Survey on Cardiac and Pulmonary Complications in SMA

[Guest guest]

From Dr. Jon Bach:

Survey on Cardiac and Pulmonary Complications in SMA

" Why am I being asked to participate?

" Because you, or someone you know has Spinal Muscular Atrophy, Types 1, 2 or 3.

Currently, there is no research on heart weakness (or cardiomyopathy) in

patients with Spinal Muscular Atrophy. Yet many patients experience heart

problems. With your input, you will be helping someone with the disease. If

heart weakness is found, future treatment plans may include heart protective

medications to slow the progression of cardiac muscle weakness, and thus prolong

life. But the first step is to answer the question:

" How many patients with Spinal Muscular Atrophy Types 1, 2 or 3 have

cardiomyopathy? "

Go to:

http://bach.heroku.com/