Re: LDN - Only for recently diagnosed??

[Guest guest]

Frieda,

I had been diagnosed since 1997 when I started LDN just over one year ago. (6 yrs when I began) It has helped me to some degree. Bladder issues are much better. More energy. Less numbness and tingling. I have more stiffness and spacticity, but I think this is due to not being able to move or stretch enough, not progression. (Maybe wishful thinking??) I am better with LDN than without it.

Marcie

[Guest guest]

Thanks Marcia -

I am so happy to hear that it has helped you. From Day 1 I had been

looking for something that would help but I am afraid I missed the

boat on this one. Appreciate your letting me know. :-) Guess there

is no magic bullet, as much as we might like to believe there is.

Many thanks for your kind response! I know from what I have read that

there are many that have indeed improved using LDN. That is such

great news in itself.

Frieda :-)

Frieda,

I had been diagnosed since 1997 when I started LDN just over one year

ago. (6 yrs when I began) It has helped me to some degree. Bladder

issues are much better. More energy. Less numbness and tingling. I

have more stiffness and spacticity, but I think this is due to not

being able to move or stretch enough, not progression. (Maybe

wishful thinking??) I am better with LDN than without it.

Marcie

[Guest guest]

hi frieda

they are probably in old posts because people have said this stuuf. i have had ms 13 years and am now chronic secondary progressive. yes ldn has been a great thing in my life. i too wish i had known about it earlier. i've only been on it since 5/11 but i get better everyday and am so glad for ldn. just give it a try. it stop progression.

HAPPY NEW YEAR TO ALL ON THIS SITE.

you all have helped me and hope to continue in the coming year. it is new years eve here in australia.

thanks everyone

raelene

-- [low dose naltrexone] LDN - Only for recently diagnosed??

Hi Everyone AND Happy New Year!12 years ago diagnosed - hit me hard but was able to pretty much do for myself personally. Then two years I began to have constant care. I am amazed that I only heard of LDN 2 weeks ago - <shaking head> - BUT am I too late to hope for any improvements?I don't see many that have posted how long they have had MS, to what extent, and if LDN has helped after having MS for several years. Appreciate any comment.Frieda :-)

[Guest guest]

I was diagnosed Chronic Progressive way back in 1989 and was Chronic Progressive

until I started taking 4.5mg of LDN and have had great results at halting my MS

progression dead in its tracks for 1 1/2 years on LDN. Never took the CRAB's or

Novantrone. That may have played a little bit in my favor too but there have

been many who have taken the CRAB poisons long time and suceeded halting their

MS progression on LDN. I was one of the lucky 2/3 of people to see symptom

improvement. Not everyone gets symptom improvement. The main thing is that LDN

can halt MS progression UNLESS you have been misdiagnosed and actually have lyme

disease instead. I've seen approximately 7 people go on LDN and continue to

have progression(disease worsening-new symptoms) and they were using a reliable

compounding pharmacy and they've all found Lyme Literate doctors(which is very

important) and have all tested positive for Lyme. Lyme can induce MS-like

symptoms and lesions on MRI. A boy I know who was misdiagnosed with MS at age

10 but really had Lyme, this boy was so bad he had ALS-like symptoms. At age 20

he's now walking with a walker after starting on treatment for Lyme a year ago.

This boy lost 9 years of his life due to a misdiagnosis.

Note: One can experience relapses of old symptoms while on LDN. This is not

considered progression. LDN cannot repair damage caused by old lesions. Even

neurologists do not consider recurrences of old symptoms as disease progression.

Disease progression has to be NEW never experienced before symptoms.

Give LDN a good 1 year trial.

[Guest guest]

Hi (Marcie, Rayelene, ) -

Thank you so much for this info! I was never told what kind of MS

(if that is what it is) that I have. However, the symptoms were

pretty stable until this past 2-3 years. No new symptoms, except for

IBS, which I hope will bode in my favor. Fatigue and increased

weakness in hands and legs the past year. Fortunately, I also have

not participated in the drugs - my neurologist was afraid of the side

effects for me.

I was checked for Lyme disease several years ago and was told that I

didn't have it BUT I don't know how savvy the dr was on this. I do

know that there are many things that can cause MS-like disabilities,

including aspertaine sweetner.

I only have a MD at the present time and I think he will prescribe

LDN for me. I have all the information to give him. I am wondering

though if that is enough and maybe I should find someone (or call Dr.

Bahari). I know he is very expensive, and of course, insurance nor

medicare would cover it.

Appreciate the encouraging words and when I get on it, I will stick

with it as long as necessary. I guess start out with 4.5?

