Re: Hi, new here but not to MS, want your opinion please

December 29, 2004

>

> Hello,

>

> I was recommended to these boards by Kim42, whose teenaged son has

> MS.

>

> He is on LDN. I am not a teen, I'm 51 years old and diagnosed with

> MS since 1992, I was 38. I suffer from extreme muscle pain, spasm

> and now soreness. It varies in location but mostly chest, now rib

> and torso area. Sleeping is difficult as staying still makes it

> worse.

>

> I take Baclofen, however the dosage must constantly be increased. I

> stopped taking it for a while and my vocal box tightens up so much

> that speaking is painful. I have had vocal training and it really

> did not help. More Baclofen did. Only thing, it's toxic to the

> liver, and I've been on and off of it for 12 years.

>

> My question is, will LDN help muscle problems such as mine? I do

> take Copaxone shots for over two and a half years.

>

> Thanks,

================

you're describing the same muscle squeezing torture I was having for years

before LDN. My entire torso was the worst area. My breathing was very shallow

due to my inability to get any lung expansion due to the extreme squeezing of

muscles(and I've never smoked). Mine was neuropathic. Sounds as though your's

might be also. LDN reduced this pain approx 75% over a 6 month period. I got a

50% reduction overnight on LDN, my first dose. I started out on 4.5mg and use

lactose filler. I've been on LDN 1 and 1/2 years with no sign of

progression/worsening of my 14 straight year Chronic Progressive MS. I was one

of the lucky two-thirds who actually saw symptom improvement. The squeezing

pain reducing was the first symptom to die down, then fatigue reduced and then

bladder improved, etc... Remember, not everyone will see symptom improvement on

LDN but you should get a halt in your MS progression. I never used any of the

CRAB's or Novantrone. I use Cantrell Drug Company in Little Rock, Arkansas to

get my LDN compounded 1-877-666-5222. Wagner is my pharmacist. 30

capsules cost $45.00. The reason the higher cost is she only mixes a few LDN

scripts but got the LDN website address from me to read exactly how the

medicine needed to be compounded and I have been 100% satisfied. Irmat Pharmacy

in NY is good(Dr. Bihari uses Irmat) and Skip's pharmacy in Florida is good

also.

Give LDN a try.

December 29, 2004

, who knows for sure.

The studies just aren't there to provide solid data. From what I have

read from the people on this board, LDN is more successful at halting

the progress of MS, but not for everyone.

Some people, perhaps 5-30% see some symptom improvement. Some

dramatic, like being able to walk again, some just easing of tingling,

others none, or not enough for them to be able to tell.

But, with that said, a lot of people have benefited from LDN and while

no one can predict how it will effect you, I think it is definitely

worth a try. You really have nothing to lose. You also don't have to

stop Copaxone, as they aren't contraindicated.

My wife has been living normally for the last two weeks (not really

long enough to be significant) on LDN. Here is her regimen:

Started at 3mg for 10 days. Took 2 days off and started 4.5mg

yesterday. Taken between 10-11pm. She isn't watching her diet or

exercising regularly.

Some people say take a day off here and there and others say not to.

Most agree that 4.5 is the ideal dose, however some are on much less

and a few are on 6mg. Usually people try to work up to 4.5 from 3.

Good Luck.

.......

On Wed, 29 Dec 2004 16:10:03 -0000, aaa7353 <aaa7353@...> wrote:

>