia one day to give a talk about LDN as an awareness/information night.That would be fantastic and many of us would like to meet him personally.Thanks for remembering me anyhow,FridaySeveral people had given me > questions> > to ask him, but they are months old and I want to make sure you're > still> > looking for answers. They are: Martha, Dar, Friday, Louise, and > Karina.> > I'm more than willing to ask him for you, but please understand > that he> > may say that he needs more information about you individually.> > > > > > > > ________________________________________________________________> > Juno Gift Certificates> > ; Give the gift of Internet access this holiday season.> > http://www.juno.com/give