Frieda :-)

I was diagnosed Chronic Progressive way back in 1989 and was Chronic

Progressive

until I started taking 4.5mg of LDN and have had great results at

halting my MS

progression dead in its tracks for 1 1/2 years on LDN. Never took the

CRAB's or

Novantrone. That may have played a little bit in my favor too but

there have

been many who have taken the CRAB poisons long time and suceeded

halting their

MS progression on LDN. I was one of the lucky 2/3 of people to see

symptom

improvement. Not everyone gets symptom improvement. The main thing is

that LDN

can halt MS progression UNLESS you have been misdiagnosed and

actually have lyme

disease instead. I've seen approximately 7 people go on LDN and

continue to

have progression(disease worsening-new symptoms) and they were using

a reliable

compounding pharmacy and they've all found Lyme Literate doctors

(which is very

important) and have all tested positive for Lyme. Lyme can induce MS-

like

symptoms and lesions on MRI. A boy I know who was misdiagnosed with

MS at age

10 but really had Lyme, this boy was so bad he had ALS-like symptoms.

At age 20

he's now walking with a walker after starting on treatment for Lyme a

year ago.

This boy lost 9 years of his life due to a misdiagnosis.

Note: One can experience relapses of old symptoms while on LDN. This

is not

considered progression. LDN cannot repair damage caused by old

lesions. Even

neurologists do not consider recurrences of old symptoms as disease

progression.

Disease progression has to be NEW never experienced before symptoms.

Give LDN a good 1 year trial.

[Guest guest]

I started with 4.5mg but you may want to start with 3mg for a month and then

increase to 4.5mg the next month. Discuss this option with your doctor. And do

use one of the reliable compounding pharmacies from teLDN homepage. Dr. Bihari

sends his patients to Irmat in NY. If you are not allergic to Avicel(filler)

Skip's Pharmacy in Florida is good. I'm allergic to Avicel(nausea, headache and

near vomiting). The best fillers are Lactose, Acidophilus(Assid-off-a-lus), and

Avicel. Calcium Carbonate has proven a bit faulty at times causing LDN to

become sustained/slow release rendering the LDN worthless in your system so stay

clear of its use. Corn starch tends to upset many people's stomachs.

[Guest guest]

Hi Frieda,

I was diagnosed only 3 1/2 yrs ago but am sure had it for atleast the

past 20 years. The first year of dx; I was OK after one round of

steroids and went on copaxone. After 1 year, started to use a cane

everyday and had one more round of steroids (which I did not finish

because of terrible side affects). It did not help one bit and I will

never take steroids again. I now am rapidly loosing bone mass which I

attribute to the steroids (Im 45 y.o.). After copaxone for a year;

changed to betaseron for 8mos. but only worsened and could not take the

site reactions or the flu like symptoms. Just went off every CRAB drug

1 year ago and have been taking supplements and herbs. Have worsened

quite a bit and am walking with a walker or two canes in the house and

wheelchair outside. Started LDN only 1 mth ago so any improvements are

minimal and feel it is too soon to give it a fair shake. Am on 3mg but

will up it to 4.5mg within the next week. Dont give up Frieda; it will

not hurt to try LDN and give it a chance to do its thing; which is

quite different for everyone. Really hope it works miracles for you

Frieda....we all need one!

God Bless you and bring you better health in the New Year.

Kathy

On 30-Dec-04, at 8:22 PM, FMV97048@... wrote:

>

> Hi Everyone AND Happy New Year!

>

> 12 years ago diagnosed - hit me hard but was able to pretty much do

> for myself personally.  Then two years I began to have constant

> care.  I am amazed that I only heard of LDN 2 weeks ago - <shaking

> head> - BUT am I too late to hope for any improvements?

>

> I don't see many that have posted how long they have had MS, to what

> extent, and if LDN has helped after having MS for several years. 

> Appreciate any comment.

>

> Frieda :-)

>

>

>

>

>

>

>

[Guest guest]

hi frieda

i started on 3mg for and month and gradually have just reached 4.5mg. wanted to make sure i could tolerate it. i could i am doing well right now. yes the aspartine in pepsi max, which i drink all the time, is apparently bad. i don't care much i was diagnosed with mri so i know it's not that. does it make it worse? i don't know. my family drink it they are ok. i just gave my gp info i printed of the net plus lots of testimonials from all the good people here and took them to him. he said why not it is a harmless drug and if i want to try i should. i think he is a little skeptical but i will see him soon and he will be suprised.

hope you get on well, keep looking till you find someone to give t to you. mine will but australia is a bit of a long way....lol.

good luck

raelene

-- [low dose naltrexone] Re: LDN - Only for recently diagnosed??

