First time ldn user

[Guest guest]

Great news, manchester, I am very happy for you, hope i am just as lucky

roxanne

Re: [low dose naltrexone] first time ldn user

> Delilah,

>

> Of course this has to be your decision and I can share in your story. I

> have

> had MS for 27 years and I have tried everything. For many years, I was on

> nothing and felt pretty good. Then I had an MRI in 2003 and the left side

> of

> my brain was covered with small plaques. I panicked and let the

> neurologist

> talk me into using Avonex. I gave myself a shot every week for a year and

> felt

> lousy the entire year. I had read about LDN 2 years ago, but that same

> neuro

> said no. After I stopped the Avonex,I waited for 4 weeks. My neuro would

> not

> give me a script but my family doctor did for a year. I worried that by

> stopping the Avonex, I might get worse. I didn't. So, I started the LDN,

> and

> I have felt better than I have in years. That's my story. Sometimes yo

> just

> have to take a chance in Life to make it better.

>

> VCL

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello,

My friend is suffering from MS and had taken LDN for 6 days now (she is taking 3 mg). She is experiencing that all her MS symptoms are worsening, especially drowsiness, weak muscles and greater immobility. Although she still hopes that this is temporary and transient, she's also a bit afraid especially since she doesn't get any support from her GP as far as LDN is concerned.

Does anyone out there have any advice for her? For how long should she give it a try? Should she try another dose? When could she possibly expect improvements?

Thanks it advance, especially on behalf of my friend

Kind regards,

Saskia

[Guest guest]

>

> Hello,

>

> My friend is suffering from MS and had taken LDN for 6 days now (she is

taking 3 mg). She is experiencing that all her MS symptoms are worsening,

especially drowsiness, weak muscles and greater immobility. Although she still

hopes that this is temporary and transient, she's also a bit afraid especially

since she doesn't get any support from her GP as far as LDN is concerned.

>

> Does anyone out there have any advice for her? For how long should she give

it a try? Should she try another dose? When could she possibly expect

improvements?

========

First, LDN's main purpose is to halt disease progression, not improve symptoms.

Any improvement in symptoms is an added plus(you got lucky).

This should explain the rest.

For those of you in the first 3 months of LDN therapy Dr. Bob Lawrence from the

UK who has MS and uses LDN himself explains why the temporary increase in MS

symptoms

When starting this LDN(Low Dose Naltrexone) therapy in the treatment of MS,

there may also be some initial transient, though temporary, increase in MS

symptoms. Experience in using this method has demonstrated most commonly, such

as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams,

tiredness, fatigue, spasm and pain. These increased symptoms would not normally

be expected to last more than seven to ten days.

Rarely, other transient symptoms have included more severe pain and spasm,

headache, diarrhea or vomiting. These additional symptoms would appear to be

associated with the previous frequent use of strong analgesics, which

effectively create an addiction and dependency, thus increasing the body's

sensitivity to pain. This temporary increase in symptoms may also perhaps be

explained when we consider the manner in which this drug is expected to work.

Initially, MS occurs due to a reduction in the activity of the controlling

influence of the suppressor T-cells within the immune system. During an acute

relapse, the overall number of T-cells is reduced, the normal balance of helper

T-cells and suppressor T-cells is disrupted and the damaging helper (CD-4)

T-cells tend to predominate. This is the situation most pronounced during an

acute relapse but occurs similarly, but to a lesser extent, in chronic

progressive MS. Under the influence of LDN there will be an expected increase in

the overall numbers of T-cells but, because the CD-4, helper T-cells tend to

predominate at this time, an increase in their numbers will expectedly tend to

increase MS symptoms. It is only when the numbers of suppressor T-cells

effectively " catch up " that the normal balance is restored and symptoms once

again diminish and improve. In addition, because LDN stimulates the immune

system and many of the drugs routinely used by the NHS in the treatment of MS

further suppress the immune system, LDN cannot be used in company with steroids,

beta interferon, methotrexate, azathioprine or mitozantrone or any other immune

suppressant drug. If there is any doubt, please submit a full list of the drugs

you are presently taking so that their compatibility may be assessed. In

addition, because LDN will also block the analgesic effects of any opiate drugs

(includes codeine, dihydrocodeine, morphine, pethidine or diamorphine) presently

being taken, the use of LDN will initially greatly increase the level of pain

experienced. It is therefore advisable that any opiate-like drugs be

discontinued at least two weeks before this treatment is initiated. When

starting the treatment it is essential that any untoward or adverse side-effects

are reported immediately so that the treatment process can be further assessed

and, if necessary, modified.

Dr. M R Lawrence

posted by

[Guest guest]

Once you start taking LDN, your body starts trying to work on what it couldn't, before, when you weren't orchestrating properly.

Tell her not to see them as worsening, but trying to heal, being worked on, taken a look at.

The body will try to fix what it can.

JMHO of course, we only have our own experiences to go by.

[low dose naltrexone] First time ldn user

Hello,

My friend is suffering from MS and had taken LDN for 6 days now (she is taking 3 mg). She is experiencing that all her MS symptoms are worsening, especially drowsiness, weak muscles and greater immobility. Although she still hopes that this is temporary and transient, she's also a bit afraid especially since she doesn't get any support from her GP as far as LDN is concerned.

