Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Dear Fellow List Members, I am forwarding this post from Perkins, executive director of the OCF, for you consideration. Take care. Louis --- Perkins wrote: > Date: Thu, 7 Feb 2002 14:18:09 -0800 (PST) > > Reply-to: pbp2325@... > Subject: Summer camp > To: louisharkins@... > > Dear Louis, > > I'm wondering if you and the parents on the > Parenting > List can help me out with a project I'm doing. Two > weeks ago, I went over to Yale and talked with a > pediatrician who is the medical director of > Newman's Hole-in-the-Wall Gang Camp. It's here in > Connecticut. The camp is underwritten entirely by > Newman's charitable foundation that is funded by his > salad dressing, etc. Right now, the Camp is for > children with cancer or serious blood diseases. The > board of directors is willing to listen to proposals > to opening the camp for a session for another group > of > kids if they find one that matches their mission. > The > first year they would be expanding the group > considered would be in 2003. Dr. Pearson said he > could not predict what the board's response would be > to a proposal for a session for kids with OCD, but > he > said there would be no harm in me submitting a > proposal. I have been working on the proposal and I > realize I really need something to introduce these > directors to our kids. Can you ask the parents on > the > List if they would send me pictures of their kids > with > OCD with descriptions of their favorite things to > do, > hobbies, year in school, siblings, friends and then > a > short synopsis of what the OCD kept them from doing, > such as, playing baseball, showering, going to > school, > paying with pets, going on family trips, leaving > their > rooms. I want these people to see what these > children have suffered and what they missed because > of > the OCD. The purpose of the camp is for kids to > have > fun. That is Newman's basic tenet. I would like to > show him that even though our children do not have a > physically life threatening disease like cancer, > their > suffering from OCD has robbed them of even more > because while they are phsycially okay, they are > suffering constantly in a way that is worse than > being > physically ill. What I figure I will do as part of > my > proposal is to introduce them to our kids. No last > names or ways of identifying them, but a picture and > a > bio showing what they do and love and what ocd did > to > interfere with that. I'd be most appreciative of > anyone who was willing to share their families > story. > they can reach me at perkins@.... > Thank > you. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Dear Fellow List Members, I am forwarding this post from Perkins, executive director of the OCF, for you consideration. Take care. Louis --- Perkins wrote: > Date: Thu, 7 Feb 2002 14:18:09 -0800 (PST) > > Reply-to: pbp2325@... > Subject: Summer camp > To: louisharkins@... > > Dear Louis, > > I'm wondering if you and the parents on the > Parenting > List can help me out with a project I'm doing. Two > weeks ago, I went over to Yale and talked with a > pediatrician who is the medical director of > Newman's Hole-in-the-Wall Gang Camp. It's here in > Connecticut. The camp is underwritten entirely by > Newman's charitable foundation that is funded by his > salad dressing, etc. Right now, the Camp is for > children with cancer or serious blood diseases. The > board of directors is willing to listen to proposals > to opening the camp for a session for another group > of > kids if they find one that matches their mission. > The > first year they would be expanding the group > considered would be in 2003. Dr. Pearson said he > could not predict what the board's response would be > to a proposal for a session for kids with OCD, but > he > said there would be no harm in me submitting a > proposal. I have been working on the proposal and I > realize I really need something to introduce these > directors to our kids. Can you ask the parents on > the > List if they would send me pictures of their kids > with > OCD with descriptions of their favorite things to > do, > hobbies, year in school, siblings, friends and then > a > short synopsis of what the OCD kept them from doing, > such as, playing baseball, showering, going to > school, > paying with pets, going on family trips, leaving > their > rooms. I want these people to see what these > children have suffered and what they missed because > of > the OCD. The purpose of the camp is for kids to > have > fun. That is Newman's basic tenet. I would like to > show him that even though our children do not have a > physically life threatening disease like cancer, > their > suffering from OCD has robbed them of even more > because while they are phsycially okay, they are > suffering constantly in a way that is worse than > being > physically ill. What I figure I will do as part of > my > proposal is to introduce them to our kids. No last > names or ways of identifying them, but a picture and > a > bio showing what they do and love and what ocd did > to > interfere with that. I'd be most appreciative of > anyone who was willing to share their families > story. > they can reach me at perkins@.... > Thank > you. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 My son would definitely go - I would welcome the opportunity to give him some FUN time away from home. I haven't been invited to go - maybe the camp should be for parents instead!!!! wrote: , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 My son would definitely go - I would welcome the opportunity to give him some FUN time away from home. I haven't been invited to go - maybe the camp should be for parents instead!!!! wrote: , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 My son would definitely go - I would welcome the opportunity to give him some FUN time away from home. I haven't been invited to go - maybe the camp should be for parents instead!!!! wrote: , I could send a bio. Does that have to mean that you ARE going to the camp if this succeeds, as doubt we could go. > To all on the list -Patti Perkin-Doyle at the OC Foundation still needs 8 more biographies in order to have a sufficient amount to make a proposal for a summer camp for kids who suffer from OCD. She does not need pictures and she would greatly appreciate it if we could email her the bio's. Just think about the great time we parents could have vacationing while our kids were at camp!!! Please send emails to perkins@o... in Southeastern PA > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Where do you live? I know of a great camp at Lullwater School in Decatur. They have a summer camp that is Floor time based and works on social skills and sensory integration. My son is too young to go this year. You can find info at the website http://www.learningonthelog.com. Annemarie On 4/21/05, longarche <longarche@...> wrote: > > Hello... I need a summer camp for my five-year-old son, who is > moderately autisic... does anyone have any suggestions? > > Tom > > > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 Same here...we've been looking, too, and haven't found anything in Cobb County for our 4-year-old autistic son. We need suggestions, too! In a message dated 4/22/2005 5:18:49 AM Eastern Daylight Time, autism writes: Message: 1 Date: Thu, 21 Apr 2005 12:13:23 -0000 From: "longarche" <longarche@...>Subject: summer campHello... I need a summer camp for my five-year-old son, who ismoderately autisic... does anyone have any suggestions?Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 Here are some I am aware of: http://www.sctherapy.com/page.asp?pg=programs http://www.atlantachildpsych.com/social%20skills.htm http://www.koolkidzfoundation.org/events/camps.htm > > Hello... I need a summer camp for my five-year-old son, who is > moderately autisic... does anyone have any suggestions? > > Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 We've also had good experiences at a YMCA summer camp. My daughter has gone the last three summers (ages 9, 10, 11). I was very impressed with the director and the international staff of counselors, and agree that standards are high. I was also very open with the staff with my child's OCD, possible problems, etc. My child is one who has frequently been able to go on vacation or etc. and experience a break from OCD. The only problem she has experienced is being up all night that first night, but she had company in that. Her counselor told me they pretty much count on getting little sleep that first night of each session, as kids frequently are excited, upset, homesick, or whatever. The plan is to run them around so much the next day that they all fall into bed exhausted the next night LOL. Counselors are very experienced in dealing with children's fears, worries, homesickness, and even things like bedwetting. Kathy R. in Indiana ----- Original Message ----- From: " musicgirl9395 " <musicgirl9395@...> > My dd also went to a YMCA camp last summer for a week. It was great. > I was open to them about her OCD, and the counselors were great. I > think the YMCA camp has very high standards for their counselors and > they were so accomodating. They even wanted her to come back for > another week. > We have also had success with swimming lessons, and specialty camps of > her intrest. Being open with the staff has been key for us! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 For the first time in many years, Tommy went to the Y camp here in southeastern PA. He attended for 4 weeks. I was pleasantly surprised with the favorable reports I got from both Tommy and the staff. I am hoping to send his this coming summer during all the weeks that he will not be attending ESY at his school. The staff did their utmost to learn about Tommy's oCD and his other alphabet soup issues. What a change from 8 years ago when the staff couldn't wait to send him home! in Southeastern PA musicgirl9395 <musicgirl9395@...> wrote: My dd also went to a YMCA camp last summer for a week. It was great. I was open to them about her OCD, and the counselors were great. I think the YMCA camp has very high standards for their counselors and they were so accomodating. They even wanted her to come back for another week. We have also had success with swimming lessons, and specialty camps of her intrest. Being open with the staff has been key for us! Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi, where is your summer camp ? could you email me the details. Thanks, Cassandra alex4agc <alex4agc@...> wrote: I forgot to mention that we also offer summer camp! If anyone is interested please contact me at the gym or Sgier and mention my name. