My wife just started LDN, have a few questions

December 17, 2004

My wife has started LDN. She has MS, although I am not sure which type.

She has taken 3mg for 2 days now. She feels great in morning and

early afternoon. She has lots of energy and is very active, much more

so than before the LDN.

Come around 5pm she declines quickly and usually has to hit the bed

around 7. She has some shaking of her arms and other misc MS

symptoms.

We decided to bump up to 4.5 mg to see if that might help. We will

see how she does on Friday.

Has anyone seen this type of reaction? Where the first part of the

day is great and the second half isn't? I know the literature says it

won't help. but perhaps another dose around noon would help.

Her doctor doesn't mind her trying the LDN, but he also wants her on

Avonex, and I don't blame him. He had another patient that wanted to

try LDN and did. Kept putting off Avonex. Felt terrific for a month

and then got hit with his worst relapse and from then on he was

confined to a wheel chair.

I think there is something to LDN, but it hasn't quite been figured

out. We will experiment gently with her dosing and try anything we

can think of to maximize it's effect. Also, one more question, has

anyone tried more than 4.5? It seems some people react much

differently to the dose.

Also, I have seen some people mention other suppliments. Would

DL-Phenylalanine potentially help? She isn't taking any suppliments.

....Thanks...

.......

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