Does anyone out there have any advice for her? For how long should she give it a try? Should she try another dose? When could she possibly expect improvements?

[Guest guest]

Hi Delilah

I have (what they now call Chronic Progressive M.S.) I guess since I have had it for more than half of my life.

I look at it this way 1 ........you have a ten month supply, some of us figure you are soooo lucky at that

2.........this drug will more than likely not have any bad side effects for you, even while on an injectable.

3.........being a pill it sure won't hurt to try it, sounds like you have been willing to do worse

4.........you can always forget to inject a few times and see what happens while on LDN. lots do

5.........In light of all the new findings on what the injectables success rate is,what advantage are they?

Now of course these are only my thoughts and I must say that I never did try any of them and have been here with MS for twenty five years now.So what do I know?

I believe that eating right taking the proper suppliments and trusting God is what has kept me out of the "home" all this time and now with LDN I don,t see any reason to doubt that it will change.

Reg.

-- Re: [low dose naltrexone] first time ldn user

Gypsey, good luck to you, and give the LDN a try, it is not poison like some of the other drugs out there, Give it a fair try Roxanne [low dose naltrexone] first time ldn user>>> hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.> i was dx dec.99, i've been on all the abc's and now on rebif for 14> months...and have had my 3rd dose of novantrone. i recently became> aware of ldn,and immediately got my neuros on the line!!> i went to my diagnosing neuro the next week,he said no. my m.s.> specialist said to wait & discuss it at my next appt. dec 16....> I Don't Think So!... so i went to my g.p. and he gave me a 10> month supply,i think it was b-cuz he figured there's no harm in> letting me try,considering it probably wouldn't work anyway...> guys im nervous about giving up on the shots,chemo, and a chance at> finally trying antigren,if someone out there will give me some> reassurance about ldn,i would really appreciate it. i know im not> the only person here who had to make this decision...but it feels> like it,i hope someone,anyone who's been here,no matter what age> would "talk to me". i've been reading ur posts, & i feel like i can't> pass up a opp. like this one, i filled it at Skips,received it.> 4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the> wrist bands are a GREAT idea! God Bless Us All, not matter what> sickness/disease, were All Carrying Our Own Cross+...but we can help> eachother in some way...but i see you guys already help eachother! >>>>>>>>>> reassurance>>>>>>>>

[Guest guest]

right on!!! Roxanne

[low dose naltrexone] first time ldn userDate: 09/12/04 19:21hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.i was dx dec.99, i've been on all the abc's and now on rebif for 14 months...and have had my 3rd dose of novantrone. i recently became aware of ldn,and immediately got my neuros on the line!! i went to my diagnosing neuro the next week,he said no. my m.s. specialist said to wait & discuss it at my next appt. dec 16....I Don't Think So!... so i went to my g.p. and he gave me a 10 month supply,i think it was b-cuz he figured there's no harm in letting me try,considering it probably wouldn't work anyway...guys im nervous about giving up on the shots,chemo, and a chance atfinally trying antigren,if someone out there will give me some reassurance about ldn,i would really appreciate it. i know im not the only person here who had to make this decision...but it feels like it,i hope someone,anyone who's been here,no matter what agewould "talk to me". i've been reading ur posts, & i feel like i can't pass up a opp. like this one, i filled it at Skips,received it.4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the wrist bands are a GREAT idea! God Bless Us All, not matter what sickness/disease, were All Carrying Our Own Cross+...but we can help eachother in some way...but i see you guys already help eachother! :)reassurance

[Guest guest]

I have been on LDN about a month and a half now. I am now going through a relapse but I think I was beginning to have some early warnigs of this before i took took ldn. Hoping it will clear up rapidly. Doc gave me a fast acting steroid shot and a slow acting one. with all the stress i have been through this year, {my husband almost dying from a Lipitor reaction} Kidney shutdown. I think I am finally getting my rebound effect. The stres was unbearable, he almost died. Roxanne

[low dose naltrexone] first time ldn user

hi, i'm Delilah, i'm 26 yrs. old & have secondary proggressive ms.i was dx dec.99, i've been on all the abc's and now on rebif for 14 months...and have had my 3rd dose of novantrone. i recently became aware of ldn,and immediately got my neuros on the line!! i went to my diagnosing neuro the next week,he said no. my m.s. specialist said to wait & discuss it at my next appt. dec 16....I Don't Think So!... so i went to my g.p. and he gave me a 10 month supply,i think it was b-cuz he figured there's no harm in letting me try,considering it probably wouldn't work anyway...guys im nervous about giving up on the shots,chemo, and a chance atfinally trying antigren,if someone out there will give me some reassurance about ldn,i would really appreciate it. i know im not the only person here who had to make this decision...but it feels like it,i hope someone,anyone who's been here,no matter what agewould "talk to me". i've been reading ur posts, & i feel like i can't pass up a opp. like this one, i filled it at Skips,received it.4.5 mg. ..thanks for listing to me vent a bit...p.s. i think the wrist bands are a GREAT idea! God Bless Us All, not matter what sickness/disease, were All Carrying Our Own Cross+...but we can help eachother in some way...but i see you guys already help eachother! :)reassurance