Hi (Marcie, Rayelene, ) -Thank you so much for this info! I was never told what kind of MS (if that is what it is) that I have. However, the symptoms were pretty stable until this past 2-3 years. No new symptoms, except for IBS, which I hope will bode in my favor. Fatigue and increased weakness in hands and legs the past year. Fortunately, I also have not participated in the drugs - my neurologist was afraid of the side effects for me.I was checked for Lyme disease several years ago and was told that I didn't have it BUT I don't know how savvy the dr was on this. I do know that there are many things that can cause MS-like disabilities, including aspertaine sweetner.I only have a MD at the present time and I think he will prescribe LDN for me. I have all the information to give him. I am wondering though if that is enough and maybe I should find someone (or call Dr. Bahari). I know he is very expensive, and of course, insurance nor medicare would cover it.Appreciate the encouraging words and when I get on it, I will stick with it as long as necessary. I guess start out with 4.5?Frieda :-) I was diagnosed Chronic Progressive way back in 1989 and was Chronic Progressiveuntil I started taking 4.5mg of LDN and have had great results at halting my MSprogression dead in its tracks for 1 1/2 years on LDN. Never took the CRAB's orNovantrone. That may have played a little bit in my favor too but there havebeen many who have taken the CRAB poisons long time and suceeded halting theirMS progression on LDN. I was one of the lucky 2/3 of people to see symptomimprovement. Not everyone gets symptom improvement. The main thing is that LDNcan halt MS progression UNLESS you have been misdiagnosed and actually have lymedisease instead. I've seen approximately 7 people go on LDN and continue tohave progression(disease worsening-new symptoms) and they were using a reliablecompounding pharmacy and they've all found Lyme Literate doctors(which is veryimportant) and have all tested positive for Lyme. Lyme can induce MS-likesymptoms and lesions on MRI. A boy I know who was misdiagnosed with MS at age10 but really had Lyme, this boy was so bad he had ALS-like symptoms. At age 20he's now walking with a walker after starting on treatment for Lyme a year ago.This boy lost 9 years of his life due to a misdiagnosis.Note: One can experience relapses of old symptoms while on LDN. This is notconsidered progression. LDN cannot repair damage caused by old lesions. Evenneurologists do not consider recurrences of old symptoms as disease progression.Disease progression has to be NEW never experienced before symptoms.Give LDN a good 1 year trial.

[Guest guest]

Hi -

I have copied this so that I can call the pharmacy that I checked

with in the Seattle area. They said they filled these all the time

BUT I want to make sure we are talking about the same thing. Sure

thank you for this info. I am going over to the LDN site to get the

names of those pharmacies - if I am going to do this, I want it to be

right.

Thanks again, .

Frieda :-)

> I started with 4.5mg but you may want to start with 3mg for a month

and then increase to 4.5mg the next month. Discuss this option with

your doctor. And do use one of the reliable compounding pharmacies

from teLDN homepage. Dr. Bihari sends his patients to Irmat in NY.

If you are not allergic to Avicel(filler) Skip's Pharmacy in Florida

is good. I'm allergic to Avicel(nausea, headache and near

vomiting). The best fillers are Lactose, Acidophilus(Assid-off-a-

lus), and Avicel. Calcium Carbonate has proven a bit faulty at times

causing LDN to become sustained/slow release rendering the LDN

worthless in your system so stay clear of its use. Corn starch tends

to upset many people's stomachs.

>

>

[Guest guest]

Hi Kathy -

I am glad that I didn't go the steroid route or the CRAB drugs - my

neuro thought I would react in the way that you did and thus drag me

down further. I did quite well for about 9 years (diagnosed in '91)

but have not done well in handling stress.

It is good to hear how/when etc. others are doing. MS took me off my

feet pretty quickly and I have been in a wheelchair since '91. Your

kind words are appreciated (and thank you for telling me your story) -

we'll hang in there for sure. I will keep everyone posted on how I

do once I get it...I will be happy for any improvement!

I wish you, and everyone else, a heathy and happy new year. Please

let me know how you are doing and how the increased doseage works out.

Frieda :-)

>

> >

> > Hi Everyone AND Happy New Year!

> >

> > 12 years ago diagnosed - hit me hard but was able to pretty much

do

> > for myself personally.  Then two years I began to have constant

> > care.  I am amazed that I only heard of LDN 2 weeks ago -

<shaking

> > head> - BUT am I too late to hope for any improvements?

> >

> > I don't see many that have posted how long they have had MS, to

what

> > extent, and if LDN has helped after having MS for several years. 

> > Appreciate any comment.

> >

> > Frieda :-)

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Raeelene -

I am all set with info for my dr (lol - yes, Austrailia is a bit

far). I quit drinking aspartine several years ago. My husband was

thrilled as he has believed for years that it was not a good thing

BUT it tastes so good. :-) I think each person reacts differently to

it. I had one md tell me that she had treated several people that

had MS-like symptoms - she got them off the aspartine and they were

fine. You just never know, I guess.

Ooohhh, I hope your gp has a tremendous surprise when you see him - I

will be rooting for you!

Thanks for the encouragement and kind words. Any improvement would

be a blessing. I will keep everyone posted on how it goes.

