RE: sammy jo's plus LDN news making progress in NH

[Guest guest]

Frieda,

Hope is all there is sometimes and you are far from silly. I am having great help from LDN. I am not wheelchair bound instead just started using a scooter May 21st 2004. In 2001 (I was 45 years old) the Neuro said you have "inflammation of the spinal cord" "You will never walk again, and will spend the rest of your life in a chair. Get a wheel chair use it in doors and out doors." The rehab people wanted me to plan on the day I would get worse. I changed companies to three separate companies to get what I wanted for rehab equipment not always what they recommended as they the mobility companies have no real medical training and are not federally required to and have their own economic concerns. Due to my sudden need for mobility producds and my confusion on where to turn I am now working with a company called "Affordable Mobility" and writing a detailed account on where, what and how to purchase mobility equipment in the USA. Maybe many of you can email me stories of who you purchased equipment from and how you located them. My best advice has come from other MS friends on where to get rehab equipment.

Back to LDN: I am walking around the house with a walker. I use the scooter for distances only. With the LDN I plan to exercise more: presently I stretch once daily and do polities exercises. I plan to start using the stationary bike this week. I have a narrower walker I plan to get it into the house as we have a floor plan where I can walk around the house I plan to do that this winter. As I feel better I plan to have my husband take me to the store or Mall for walking with the walker and in the spring I plan to walk up and down our long paved driveway. I also plan to garden this spring in some fashion. I have had bladder control since day one on LDN where there was none. Bowels are more normal. I am walking more and sitting up during the day for longer and longer periods of time. I think more clearly and type better. This year I wrote out, addressed and mailed Christmas cards. For the first time in years. For me LDN,it is the miracle treatment we were praying for. I praying it is for you also. Best wishes always Joanne L.

PS thanks, for Sammy Jo's Link isn't she great!

-----Original Message----- From: FMV97048@... [mailto:FMV97048@...]Sent: Monday, December 27, 2004 1:04 AMlow dose naltrexone Subject: [low dose naltrexone] sammy jo'sHere is sammy jo's link -http://www.ldners.org/mission.htmI just found out about LDN last week. I have been in a wheelchair since 1991. Major symptom are fatigue and having to have someone around the clock to help with mobility. I am hoping my dr. will prescribe LDN when I go in on the 6th. This is the first time I have had much hope...what are the chances? Silly I know - to even ask. It is nice to hear that there are many that are having such a great response to this drug.Continued good luck to everyone.Frieda

[Guest guest]

Hello Jo Anne and others,

I was wondering if you or anyone else noticed a worsening of fatigue or pain after starting naltrexone before improving?

I have not been diagnosed with ms but have a very extreme case of fibromyalgia and chronic immune dysfunction.

I've had some bad neuropathy attacks-can't afford to go to a neurologist-and was worried it could be the beginning of ms. I had tried naltrexone before this for my FM for about a week but got so much more fatigued and couldn't handle it.

I decided to try it again due to not sleeping at all due to the neuropathy and miraculously slept and had no neuropathy for the past few days but feel as if I have a horrid hangover and have much worse fatigue. I'm just wondering if this is a side effect that will clear up-the hungover and worsening of fatigue.

Thanks for any help.

Gena

[Guest guest]

Yes it does clear up, i had same problems mine cleared up in less than two months. good luck, edie

Re: [low dose naltrexone] sammy jo's plus LDN news making progress in NH

Hello Jo Anne and others,I was wondering if you or anyone else noticed a worsening of fatigue or pain after starting naltrexone before improving?I have not been diagnosed with ms but have a very extreme case of fibromyalgia and chronic immune dysfunction.I've had some bad neuropathy attacks-can't afford to go to a neurologist-and was worried it could be the beginning of ms. I had tried naltrexone before this for my FM for about a week but got so much more fatigued and couldn't handle it.I decided to try it again due to not sleeping at all due to the neuropathy and miraculously slept and had no neuropathy for the past few days but feel as if I have a horrid hangover and have much worse fatigue. I'm just wondering if this is a side effect that will clear up-the hungover and worsening of fatigue.Thanks for any help.Gena

[Guest guest]

> Be sure to go to http://www.ldners.org This is a very up beat

place about a fellow LDNer with happy results. God bless and best of

luck Joanne L.

Thanks Joanne!

Telling others about LDN is half the joy of my recovery, to know that

others won't have to go thru what I did over 10 years of nasty shots

and IVs that didn't help me. My survey only reported 75% symptom

improvement and 50% progression stoppage, but that is still better

than any of the CRAB drugs. For those of you who are not experiencing

an immediate benefit from LDN, remember it can take up to 9 months to

kick in. The other thing is that the first clinical trial has just

launched in Germany, with more to follow. Once we have the sientists

looking into this, we will end up with improved LDN treatment

protocols, or even antioxidant cocktails that enhance the effect of

LDN.

SammyJo