For Kim

[Guest guest]

Hi Kim,

I am very right-handed. So there goes that theory. Because I get my lab

results before I see the Doctor, I had already begun to reduce my Tapazole

after my first post Tapazole blood test came back as lowish normal. Because

of the suddenness and severity of my initial HyperT and that fact that I was

continually being exposed to somewhat toxic chemicals from major

construction at my home, I choose to gradually reduce my Tapazole rather

than go from 20 to 10 mgs. Perhaps it was a mistake but it's what I did. I

tend to do everything gradually. It's just my nature. I'm not even sure I

should be taking tapazole any more since by thyroid levels are still low

normal. My plan is to keep the 2 1/2 mgs going for another 3 to 6 weeks.

If I can't get my thyroid levels up, I will just stop taking it. I am

fortunate to have MDs that have been relatively supportive since our initial

RAI battles. Congratulations on your blood work and have a good evening.

Best, Zoey

Re: Elaine..hypo ..tired..

>In a message dated 11/6/00 2:26:15 PM Central Standard Time, tarbi@...

>writes:

>

><< Subj: Re: Elaine..hypo ..tired..

> Date: 11/6/00 2:26:15 PM Central Standard Time

> From: tarbi@... (Zoey)

> Reply-to: hyperthyroidismegroups

> hyperthyroidismegroups

>

> Kim, You sound like I felt on Tapazole. So tired and brain dead I could

> barely function. I also put on lots of weight eating barely nothing. As

> you may be able to tell from my Excel results, I GRADUALLY reduced my

> Tapazole by 2 1/2 mgs a week. I'm now taking only 2 1/2 mgs and still feel

> somewhat hypo. Anyway, I always get my blood work done several days or

> more before my MD appointment and have the results faxed to me by the lab.

> This way, the information I have for my appointment is current.

>

> One other thing. It supposedly takes 3 to 6 weeks for changes in Tapazole

> dose levels to show up in your lab work. Elaine, correct me if I am

wrong.

> You seem to be heading in the right direction. Congratulations and good

> luck. Zoey >>

>

>Zoey, we do sound alot alike ) Size and all. What were you at lab

result

>wise and Topazole wise when the doctor said ok let's start reducing by 2

1/1

>mgs. a week? Do you smoke? Did you have the eye problems? I forget who

had

>them and who didn't.. Are you left handed? I just posted the article on

>being left handed and having auto-immunes..now I'm curious on that too )

>thanks Kim

>

>

>

>

>

[Guest guest]

Kim, I don't know for sure what caused my hyperT. As far as I know, no one

in my family has had it. By low normal I mean the lower end of the normal

range (e.g.; 1.1 on a range of .75 - 2.0). Right now I'm focusing more on

getting my energy back, being productive, and seeing if I can stop my hair

from falling out. With warm regards, Zoey

Re: For Zoey

>In a message dated 11/6/00 8:19:53 PM Central Standard Time, tarbi@...

>writes:

>

><<

> Hi Kim,

>

> I am very right-handed. So there goes that theory. Because I get my lab

> results before I see the Doctor, I had already begun to reduce my Tapazole

> after my first post Tapazole blood test came back as lowish normal.

Because

> of the suddenness and severity of my initial HyperT and that fact that I

was

> continually being exposed to somewhat toxic chemicals from major

> construction at my home, I choose to gradually reduce my Tapazole rather

> than go from 20 to 10 mgs. Perhaps it was a mistake but it's what I did.

I

> tend to do everything gradually. It's just my nature. I'm not even sure

I

> should be taking tapazole any more since by thyroid levels are still low

> normal. My plan is to keep the 2 1/2 mgs going for another 3 to 6 weeks.

> If I can't get my thyroid levels up, I will just stop taking it. I am

> fortunate to have MDs that have been relatively supportive since our

initial

> RAI battles. Congratulations on your blood work and have a good evening.