Frieda :-)

> hi frieda

>

> i started on 3mg for and month and gradually have just reached

4.5mg. wanted

> to make sure i could tolerate it. i could i am doing well right

now. yes the

> aspartine in pepsi max, which i drink all the time, is apparently

bad. i don

> t care much i was diagnosed with mri so i know it's not that. does

it make

> it worse? i don't know. my family drink it they are ok. i just gave

my gp

> info i printed of the net plus lots of testimonials from all the

good people

> here and took them to him. he said why not it is a harmless drug

and if i

> want to try i should. i think he is a little skeptical but i will

see him

> soon and he will be suprised.

> hope you get on well, keep looking till you find someone to give t

to you.

> mine will but australia is a bit of a long way....lol.

> good luck

>

> raelene

>

> -- [low dose naltrexone] Re: LDN - Only for recently diagnosed??

>

>

> Hi (Marcie, Rayelene, ) -

>

> Thank you so much for this info! I was never told what kind of MS

> (if that is what it is) that I have. However, the symptoms were

> pretty stable until this past 2-3 years. No new symptoms, except

for

> IBS, which I hope will bode in my favor. Fatigue and increased

> weakness in hands and legs the past year. Fortunately, I also have

> not participated in the drugs - my neurologist was afraid of the

side

> effects for me.

>

> I was checked for Lyme disease several years ago and was told that

I

> didn't have it BUT I don't know how savvy the dr was on this. I do

> know that there are many things that can cause MS-like

disabilities,

> including aspertaine sweetner.

>

> I only have a MD at the present time and I think he will prescribe

> LDN for me. I have all the information to give him. I am

wondering

> though if that is enough and maybe I should find someone (or call

Dr.

> Bahari). I know he is very expensive, and of course, insurance nor

> medicare would cover it.

>

> Appreciate the encouraging words and when I get on it, I will stick

> with it as long as necessary. I guess start out with 4.5?

>

> Frieda :-)

>

>

> I was diagnosed Chronic Progressive way back in 1989 and was

Chronic

> Progressive

> until I started taking 4.5mg of LDN and have had great results at

> halting my MS

> progression dead in its tracks for 1 1/2 years on LDN. Never took

the

> CRAB's or

> Novantrone. That may have played a little bit in my favor too but

> there have

> been many who have taken the CRAB poisons long time and suceeded

> halting their

> MS progression on LDN. I was one of the lucky 2/3 of people to see

> symptom

> improvement. Not everyone gets symptom improvement. The main thing

is

> that LDN

> can halt MS progression UNLESS you have been misdiagnosed and

> actually have lyme

> disease instead. I've seen approximately 7 people go on LDN and

> continue to

> have progression(disease worsening-new symptoms) and they were

using

> a reliable

> compounding pharmacy and they've all found Lyme Literate doctors

> (which is very

> important) and have all tested positive for Lyme. Lyme can induce

MS-

> like

> symptoms and lesions on MRI. A boy I know who was misdiagnosed with

> MS at age

> 10 but really had Lyme, this boy was so bad he had ALS-like

symptoms.

> At age 20

> he's now walking with a walker after starting on treatment for Lyme

a

> year ago.

> This boy lost 9 years of his life due to a misdiagnosis.

>

> Note: One can experience relapses of old symptoms while on LDN.

This

> is not

> considered progression. LDN cannot repair damage caused by old

> lesions. Even

> neurologists do not consider recurrences of old symptoms as disease

> progression.

> Disease progression has to be NEW never experienced before symptoms.

>

> Give LDN a good 1 year trial.

>

>

>

>

>

>

>

>

[Guest guest]

Why does diagnosis with an MRI exclude the aspartame as contributing to your problems? I've seen aspartame do terrible things and can't imagine continuing to use it even if you were in excellent health.

A lot of people have visible lesions on MRIs but have no symptoms associated with them. Isn't it worth giving up the aspartame for a couple of months to see if you improve in its absence?

JT

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

hi frieda

i started on 3mg for and month and gradually have just reached 4.5mg. wanted to make sure i could tolerate it. i could i am doing well right now. yes the aspartine in pepsi max, which i drink all the time, is apparently bad. i don't care much i was diagnosed with mri so i know it's not that. does it make it worse? i don't know. my family drink it they are ok.

[Guest guest]

God news here, Thanks Edie. i have een on LDN a little over two months,

hope I have relief in symptoms. i was on Beta for 11 years.

[low dose naltrexone] Re: LDN - Only for recently diagnosed??

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> I was diagnosed Chronic Progressive way back in 1989 and was Chronic

> Progressive until I started taking 4.5mg of LDN and have had great results

> at halting my MS progression dead in its tracks for 1 1/2 years on LDN.

