Re: Ex Interferon 1b users

[Guest guest]

Hi !

I was on the Betaseron for only 22 months...during the last 6 - 7 months

on it, the flu-like symptoms increased from feeling really lousy every

other day to every day. Site reactions started happening, redness at

first, followed by black & blue spots at injection site and was starting

to be very painful to touch. I ran out of betaseron about a month prior to

starting on ldn. The flu-like symptoms only took about 3-4 days to go

away. (if memory serves me correctly) Strange but, (sarcastic) all the

depression (associated with the betaseron) seemed to go away as well.

As far as how I felt once starting on the ldn.

day1 fantastic

day2 pretty good

day3 ok

day4 Lord, I've got MS, someone please shoot me.

day5 ok, by afternoon pretty good.

day6 up and including today, I've leveled off to around pretty good

and some days better and some days a little worse.

I still have some days that kick my tail, but all in all, my "worst" days

on the ldn are far better than my "best" days on the betaseron.

Just my 2cents worth. Hope it helps.

Jim(rrms)

[Guest guest]

,

Sorry but forgot to mention, this coming Friday will be one year on

LDN. If I'd known about this stupid little pill when I was first diagnosed,

who knows, I might have still been working, and then...maybe not!

Tell your husband "Good luck" and I hope this (ldn) works as well for

him as it is working for me.

Jim

[Guest guest]

When I stopped the Rebif, all bad symptoms stopped the same week. I still have some knots at the injection sites . I was only on Rebif for 1 and 1/2 yrs. I am now on LDN for the same amount of time and people are amazed at the difference. It is not that the LDN gave me such great symptom relief but I believe that the Rebif gave me such horrible side effects that merely stopping it made a difference in the way I feet. The LDN has kept me stable , energetic, and happy!

[Guest guest]

On Wed, 8 Dec 2004 18:39:56 -0800, you wrote:

>Tell your husband " Good luck " and I hope this (ldn) works as well for

>him as it is working for me.

Thank you.. :-)

how long doyou think it was before you stopped catching all the bugs

going round.. if you ever did of course.... lol...

4 kids means lots of bugs in this house at times.

remove the sand to reply to me.

[Guest guest]

On Thu, 9 Dec 2004 13:55:40 EST, you wrote:

>The LDN has kept me stable ,

>energetic, and happy!

thanks... it makes a huge difference to dh being off the beteferon...

moodwise...

remove the sand to reply to me.

[Guest guest]

I can say that the depression disappeared right away and the extreme

weakness in about 48 hours, if I remember well. I never had

problems with the injection sites.

Kind regards

Joanne

--- In low dose naltrexone , michelle <seyshell@o...>

wrote:

>

> Just a question for the ex users.... when you stopped using

> betaferon/betaseron how long before the side effects (if you had

them)

> stopped..

>

>

[Guest guest]

Hi Mchelle, My side affects, flu symptoms and pain improved very rapidly.

my balance is still bad, but i amhoping the higher dose will help that, my

doctor thinks it will. Hope i can tolerate the higher dose. Dtick with it,

Roxanne [low dose naltrexone] Ex Interferon 1b users

>

>

> Just a question for the ex users.... when you stopped using

> betaferon/betaseron how long before the side effects (if you had them)

> stopped..

>

> Things like flu symptoms etc..

>

> Also how long before you seemed to feel better within yourself....

>

> DH's immune system is still really low, and I am just wondering about

> the time frame before he feels okay... and not constantly feeling like

> he is catching something...

>

>

>

> remove the sand to reply to me.

>

>

>

>

>

>

[Guest guest]

jsgarvin, Sounds like my reaction almost to a tee, Bless us all. the injections are nasty drugs, and i think they are worse since they changed , the prefilled syringe. I think they changed the PH balance. My neuro put me on half a dose after i complained, and i had been on it for 11 uears, notice i said 'had"?. Roxanne Merry Christmas and a healthey new year

Re: [low dose naltrexone] Ex Interferon 1b users

Hi !

I was on the Betaseron for only 22 months...during the last 6 - 7 months

on it, the flu-like symptoms increased from feeling really lousy every

other day to every day. Site reactions started happening, redness at

first, followed by black & blue spots at injection site and was starting

to be very painful to touch. I ran out of betaseron about a month prior to

starting on ldn. The flu-like symptoms only took about 3-4 days to go

away. (if memory serves me correctly) Strange but, (sarcastic) all the

depression (associated with the betaseron) seemed to go away as well.

As far as how I felt once starting on the ldn.

day1 fantastic

day2 pretty good

day3 ok

day4 Lord, I've got MS, someone please shoot me.

day5 ok, by afternoon pretty good.

day6 up and including today, I've leveled off to around pretty good

and some days better and some days a little worse.

I still have some days that kick my tail, but all in all, my "worst" days

on the ldn are far better than my "best" days on the betaseron.

Just my 2cents worth. Hope it helps.

Jim(rrms)

[Guest guest]

, My flu symptoms from beta went away almost right away, emember,

it take awhile to clear from your body. Roxanne

[low dose naltrexone] Ex Interferon 1b users

>

>

> Just a question for the ex users.... when you stopped using

> betaferon/betaseron how long before the side effects (if you had them)

> stopped..

>

> Things like flu symptoms etc..

>

> Also how long before you seemed to feel better within yourself....

>

> DH's immune system is still really low, and I am just wondering about

> the time frame before he feels okay... and not constantly feeling like

> he is catching something...

>

>

>

> remove the sand to reply to me.

>

>

>

>

>

>