Re: MS: Aricept bad side affect??? Predisone question ...

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In a message dated 12/28/2004 10:27:07 PM Central Standard Time, jatrac1@... writes:

Thanks for the backup, CJ. The doctors present steroids therapy as necessary and benign. Anyone considering it should do a lot of research first. To be fair, some people handle it well. Many do not...

Hi all,

My experience with Deacdron is awful. I was dx in 1988. I know now that I got this monster around the age of 13. I researched this disease for over 3 years and so many of my questions got answered about what I had and never thought that anybody would ever believe what I have. Getting dx with MS was a blessing for me. My crisis point came in March of 1990 and it was pure hell. I could not walk when I went into the MS Center in Mpls. I was given 7 days of Decadron and let me tell you it was AWFUL. Now you have really thought that this is okay. I' m afraid not..... I had it 11 times until the last one in December (before Christmas) 2001. I felt that I had no other choice. Back in 1989 there was not anything else

As far as the side affects was concerned I just never thought that it would happen to me. I really feel that all of the 22 of us in the Center at the time thought they were doing the best they could. I think every side affects that it has we tend to believe that it is the right thing to do. At the time, yes. Now knowing better I felt I had no other choice but to try the LDN this time. And what a blessing it has been for me. NO MORE steroids.

I am so much better then I was before. In many ways.

I just think the world should know what we know. How good it really is. The drug companies would really be pissed off. Good!!!!!!!!!!!!!!!

You have a choice. Use it well.

Love and hugs,

CJ

[Guest guest]

hi

i soooo agree with you. i have had some much iv steroids it messed me up heaps. i have been doing the same thing for the last 13 years the last and final in oct 2004. i've found ldn getting my head back and am never doing the steroid thing EVER again. it used to work in the early days but then they just keep giving longer treatments and all kinds of stuff start happening. if you can avoid it please do.

raelene

-- Re: [low dose naltrexone] MS: Aricept bad side affect??? Predisone question ...

In a message dated 12/28/2004 10:27:07 PM Central Standard Time, jatrac1@... writes:

Thanks for the backup, CJ. The doctors present steroids therapy as necessary and benign. Anyone considering it should do a lot of research first. To be fair, some people handle it well. Many do not...Hi all,My experience with Deacdron is awful. I was dx in 1988. I know now that I got this monster around the age of 13. I researched this disease for over 3 years and so many of my questions got answered about what I had and never thought that anybody would ever believe what I have. Getting dx with MS was a blessing for me. My crisis point came in March of 1990 and it was pure hell. I could not walk when I went into the MS Center in Mpls. I was given 7 days of Decadron and let me tell you it was AWFUL. Now you have really thought that this is okay. I' m afraid not..... I had it 11 times until the last one in December (before Christmas) 2001. I felt that I had no other choice. Back in 1989 there was not anything elseAs far as the side affects was concerned I just never thought that it would happen to me. I really feel that all of the 22 of us in the Center at the time thought they were doing the best they could. I think every side affects that it has we tend to believe that it is the right thing to do. At the time, yes. Now knowing better I felt I had no other choice but to try the LDN this time. And what a blessing it has been for me. NO MORE steroids.I am so much better then I was before. In many ways.I just think the world should know what we know. How good it really is. The drug companies would really be pissed off. Good!!!!!!!!!!!!!!!You have a choice. Use it well.Love and hugs,CJ