> Never took the CRAB's or Novantrone. That may have played a little bit in

> my favor too but there have been many who have taken the CRAB poisons long

> time and suceeded halting their MS progression on LDN. I was one of the

> lucky 2/3 of people to see symptom improvement. Not everyone gets symptom

> improvement. The main thing is that LDN can halt MS progression UNLESS

> you have been misdiagnosed and actually have lyme disease instead. I've

> seen approximately 7 people go on LDN and continue to have

> progression(disease worsening-new symptoms) and they were using a reliable

> compounding pharmacy and they've all found Lyme Literate doctors(which is

> very important) and have all tested positive for Lyme. Lyme can induce

> MS-like symptoms and lesions on MRI. A boy I know who was misdiagnosed

> with MS at age 10 but really had Lyme, this boy was so bad he had ALS-like

> symptoms. At age 20 he's now walking with a walker after starting on

> treatment for Lyme a year ago. This boy lost 9 years of his life due to a

> misdiagnosis.

>

> Note: One can experience relapses of old symptoms while on LDN. This is

> not considered progression. LDN cannot repair damage caused by old

> lesions. Even neurologists do not consider recurrences of old symptoms as

> disease progression. Disease progression has to be NEW never experienced

> before symptoms.

>

> Give LDN a good 1 year trial.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks bren, I have been wondering about the filler. i don't know what Dr

used. do you???? Edie P.S. I am so depressed about his whole

thing, i am thinking i can go back to beta, even though the side affects are

bad. i have a lot left and i see my neuro in february. i don't think I am

going to tell him about the LDN,,I know hm too well, he would never go along

with it. edie

[low dose naltrexone] Re: LDN - Only for recently diagnosed??

>

>

>

>

>

>

>

>

>

>

>

>

>

> I started with 4.5mg but you may want to start with 3mg for a month and

> then increase to 4.5mg the next month. Discuss this option with your

> doctor. And do use one of the reliable compounding pharmacies from teLDN

> homepage. Dr. Bihari sends his patients to Irmat in NY. If you are not

> allergic to Avicel(filler) Skip's Pharmacy in Florida is good. I'm

> allergic to Avicel(nausea, headache and near vomiting). The best fillers

> are Lactose, Acidophilus(Assid-off-a-lus), and Avicel. Calcium Carbonate

> has proven a bit faulty at times causing LDN to become sustained/slow

> release rendering the LDN worthless in your system so stay clear of its

> use. Corn starch tends to upset many people's stomachs.

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear frieda, dr. started me on 3 mg. i think that is the standard

practice. one of us mentu=ioned maybe we should privately e-mail about LDN

relation shios with our on the phone consutations. i think that is a good

idea. i am going to be searchong for another dc if dr scott doesn;t

continue his work. edie1015@.... edie P.S. I believe bren when

she says someone could be sabotaging this thing . Anyone can read a public

post, so i am giving my e-mail to a lot of you, hooe i get some back. take

care, edie f

[low dose naltrexone] Re: LDN - Only for recently diagnosed??

>

>

> Hi (Marcie, Rayelene, ) -

>

> Thank you so much for this info! I was never told what kind of MS

> (if that is what it is) that I have. However, the symptoms were

> pretty stable until this past 2-3 years. No new symptoms, except for

> IBS, which I hope will bode in my favor. Fatigue and increased

> weakness in hands and legs the past year. Fortunately, I also have

> not participated in the drugs - my neurologist was afraid of the side

> effects for me.

>

> I was checked for Lyme disease several years ago and was told that I

> didn't have it BUT I don't know how savvy the dr was on this. I do

> know that there are many things that can cause MS-like disabilities,

> including aspertaine sweetner.

>

> I only have a MD at the present time and I think he will prescribe

> LDN for me. I have all the information to give him. I am wondering

> though if that is enough and maybe I should find someone (or call Dr.

> Bahari). I know he is very expensive, and of course, insurance nor

> medicare would cover it.

>

> Appreciate the encouraging words and when I get on it, I will stick

> with it as long as necessary. I guess start out with 4.5?

>

> Frieda :-)

>

>

> I was diagnosed Chronic Progressive way back in 1989 and was Chronic

> Progressive

> until I started taking 4.5mg of LDN and have had great results at

> halting my MS

> progression dead in its tracks for 1 1/2 years on LDN. Never took the

> CRAB's or

> Novantrone. That may have played a little bit in my favor too but

> there have

> been many who have taken the CRAB poisons long time and suceeded

> halting their

> MS progression on LDN. I was one of the lucky 2/3 of people to see

> symptom

> improvement. Not everyone gets symptom improvement. The main thing is

> that LDN

> can halt MS progression UNLESS you have been misdiagnosed and

> actually have lyme

> disease instead. I've seen approximately 7 people go on LDN and

> continue to

> have progression(disease worsening-new symptoms) and they were using

> a reliable

> compounding pharmacy and they've all found Lyme Literate doctors

> (which is very

> important) and have all tested positive for Lyme. Lyme can induce MS-

> like

> symptoms and lesions on MRI. A boy I know who was misdiagnosed with

> MS at age

> 10 but really had Lyme, this boy was so bad he had ALS-like symptoms.