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 you can find all of our information at www.atlantagymnasticscenter.com <harlemnewyorkrd@...> wrote: Hi, where is your summer camp ? could you email me the details. Thanks, Cassandra alex4agc <alex4agc@...> wrote: I forgot to mention that we also offer summer camp! If anyone is interested please contact me at the gym or Sgier and mention my name. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Paz Atlanta Gymnastics Center 2617-B Talley Street Decatur , Georgia 30030 telephone # 404-687-9911 fax# 404-687-9177 Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Hi Gretchen, ph attends camp for the past 4 summers. He goes through the YMCA. He has had to miss a few days during past summers. but they are fully aware of his illness and so far no problems. I do not schedule him for the competitive nature camps. This year he is attending 5 weeks of camp spread out throughout summer. He has gone to 2 so far. Another on Monday. The activities include archery, riflery, swimming, fishing and he switches from low ropes (kinda like an obstacle course) and science. He does not run around much like other camps that played tag and all the chasing type activities. So far he LOVES going and this year better than last. Last year he missed 3 days in a week and then just one day. This year he seems to do better with Motrin and it takes his fever down much better than years before. We have lucked out since he fevered for 12 days when camp stopped a couple weeks ago so he is clear for next week! ph does have leg pain in between fevers too so I definitely look for camps where they do not do lots of running nor sports. He had difficulty on soccer this past season and I do not think I will ask him to play next season. As he gets older the coaches and team players are getting more competitive and there will come a point where playing for fun is not an option! I feel sad for him in that arena! Can you check and see if there are opening at the camp his friends are going to and see if the activities are ok for him?? Are s episodes predictable in nature??? Just thought I would let you know how we handle this. Oh and the special needs camps are focused more for kids who are really disabled. I worked at them for a few summers as a camp RN. It was fun! The kids were wheel chair bound or had braces on their legs. Some were amputees. others blind. or deaf or both. Some were CP kids and others Down Syndrome. I never saw kids like ours. basically without physical handicap. Now the true NOMID children would easily fit into the special needs group because of their boney deformities. Thankfully ph has the NOMID mutation without all of that. God Bless Fran Fran A Bulone Mom to ph 7 yrs old Waxhaw, NC Owner & Moderator Group <> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2006 Report Share Posted July 5, 2006 Hi Fran, Yes, is getting more regular it seems since the cimetidine, 23 days. I guess I could call the camp for activity info. I know he wanted sleep away camp. He gets so wiped out just spending the night at friends and relatives. I guess it doesn't matter as long as he is having fun while he felt good. I can give him a motrin for his fever but he still can't stand for two days. He can't even function outside the home with his episodes on any meds. Thanks for the ideas. Gretchen Fran Bulone <fbulone@...> wrote: Hi Gretchen, ph attends camp for the past 4 summers. He goes through the YMCA. He has had to miss a few days during past summers. but they are fully aware of his illness and so far no problems. I do not schedule him for the competitive nature camps. This year he is attending 5 weeks of camp spread out throughout summer. He has gone to 2 so far. Another on Monday. The activities include archery, riflery, swimming, fishing and he switches from low ropes (kinda like an obstacle course) and science. He does not run around much like other camps that played tag and all the chasing type activities. So far he LOVES going and this year better than last. Last year he missed 3 days in a week and then just one day. This year he seems to do better with Motrin and it takes his fever down much better than years before. We have lucked out since he fevered for 12 days when camp stopped a couple weeks ago so he is clear for next week! ph does have leg pain in between fevers too so I definitely look for camps where they do not do lots of running nor sports. He had difficulty on soccer this past season and I do not think I will ask him to play next season. As he gets older the coaches and team players are getting more competitive and there will come a point where playing for fun is not an option! I feel sad for him in that arena! Can you check and see if there are opening at the camp his friends are going to and see if the activities are ok for him?? Are s episodes predictable in nature??? Just thought I would let you know how we handle this. Oh and the special needs camps are focused more for kids who are really disabled. I worked at them for a few summers as a camp RN. It was fun! The kids were wheel chair bound or had braces on their legs. Some were amputees. others blind. or deaf or both. Some were CP kids and others Down Syndrome. I never saw kids like ours. basically without physical handicap. Now the true NOMID children would easily fit into the special needs group because of their boney deformities. Thankfully ph has the NOMID mutation without all of that. God Bless Fran Fran A Bulone Mom to ph 7 yrs old Waxhaw, NC Owner & Moderator Group <> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 You may be surprised at some of the illnesses that qualify one for some of the " special " camps. Now we are going back a ways, but my husband spent a few summers at some of these camps as a result of his asthma. It may be worth looking into. Ellyn Mom of possibly (5), Alyssa(8), and Kate(4 in 2 days!) Philadelphia, PA Gretchen Danson <gretchendanson@...