> Best, Zoey >>

>

>Zoey, do you think the toxic chemicals caused your Graves? Does anyone in

>your family have it or other auto-immune diseases? I'm glad your better

)

>I would be afraid to go off the medicine too. I asked my doctor about

slowly

>tapering from 20 to 10. I had the same thoughts as you about it. By low

>normal what do you mean? The low end of your range? Are you towards the

>hypo side now? they have flipped me hypo..I think I told you ) Now I'm

so

>sleepy. And I feel fat at 130 to 132 ( Kim

>

>

>

>

>

[Guest guest]

Dear Zoey, my hair has been falling our for ages - since April '99. I've

got quite alot of it, so that's not so bad, I don;t look like I've got thin

hair, especially since it has become more coarse and dry instead of shiney

and flat.

However, I am so itchy all over my body and especially on my head and neck,

that I have been slowly cutting my once long hair, shorter. I had it long

for fifteeen years and I loved it long, but I can't bear the feel of it

anymore and find that when it is shorter, I end up with less strands on the

pillow in the morning, and less comes out in the bathtub when I've washed

it. I have a neck length bob at the moment and think I will end up with a

short short haircut 'like a boy' (or like many women!!) in the end, just

because of the itchyness.

Have you considered cutting it, I really didn't want to do it, but it's

turned out to be quite good fun! It will grow back, if I want it long again

when I am better.

DAWN

>From: " Zoey " <tarbi@...>

>Reply-hyperthyroidismegroups

><hyperthyroidismegroups>

>Subject: Re: For Kim

>Date: Mon, 6 Nov 2000 19:57:40 -0800

>

>Kim, I don't know for sure what caused my hyperT. As far as I know, no

>one

>in my family has had it. By low normal I mean the lower end of the normal

>range (e.g.; 1.1 on a range of .75 - 2.0). Right now I'm focusing more on

>getting my energy back, being productive, and seeing if I can stop my hair

>from falling out. With warm regards, Zoey

>

> Re: For Zoey

>

>

> >In a message dated 11/6/00 8:19:53 PM Central Standard Time,

>tarbi@...

> >writes:

> >

> ><<

> > Hi Kim,

> >

> > I am very right-handed. So there goes that theory. Because I get my

>lab

> > results before I see the Doctor, I had already begun to reduce my

>Tapazole

> > after my first post Tapazole blood test came back as lowish normal.

>Because

> > of the suddenness and severity of my initial HyperT and that fact that I

>was

> > continually being exposed to somewhat toxic chemicals from major

> > construction at my home, I choose to gradually reduce my Tapazole rather

> > than go from 20 to 10 mgs. Perhaps it was a mistake but it's what I

>did.

>I

> > tend to do everything gradually. It's just my nature. I'm not even

>sure

>I

> > should be taking tapazole any more since by thyroid levels are still low

> > normal. My plan is to keep the 2 1/2 mgs going for another 3 to 6

>weeks.

> > If I can't get my thyroid levels up, I will just stop taking it. I am

> > fortunate to have MDs that have been relatively supportive since our

>initial

> > RAI battles. Congratulations on your blood work and have a good

>evening.

> > Best, Zoey >>

> >

> >Zoey, do you think the toxic chemicals caused your Graves? Does anyone

>in

> >your family have it or other auto-immune diseases? I'm glad your better

>)

> >I would be afraid to go off the medicine too. I asked my doctor about

>slowly

> >tapering from 20 to 10. I had the same thoughts as you about it. By low

> >normal what do you mean? The low end of your range? Are you towards the

> >hypo side now? they have flipped me hypo..I think I told you ) Now

>I'm

>so

> >sleepy. And I feel fat at 130 to 132 ( Kim

> >

> >

> >

> >

> >

>

>

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[Guest guest]

I loved this Kim: We're going on 7 months of pure sunshine, doesn't

matter what the weather is doing outside!

That says it all.