> At age 20

> he's now walking with a walker after starting on treatment for Lyme a

> year ago.

> This boy lost 9 years of his life due to a misdiagnosis.

>

> Note: One can experience relapses of old symptoms while on LDN. This

> is not

> considered progression. LDN cannot repair damage caused by old

> lesions. Even

> neurologists do not consider recurrences of old symptoms as disease

> progression.

> Disease progression has to be NEW never experienced before symptoms.

>

> Give LDN a good 1 year trial.

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My two cents worth; if I'm going to 'indulge', I just have the real thing. Be it sugar or butter or whatever! Dr. Weil said once that if there was one thing to give up that is truly bad for our health, it would be margarine. It's man-made. Nothing beneficial for one's health. When aspartame is exposed to heat, supposedly, it changes properties and becomes like formaldehyde. (Or so I heard/read) For me, the key is not to over-do either. For some, neither seems to be detrimental. Once again, the individuality seems to be different from one to the next. Try to be health-conscience, but don't stress over it!!

Marcie

In a message dated 1/2/2005 8:31:40 PM Central Standard Time, jatrac1@... writes:

One of our greatest challenges in our attempts to improve our health is our tendency toward denial... Your position on aspartame reminds me of my own feelings about butter. How can I possibly give up something that adds so much to my pleasure in life... I tell myself I don't use that much of it, I tell myself I'm entitled to something so wonderful. But then I tell myself to stop fooling myself. I KNOW butter is bad for me for a lot of reasons. I KNOW all the excuses I make are simply excuses. By continuing to use something that tastes so good but has so many negative effects on my health I am denying myself at least some opportunity to improve. And butter is basically just an artery clogger and fat builder, and very likely an MS promoter. Aspartame is a poison, no other word is appropriate. You owe it to yourself to find a substitute for your pepsi, which can indeed do a LOT of harm.

JT

[Guest guest]

Thank you Althea! Great site and just what I was hoping for.

Frieda :-)

> Hi Freda,

>

> Look up the web site Remedyfind.com and see what comments are made

by users

> in the LDN section, everyone answers with what dosage, how long

they have

> tried it, what progression they started with and how long they have

had MS.

>

> Aletha

> [low dose naltrexone] LDN - Only for recently diagnosed??

>

>

> >

> >

> > Hi Everyone AND Happy New Year!

> >

> > 12 years ago diagnosed - hit me hard but was able to pretty much

do

> > for myself personally. Then two years I began to have constant

> > care. I am amazed that I only heard of LDN 2 weeks ago - <shaking

> > head> - BUT am I too late to hope for any improvements?

> >

> > I don't see many that have posted how long they have had MS, to

what

> > extent, and if LDN has helped after having MS for several years.

> > Appreciate any comment.

> >

> > Frieda :-)

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Raelene -

Boy, I know what you mean...giving up chocolate was soooo hard for

me. :-) I have a sister-in-law that is hooked on Pepsi...all day. I

do encourage you to think about the trade-off - aspartame might hold

you back from your max improvement. I had this site bookmarked and

for whatever it is worth, thought I would share it:

http://www.holisticmed.com/aspartame/

There is some really good informaton here, so if you are interested,

take a peek. Thanks for the good thoughts. I am hoping my dr.

cooperates and prescribes LDN this week.

Frieda :-)

> > hi frieda

> >

> > i started on 3mg for and month and gradually have just reached

> 4.5mg. wanted

> > to make sure i could tolerate it. i could i am doing well right

> now. yes the

> > aspartine in pepsi max, which i drink all the time, is apparently

> bad. i don

> > t care much i was diagnosed with mri so i know it's not that.

does

> it make

> > it worse? i don't know. my family drink it they are ok. i just

gave

> my gp

> > info i printed of the net plus lots of testimonials from all the

> good people

> > here and took them to him. he said why not it is a harmless drug

> and if i

> > want to try i should. i think he is a little skeptical but i will

> see him

> > soon and he will be suprised.

> > hope you get on well, keep looking till you find someone to give

t

> to you.

> > mine will but australia is a bit of a long way....lol.

> > good luck

> >

> > raelene

> >

> > -- [low dose naltrexone] Re: LDN - Only for recently

diagnosed??

> >

> >

> > Hi (Marcie, Rayelene, ) -

> >

> > Thank you so much for this info! I was never told what kind of

MS

> > (if that is what it is) that I have. However, the symptoms were

> > pretty stable until this past 2-3 years. No new symptoms, except

> for

> > IBS, which I hope will bode in my favor. Fatigue and increased

> > weakness in hands and legs the past year. Fortunately, I also

have

> > not participated in the drugs - my neurologist was afraid of the

> side

> > effects for me.

> >

> > I was checked for Lyme disease several years ago and was told

that

> I

> > didn't have it BUT I don't know how savvy the dr was on this. I

do

> > know that there are many things that can cause MS-like

> disabilities,

> > including aspertaine sweetner.

