Re: update on . . . long

[Guest guest]

lori,

all i can say is wow!!! sounds like they have you running around like a chicken

with its head off..more like the doctor has his head off... ikes.. hang in

thereand major major strength coming you and david's way... i feel for you

both.... but soundslike a great reading program....take care, leah

[Guest guest]

Oh Boy Loriann!!!!! I'm so sorry you and your family are going through all

this. I know you're not asking for advice and I certainly won't give you

any. However, I just want to add that lots of kids with DS who aren't

autistic still do the lining up of things. Heck, I remember my oldest (now

19 and NDA) lining things up when he was little. Also I have a very close

friend whose daughter dangles 24/7, but is not autistic. And FWIW, I think

you are wise to skip doing the powder thing. I didn't think of that, but it

makes perfect sense that might stop eating the foods on the diet

because they make him feel sick. Oh, I am so sorry!!! I am hoping and

praying that the next couple months go quickly for you!!! {{{{{{{{hugs}}}}}}}

And let us know what the bloodwork comes back showing, ok?

Donna

[Guest guest]

Donna,

Thanks for the encouragement. I won't be devastated if he turns out to be

autistic. I've lived with that diagnosis for almost 2 years now. It's just

that I want an accurate label. We all have labels. I'm

wife-mother-teacher-sometimes taxi driver-etc. I am still hoping to have him

mainstreamed with an aide and pull-outs for specials (like speech) and adapted

academics. I hope the lining up is just him. He does actually have a purpose

when he lines things up: he could be making a train, or all his cars heading

towards the fan, which represents a tornado. There is imagination there. He

also ties everything up, but says he's decorating. So it's not senseless (or at

least he can let me know his logic in doing it). Does make me wonder if it's

not all like that, but less verbal kids can't articulate that they just made a

parade, or whatever.

He's doing good today. We got the Phonics Factory yesterday, today being the

first day to run through it. He actually followed and imitated the sounds of

the letters and went through the tape 3 times!! He didn't feel confident enough

to take the test, but I told him we can do that next week.

On a praise note, I had broken (or thought I had) the scanner, which is my

lifeline for homeschool (so I don't go through so many books, he needs

repetition). I had dropped it off a cabinet when I was trying to fix my

computer. Well, I took the top off and sort of re-set everything in place, and

lo and behold, it works!!! I just scanned and printed 3 copies of his little

4-page booklet for lesson 1!!

Loriann

Wife to Dewight

Mom to , 10 years, DS who knows what else?

And , 17 months and Strong Willed