Re: improvements for secondary progressives?

[Guest guest]

Hi ,

I am also concerned about the response from NHS GPs and Consultants

but I am trying LDN anyway - primarily because there appears to be

nothing available to me other than steroids and splints! I am

Chronic Progressive but mostly Benign.

So far (2 weeks on 3mg) I have had an increase in stiffness, vivid

dreams (not unpleasant), improved bladder control etc. but most

significantly, after the first three or four days, an exponential

increase in energy levels and strength. Whether as a result of

improved energy or something else, I have a better outlook and a

more positive attitude.

I still have an 'awkward gait' and still need two crutches most of

the time. In my case I feel I have less to lose because there was

nothing there anyway! However, I am worried that my consultant (who

has already stated that she will not waste her time talking about

LDN and Aimspro) will not respond if I have any further crises.

I suppose I am pinning a lot of hope on LDN but why not? I have

applied to be included in Aimspro trials and have supported attempts

to get trials for LDN. There really needs to be some reliable

proofs to support all the anecdotal evidence - but when proofs take

years (even if funded) and the disease is still progressing ... no

contest.

Iain

> Are there any people on this list with secondary progressive m.s.

who have

> seen definate improvements whilst taking l.d.n.? It seems that I

am boderline

> secondary progressive and have been offered a choice of disease

modifying

> drugs by the NHS (in the UK). Ive been waiting for years for the

scheme to be set

> up and during that time Ive progressed. If I do not accept the

offer now I

> doubt if I will have the chance again as the funding may not be

available or

> the neuros may think that the drugs will not benefit me any

longer. Ideally I

> would prefer to try ldn but need to be sure that if I turn down

the disease

> modifying drugs for ldn there is a chance that it will work for

me as a

> secondary progressive. Ive read lots of e.mails from people

reporting improvements

> but it is not clear what stage in their disease process they are

at. I know

> everyone will react differently to treatment. But If any one with

secondary

> progressive m.s. has improved or at least stabalised Id be happy

to hear from

> them either on the list or e.mail me personally.

>

> Kind regards

>

>

[Guest guest]

Dear Raelene,

I got you and Roxanne mixed up so the letter I sent her was for you. Sorry girls I will learn.

Penny

[low dose naltrexone] improvements for secondary progressives?

Are there any people on this list with secondary progressive m.s. who have seen definate improvements whilst taking l.d.n.? It seems that I am boderline secondary progressive and have been offered a choice of disease modifying drugs by the NHS (in the UK). Ive been waiting for years for the scheme to be set up and during that time Ive progressed. If I do not accept the offer now I doubt if I will have the chance again as the funding may not be available or the neuros may think that the drugs will not benefit me any longer. Ideally I would prefer to try ldn but need to be sure that if I turn down the disease modifying drugs for ldn there is a chance that it will work for me as a secondary progressive. Ive read lots of e.mails from people reporting improvements but it is not clear what stage in their disease process they are at. I know everyone will react differently to treatment. But If any one with secondary progressive m.s. has improved or at least stabalised Id be happy to hear from them either on the list or e.mail me personally.

Kind regards

[Guest guest]

> Johanne,

> I have a question about the colloidal silver.I talked to someone who

has a

> friend taking it and she said her friend's skin has a purplish-blue

color to

> it!Have you noticed this?Maybe he takes too much or a poor quality of

> colloidal silver.

If your friend has blue skin it is because the water he used wasn't pure.

The skin will turn blue when there are metals or other things in the

water used to make CS.

When making CS only Distilled water must be used and .999% grade

silver. This way there is no way that you will get blue skin.

Johanne F