> >

> > I only have a MD at the present time and I think he will

prescribe

> > LDN for me. I have all the information to give him. I am

> wondering

> > though if that is enough and maybe I should find someone (or call

> Dr.

> > Bahari). I know he is very expensive, and of course, insurance

nor

> > medicare would cover it.

> >

> > Appreciate the encouraging words and when I get on it, I will

stick

> > with it as long as necessary. I guess start out with 4.5?

> >

> > Frieda :-)

> >

> >

> > I was diagnosed Chronic Progressive way back in 1989 and was

> Chronic

> > Progressive

> > until I started taking 4.5mg of LDN and have had great results at

> > halting my MS

> > progression dead in its tracks for 1 1/2 years on LDN. Never took

> the

> > CRAB's or

> > Novantrone. That may have played a little bit in my favor too but

> > there have

> > been many who have taken the CRAB poisons long time and suceeded

> > halting their

> > MS progression on LDN. I was one of the lucky 2/3 of people to

see

> > symptom

> > improvement. Not everyone gets symptom improvement. The main

thing

> is

> > that LDN

> > can halt MS progression UNLESS you have been misdiagnosed and

> > actually have lyme

> > disease instead. I've seen approximately 7 people go on LDN and

> > continue to

> > have progression(disease worsening-new symptoms) and they were

> using

> > a reliable

> > compounding pharmacy and they've all found Lyme Literate doctors

> > (which is very

> > important) and have all tested positive for Lyme. Lyme can induce

> MS-

> > like

> > symptoms and lesions on MRI. A boy I know who was misdiagnosed

with

> > MS at age

> > 10 but really had Lyme, this boy was so bad he had ALS-like

> symptoms.

> > At age 20

> > he's now walking with a walker after starting on treatment for

Lyme

> a

> > year ago.

> > This boy lost 9 years of his life due to a misdiagnosis.

> >

> > Note: One can experience relapses of old symptoms while on LDN.

> This

> > is not

> > considered progression. LDN cannot repair damage caused by old

> > lesions. Even

> > neurologists do not consider recurrences of old symptoms as

disease

> > progression.

> > Disease progression has to be NEW never experienced before

symptoms.

> >

> > Give LDN a good 1 year trial.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

-- [low dose naltrexone] Re: LDN - Only for recently diagnosed??> > > > > > Hi (Marcie, Rayelene, ) -> > > > Thank you so much for this info! I was never told what kind of MS > > (if that is what it is) that I have. However, the symptoms were > > pretty stable until this past 2-3 years. No new symptoms, except > for > > IBS, which I hope will bode in my favor. Fatigue and increased > > weakness in hands and legs the past year. Fortunately, I also have > > not participated in the drugs - my neurologist was afraid of the > side > > effects for me.> > > > I was checked for Lyme disease several years ago and was told that > I > > didn't have it BUT I don't know how savvy the dr was on this. I do > > know that there are many things that can cause MS-like > disabilities, > > including aspertaine sweetner.> > > > I only have a MD at the present time and I think he will prescribe > > LDN for me. I have all the information to give him. I am > wondering > > though if that is enough and maybe I should find someone (or call > Dr. > > Bahari). I know he is very expensive, and of course, insurance nor > > medicare would cover it.> > > > Appreciate the encouraging words and when I get on it, I will stick > > with it as long as necessary. I guess start out with 4.5?> > > > Frieda :-) > > > > > > I was diagnosed Chronic Progressive way back in 1989 and was > Chronic > > Progressive> > until I started taking 4.5mg of LDN and have had great results at > > halting my MS> > progression dead in its tracks for 1 1/2 years on LDN. Never took > the > > CRAB's or> > Novantrone. That may have played a little bit in my favor too but > > there have> > been many who have taken the CRAB poisons long time and suceeded > > halting their> > MS progression on LDN. I was one of the lucky 2/3 of people to see > > symptom> > improvement. Not everyone gets symptom improvement. The main thing > is > > that LDN> > can halt MS progression UNLESS you have been misdiagnosed and > > actually have lyme> > disease instead. I've seen approximately 7 people go on LDN and > > continue to> > have progression(disease worsening-new symptoms) and they were > using > > a reliable> > compounding pharmacy and they've all found Lyme Literate doctors> > (which is very> > important) and have all tested positive for Lyme. Lyme can induce > MS-> > like> > symptoms and lesions on MRI. A boy I know who was misdiagnosed with > > MS at age> > 10 but really had Lyme, this boy was so bad he had ALS-like > symptoms. > > At age 20> > he's now walking with a walker after starting on treatment for Lyme > a > > year ago.> > This boy lost 9 years of his life due to a misdiagnosis.> > > > Note: One can experience relapses of old symptoms while on LDN. > This > > is not> > considered progression. LDN cannot repair damage caused by old > > lesions. Even> > neurologists do not consider recurrences of old symptoms as disease > > progression.> > Disease progression has to be NEW never experienced before symptoms.> > > > Give LDN a good 1 year trial.> > > > > > > > > > > > > > > >

