Re: Re_update on . . long

[Guest guest]

Loriann,

I'm sure that we ALL have things (like skeletons in our respective closets)

that maybe we haven't posted to the message board because we were (are)

afraid of being " judged " as bad parenting! NONE, not one, of us is in your

shoes and not one of us has the right (or even the desire, I don't think) to

judge your actions with . You are absolutely right about the

doctors....if he had Diabetes, they probably would have you put him back on a

regular diet. I have had the same questions raised with regards to

hypothyroidism with ...like maybe we should take him off the med and

see if he is????? I know I value your input to this list and I hope that you

won't leave just because someone has misunderstood your situation. Hang in

there and don't let anybody make you feel like a bad parent!

Terry

Mom to , 13 yrs.

[Guest guest]

Actually I did originally, but since my computer crashed, I had forgotten it.

Since it's been such a short time that he's been back on gluten, I should

remember what he was like before. I'm inclined to say he's not autistic,

otherwise he couldn't have made such marked progress to the point where I

considered him recovered.

As to the oppositionality, I am trying to have more patience with him. I know

when I don't feel good, I'm cranky too. Please don't anyone think I'm beating

my child because he's a bit cranky and doesn't want to listen to me. I also

realize that I have been letting the sassing slip by because I fell into that

trap of " but he can't help it, he's autistic " that I swore to myself I would

never do.

This part is going to be hard for me to type, and maybe for others to read. I

have always felt that I got my support and sanity from this list. I complain

more to you people than I do to my friends because I know there are more people

here who have walked that mile in my shoes. It also is a release so that I

don't HAVE to complain to my friends who don't understand. I have prayed and

prayed and prayed and prayed and then prayed some more for a solution to this

problem. I resent the insuation that I am harming my child for no apparent

reason. If I suspected I had a child with diabetes and put him on a diabetic

diet for almost a year to where all the symptoms had disappeared, and then went

to a doctor to diagnose it, the first thing he would do is have me put him back

on a regular diet to see if it was all in my head.

This has been pure hell on me and I'm normally a very strong person. I can't

sleep, I feel like God has abandoned me, and that I'm poisoning my child. I

never thought I would have to censor my thoughts with this list, and if I can't

get understanding in the last place I have to turn, I might as well leave, too.

Loriann

Wife to Dewight

Mom to , 10 years, Down Syndrome and ?

, 17 months and Strong Willed

[Guest guest]

In a message dated 12/8/00 5:02:46 PM Eastern Standard Time,

hsmyangel@... writes:

<<

This has been pure hell on me and I'm normally a very strong person. I

can't sleep, I feel like God has abandoned me, and that I'm poisoning my

child. I never thought I would have to censor my thoughts with this list,

and if I can't get understanding in the last place I have to turn, I might as

well leave, too. >>

Loriann,

I know it has been hell for you and your family. And I am so very sorry.

I really do feel your anguish!! God has not abandoned you and nor have we.

This WILL end Loriann!! I am sorry you feel judged; I do too sometimes.

Actually all the time!! Which is why I try so very hard NOT to judge!! Hang

tight Loriann!!!! There IS light at the end of the tunnel!!!!!

{{{{{{{{{{{{hugs}}}}}}}}}}}}}

Donna

[Guest guest]

In a message dated 12/9/00 7:24:28 PM Eastern Standard Time, duffey48@...

writes:

<< This has been pure hell on me and I'm normally a very strong person. I

can't sleep, I feel like God has abandoned me, and that I'm poisoning my

child. I never thought I would have to censor my thoughts with this list,

and if I can't get understanding in the last place I have to turn, I might

as

well leave, too. >> >>

Loriann,

I can't imagine how bad things are for YOU to feel abandoned, by God or the

list. You are a strong person. Everyone on this list is, or we wouldn't be

on it trying to help our children. We all try our best to do what is right

for our children. I know even with my girls, I can just explain to one why

they have to do something, and with the other, it takes hand over hand

.....VERY OFTEN!!!!! LOL What works for one doesn't work for all. Hang in

there, God will reward you, you know!

Gail