> Sent by: 07/05/2006 04:45 PM Please respond to < > cc: Subject: summer camp I feel bad today. asked if I signed him up for a summer camp that some of his friends are going to. The email came in Jan. and we had to make reservations, well was so sick Jan-March that I didn't sign him up because we didn't know what was going on with him. He is playing baseball right now and has missed a few games, pictures and the jamboree........but, it is so hard to commit to something that he might miss. I wish there was a camp for kids who get sick or might get sick. I know there are camps out there however, they are for seriously sick kids and I don't think we fit. Do we? Like all the kids here this too is a hard age to be sick.....argh....Just had to vent. Thanks, Gretchen 13 years old with . --------------------------------- Sneak preview the all-new .com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Tracey, Painted Turtle allows PI kids in their first week of camp. Sent from my iPhone On Jan 7, 2011, at 10:32 AM, " " <taw1492@...> wrote: > Hi, > > I know this seems so far away, but sign ups are on for Summer camp and I am wondering if any of you have been able to send your kids to overnight camp? My son is on SCIG 1x/week. How would this work if he was at camp? He really wants to go and while on SCIG, his infections have really gotten better, so I feel like he could do well at a 1 week camp. The camp we are looking at has a nurse on staff, but not sure if they would be capable of doing his infusion. Would love any suggestions. > > Thanks! > > 7 CVID > Jordan 3 CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Tracey, Painted Turtle allows PI kids in their first week of camp. Sent from my iPhone On Jan 7, 2011, at 10:32 AM, " " <taw1492@...> wrote: > Hi, > > I know this seems so far away, but sign ups are on for Summer camp and I am wondering if any of you have been able to send your kids to overnight camp? My son is on SCIG 1x/week. How would this work if he was at camp? He really wants to go and while on SCIG, his infections have really gotten better, so I feel like he could do well at a 1 week camp. The camp we are looking at has a nurse on staff, but not sure if they would be capable of doing his infusion. Would love any suggestions. > > Thanks! > > 7 CVID > Jordan 3 CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Just give it before and after his camp. We go about 3 day either way of the week as necessary. But do check with your doctor. For us this works fine. BARBIE ________________________________ From: Dayna Fladhammer <dfladhammer@...> " " < > Sent: Fri, January 7, 2011 8:44:56 AM Subject: Re: Summer Camp Tracey, Painted Turtle allows PI kids in their first week of camp. Sent from my iPhone On Jan 7, 2011, at 10:32 AM, " " <taw1492@...> wrote: > Hi, > > I know this seems so far away, but sign ups are on for Summer camp and I am >wondering if any of you have been able to send your kids to overnight camp? My >son is on SCIG 1x/week. How would this work if he was at camp? He really wants >to go and while on SCIG, his infections have really gotten better, so I feel >like he could do well at a 1 week camp. The camp we are looking at has a nurse >on staff, but not sure if they would be capable of doing his infusion. Would >love any suggestions. > > Thanks! > > 7 CVID > Jordan 3 CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Just give it before and after his camp. We go about 3 day either way of the week as necessary. But do check with your doctor. For us this works fine. BARBIE ________________________________ From: Dayna Fladhammer <dfladhammer@...> " " < > Sent: Fri, January 7, 2011 8:44:56 AM Subject: Re: Summer Camp Tracey, Painted Turtle allows PI kids in their first week of camp. Sent from my iPhone On Jan 7, 2011, at 10:32 AM, " " <taw1492@...> wrote: > Hi, > > I know this seems so far away, but sign ups are on for Summer camp and I am >wondering if any of you have been able to send your kids to overnight camp? My >son is on SCIG 1x/week. How would this work if he was at camp? He really wants >to go and while on SCIG, his infections have really gotten better, so I feel >like he could do well at a 1 week camp. The camp we are looking at has a nurse >on staff, but not sure if they would be capable of doing his infusion. Would >love any suggestions. > > Thanks! > > 7 CVID > Jordan 3 CVID > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2012 Report Share Posted June 5, 2012 Hi, Everyone, For those who don't know me. My name is Ping. My 12-year-old daughter has SMA II/III.  Can anyone share their experience with regular summer camps?  Wondering if I should hire an aid for her. I will take care the toileting during lunch.  Ping Quote Link to comment Share on other sites More sharing options...
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