[Guest guest]

One of our greatest challenges in our attempts to improve our health is our tendency toward denial... Your position on aspartame reminds me of my own feelings about butter. How can I possibly give up something that adds so much to my pleasure in life... I tell myself I don't use that much of it, I tell myself I'm entitled to something so wonderful. But then I tell myself to stop fooling myself. I KNOW butter is bad for me for a lot of reasons. I KNOW all the excuses I make are simply excuses. By continuing to use something that tastes so good but has so many negative effects on my health I am denying myself at least some opportunity to improve. And butter is basically just an artery clogger and fat builder, and very likely an MS promoter. Aspartame is a poison, no other word is appropriate. You owe it to yourself to find a substitute for your pepsi, which can indeed do a LOT of harm.

JT

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

> > > > > > > > > > > >

[Guest guest]

i am going to try. might take some time, but i'm sure i can do it. is all the other diet drinks the same? i'm not real sure. i have only ever heard how bad pepsi max can be.

-- Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

One of our greatest challenges in our attempts to improve our health is our tendency toward denial... Your position on aspartame reminds me of my own feelings about butter. How can I possibly give up something that adds so much to my pleasure in life... I tell myself I don't use that much of it, I tell myself I'm entitled to something so wonderful. But then I tell myself to stop fooling myself. I KNOW butter is bad for me for a lot of reasons. I KNOW all the excuses I make are simply excuses. By continuing to use something that tastes so good but has so many negative effects on my health I am denying myself at least some opportunity to improve. And butter is basically just an artery clogger and fat builder, and very likely an MS promoter. Aspartame is a poison, no other word is appropriate. You owe it to yourself to find a substitute for your pepsi, which can indeed do a LOT of harm.

JT

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

> > > > > > > > > > > >

[Guest guest]

All diet sodas are made with either aspartame (Nutra Sweet) or Splenda. Both are really very bad for you. As bad as sugar is for you you are still better off drinking the regular soda than the diet. Unless you are diabetic, then regular sodas are also not an option.

I'm getting to where I really like plain old water.

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

> > > > > > > > > > > >

[Guest guest]

i'm just looking at the site frieda sent me and i think i like water better as well. i will be looking into this more.

-- Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

All diet sodas are made with either aspartame (Nutra Sweet) or Splenda. Both are really very bad for you. As bad as sugar is for you you are still better off drinking the regular soda than the diet. Unless you are diabetic, then regular sodas are also not an option.

I'm getting to where I really like plain old water.

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

> > > > > > > > > > > >

[Guest guest]

There are a lot of teas that are great, both hot and iced. Herbal and caffeine free, some that are kind of fruity flavored. There are alternatives, but like the rest of our diet overhauls you have to work at it.

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

thanks frieda,

i will look into it. i don't eat chocolate its too sweet for me. no diet drink are good are they, i would change if it made a difference. the ldn has been great for me so i'm pretty sure the pepsi thing can't do too much harm but i will check up on it. you are kind to give me the link, i'm very grateful. still don't know how i would be giving it up maybe i could cut it down at first. we will see. thank you so much

raelene....fingers crossed on the ldn.

> > > > > > > > > > > >

[Guest guest]

Exactly. I won't touch margarine, but I do still have butter. I sure try to reduce the amount though.

Re: [low dose naltrexone] Re: LDN - Only for recently diagnosed??

My two cents worth; if I'm going to 'indulge', I just have the real thing. Be it sugar or butter or whatever! Dr. Weil said once that if there was one thing to give up that is truly bad for our health, it would be margarine. It's man-made. Nothing beneficial for one's health. When aspartame is exposed to heat, supposedly, it changes properties and becomes like formaldehyde. (Or so I heard/read) For me, the key is not to over-do either. For some, neither seems to be detrimental. Once again, the individuality seems to be different from one to the next. Try to be health-conscience, but don't stress over it!! Marcie In a message dated 1/2/2005 8:31:40 PM Central Standard Time, jatrac1@... writes:

One of our greatest challenges in our attempts to improve our health is our tendency toward denial... Your position on aspartame reminds me of my own feelings about butter. How can I possibly give up something that adds so much to my pleasure in life... I tell myself I don't use that much of it, I tell myself I'm entitled to something so wonderful. But then I tell myself to stop fooling myself. I KNOW butter is bad for me for a lot of reasons. I KNOW all the excuses I make are simply excuses. By continuing to use something that tastes so good but has so many negative effects on my health I am denying myself at least some opportunity to improve. And butter is basically just an artery clogger and fat builder, and very likely an MS promoter. Aspartame is a poison, no other word is appropriate. You owe it to yourself to find a substitute for your pepsi, which can indeed do a LOT of harm. JT