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[Guest guest]

YOur rom is a lot better than mine My therapist gets me to 98 but it hurts like crazy and I cannot maintain it for long.unassited it isnt very good at all. I am glad that yours is so good how are you doing with straightening the knee.He said he was more worried about me getting straight than bending it has been a very long time since I was straight. sherrie

God bless all our heros

PMSM

LCPL JOSH

India 2nd plt.

Re: tootin my horn - Sherrie

Sherrie,

I did the bike at PT today also......and I was surprised that I was able to go all the way around also. Isrtaed out going back forth and then I did it.....I was excited. It sure doesn't take much to excite me these days.

My ROM was 105 and I thought I was behind.

Way to go Sherrie sounds like we are both getting were we need to be.

Kim

[Guest guest]

Sherri Mom is still a few degree of of straight also. Her PT has her putting her leg up on ottoman with something under the ankle. There is nothing supporting her knee. She then puts some ankle weights on the knee and the added weight is suppose to help straighten. We have the kind of ankle weights that you can add a lb at a time up to 5. PT also mentioned using a phone book opened and laying across the knee but mom felt like that was no weight at all. You might ask and see what PT thinks. Sharon YOur rom is a lot better than mine My therapist gets me to 98 but it hurts like crazy and I cannot maintain it for long.unassited it isnt very good at all. I am glad that yours is so good how are you doing with straightening the knee.He said he was more worried about me getting straight than bending it has been a very long time since I was straight. sherrie God bless all our heros PMSM LCPL JOSH India 2nd plt. Re: tootin my horn - Sherrie Sherrie, I did the bike at PT today also......and I was surprised that I was able to go all the way around also. Isrtaed out going back forth and then I did it.....I was excited. It sure doesn't take much to excite me these days. My ROM was 105 and I thought I was behind. Way to go Sherrie sounds like we are both getting were we need to be. Kim

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Sherrie,

I got my ROM to 103 yesterday. I am hoping for 105 today at PT.

I am not having any problems with getting my leg straight and doing ok with my ROM.

But I am not getting out and about like you are doing.

I am also hurting so bad at night. I have just decided that I am going to have to just keep taking my pain meds every 4 hours. Maybe I will not be in so much pain at night.

Kim

[Guest guest]

Kim,

Have you asked your doctor to give you something to help you sleep?

After me surgery I could only sleep for like 2-3 hours a night. My

OS said this was from the anesthesia. I remember having the same

thing from my 3 previous surgeries...but not this bad. I also had no

appetite and have lost 20 lbs, but that part is good....LOL. He says

it was because I was under for over 4 1/2 hours and would take a

while longer to get out of my system. He gave me Ambien to help me

sleep/ That actually made me wired, so we tried Lunesta which knocks

me out!! I also tried Tylenol PM which is great too cause I don't

have the severe pain I had post surgery like you do now. Maybe you

can ask him about a sleepig aid to help you. You've got to get some

sleep because its an important part of your recovery too. I suffered

for weeks with only 2-3 hours a night. It was awful!! Better than

waking up in pain all night long too.

Deb

>

> Sherrie,

>

> I got my ROM to 103 yesterday. I am hoping for 105 today at PT.

>

> I am not having any problems with getting my leg straight and doing

ok with

> my ROM.

>

> But I am not getting out and about like you are doing.

>

> I am also hurting so bad at night. I have just decided that I am

going to

> have to just keep taking my pain meds every 4 hours. Maybe I will

not be in so

> much pain at night.

>

> Kim

>

[Guest guest]

Kim did he mention how ling this will take to get meds out of system you know if I take them around the clock I feel fine but when I dont I feel nervous untill I take i I am down to only 1 at night the pain is fine but I fell crazy sherriekendrick1086@... wrote: Thank for you kind words Margaret. My doctor told me today that coming off the pain meds.....will make me very emotional....bitchy.....etc. I sure

all of this is due to cutting back onmy meds. My OS also will not give me anything stronger for my pain at night. He said to take more Ambien. That I Will feel better once the pain meds get out of my system. I hope this all made sense. Kim God bless all our heros PMSM LCPL JOSH India 2nd plt.

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