Re: Lyme and MS - Bren and

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In a message dated 12/7/2004 11:23:16 AM Eastern Standard Time, TwisterAlley2@... writes:

I have seen this mentioned of someone who started LDN for their MS and had the same sort of problems. Come to find out, this person had been misdiagnosed with MS and actually had Lyme. The person found a Lyme Literate doctor, which is extremely important and had doc run tests and tested positive for Lyme and is now on treatment for Lyme and getting much better. Have your wife see a Lyme literate doctor as a just-in-case. Someone at another forum said that LDN makes them feel awful and she has Lyme, was misdiagnosed with MS. So far I have seen 5 people who started LDN continue to progress downhill on LDN and those 5 people were misdiagnosed and have actually tested positive for Lyme. 4 of these have started treatment for Lyme and are getting much better and the 5th will be starting treatment soon as he was just recently dx'd Lyme.If your wife does not have Lyme you need to look at the source where you are getting your LDN, if you use a capsule form of LDN you may be allergic to the filler used.Bren

Bren

I have been dx'd w/ Lyme in July, 2004. I was dx'd w/ MS in 2001, symptoms since 1991 though. I take LDN since April this year. I did notice less fatigue in beginning, but not a whole lot of other improvements. Bladder problems a little better.

Do you know what kind of treatment these people are on. I was on antibiotics since July but have stopped for a while b/c they made me feel much worse.

Is LDN NOT supposed to be used at all with Lyme. I was under the impression that Lyme could co-exist with MS.

What are your thoughts?

could you ask Dr B about taking LDN if one has lyme?

Thanks

Arlene