Guest guest Posted May 13, 2012 Report Share Posted May 13, 2012 Hi everyone, I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. Any thoughts are welcome. Thanks. Susie aka Siouxi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2012 Report Share Posted May 13, 2012 Hi, and welcome, I wish I had something to offer about the foot cramps, but I don't. I just wanted to say " hello " . ~a From: SiouxiQ <siouxi_q@...> Subject: muscle cramps Date: Sunday, May 13, 2012, 9:25 PM Â Hi everyone, I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. Any thoughts are welcome. Thanks. Susie aka Siouxi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2012 Report Share Posted May 14, 2012 Hi Siouxi, I use to have leg pains that would wake me up at night. I think most of the time it was nerve pain with a few " charlie horses " mixed in. Now, I get muscle spasms in my feet. I haven't found a cause or solution. Suzanne Sent from my iPhone On May 13, 2012, at 9:25 PM, " SiouxiQ " <siouxi_q@...> wrote: > Hi everyone, > > I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. > > Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. > > Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. > > I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. > > My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. > > So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. > > Any thoughts are welcome. Thanks. > Susie aka Siouxi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2012 Report Share Posted May 14, 2012 I've been concerned about nerve involvement since the numbness continues long after each incident and has now become permanent. The only doubt for me is that it doesn't shoot up my leg. I've experienced sciatica from a dislocated hip so am very clear how that feels and this seems different. More local, less traveling in a straight line. But I'll definitely discuss Lyrica and Neurotin with my doctor, thanks so much. Susie > > From: SiouxiQ <siouxi_q@...> > Subject: muscle cramps > > Date: Sunday, May 13, 2012, 9:25 PM > > Â > > Hi everyone, > > I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. > > Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. > > Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. > > I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. > > My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. > > So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. > > Any thoughts are welcome. Thanks. > > Susie aka Siouxi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 Hi everybody, I'm just curious to know, for those of you who have taken Lyrica or Neurotin, have you experienced any gastrointestinal problems? I have a really difficult time with medications nauseating me, or causing other G.I. problems, and I'm curious about the aforementioned medications because I too have suffered from excruciating muscle cramps. Any info is greatly appreciated. Karyna _____ From: [mailto: ] On Behalf Of SiouxiQ Sent: Monday, May 14, 2012 12:18 PM Subject: Re: muscle cramps Yeah, that's how it started for me, it's progressed to painful cramps. Very painful. I'm relieved and disturbed to know this isn't just me. Maybe it's connected to the SMA or a side effect of limited mobility. > > > Hi everyone, > > > > I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. > > > > Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. > > > > Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. > > > > I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. > > > > My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. > > > > So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. > > > > Any thoughts are welcome. Thanks. > > Susie aka Siouxi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 No problems at all with Lyica.  Lori ________________________________ From: Karyna Laroche <karynalaroche@...> Sent: Tuesday, May 22, 2012 10:28 AM Subject: RE: Re: muscle cramps  Hi everybody, I'm just curious to know, for those of you who have taken Lyrica or Neurotin, have you experienced any gastrointestinal problems? I have a really difficult time with medications nauseating me, or causing other G.I. problems, and I'm curious about the aforementioned medications because I too have suffered from excruciating muscle cramps. Any info is greatly appreciated. Karyna _____ From: [mailto: ] On Behalf Of SiouxiQ Sent: Monday, May 14, 2012 12:18 PM Subject: Re: muscle cramps Yeah, that's how it started for me, it's progressed to painful cramps. Very painful. I'm relieved and disturbed to know this isn't just me. Maybe it's connected to the SMA or a side effect of limited mobility. > > > Hi everyone, > > > > I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. > > > > Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. > > > > Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. > > > > I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. > > > > My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. > > > > So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. > > > > Any thoughts are welcome. Thanks. > > Susie aka Siouxi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 also no problems with neurotin ________________________________ From: Lori G <lorig713@...> " " < > Sent: Tuesday, May 22, 2012 12:55 PM Subject: Re: Re: muscle cramps  No problems at all with Lyica.  Lori ________________________________ From: Karyna Laroche <karynalaroche@...> Sent: Tuesday, May 22, 2012 10:28 AM Subject: RE: Re: muscle cramps  Hi everybody, I'm just curious to know, for those of you who have taken Lyrica or Neurotin, have you experienced any gastrointestinal problems? I have a really difficult time with medications nauseating me, or causing other G.I. problems, and I'm curious about the aforementioned medications because I too have suffered from excruciating muscle cramps. Any info is greatly appreciated. Karyna _____ From: [mailto: ] On Behalf Of SiouxiQ Sent: Monday, May 14, 2012 12:18 PM Subject: Re: muscle cramps Yeah, that's how it started for me, it's progressed to painful cramps. Very painful. I'm relieved and disturbed to know this isn't just me. Maybe it's connected to the SMA or a side effect of limited mobility. > > > Hi everyone, > > > > I recently found this group and have been commenting but this is my first post here so let me introduce myself. I'm a 43 year old woman living in sunny Miami, except when it's pouring cats and dogs, then it's wet Miami. :-) SMA 2. > > > > Spent much of my childhood doing what the doctors said until I came to the conclusion they were not living with the consequences of those decisions and I was. That changed things. A lot. In good ways. I'm very proactive with my health, committed to healthy nutrition, acupuncture and meditation for stress and pain management. *shrugs* It works for me. > > > > Anyways, a few years ago I started having severe muscle cramps in my foot. 'Severe' means waking up from a dead sleep at 3am gasping in pain because it hurt that much. No joke. To complicate matters, I began to notice some lingering numbness after the cramp passed. > > > > I tried hydrating, eating bananas for the potassium and more recently club soda for the quinine. Results? Minimal. And I'm not sure if I should be doing this weekly, daily or monthly for any benefit. Plus, we all know adding more fluids to the diet is complicated with limited access to bathrooms and too much quinine can have adverse affects so, yeah, caution. > > > > My doctor called it Peripheral Neuropathy and said most are idiopathic, having no idea what the cause is or how to fix it. The tests seem very invasive and not worth the payoff. > > > > So, here I am, asking if any of you have experienced this or found a solution. I've always had normal sensation and this is a little disturbing to have constant pins and needles on a part of my foot. And the foot cramps are tremendously painful. > > > > Any thoughts are welcome. Thanks. > > Susie aka Siouxi > > > > > > > Quote Link to comment Share on other sites More sharing options...
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