finding out about Inn reservations

[Guest guest]

Our first visit we waited for someone to call us about all the info.

That did not happen. We called the Inn ourselves and told them our

name and when the appt was. Someone called a couple days later to let

us know we had a room. It is important you get your flight arrival

time and when you will fly out. We found out the shuttle from the

airport to the Inn only runs for certain times. The times are posted

on the Childrens Inn website. Another newbie thing, my husband and

sons flight left at 7:30am. They had to leave the Inn by 6:00 since it

was a 45 minute drive back to the airport. Shuttle did not run til

7:00, I think. $40.00 later for a cab they made it. Just one of the

things we learned. The Inn has a kitchen to make food too.

I am sorry if I ever seemed negative about NIH. I am scared and

protective. We have had so many nightmare doctors prior to our next to

Sainthood doctor we have now. I know that type of doctor is dime a

dozen and I have my guard up. Dr Lewey has been wonderful and has

responded to all of our needs for Clay with the most compasion. It is

more about me than them.

Congrats Sacora & on your appts-good luck.

Tammy, Mother of Clay 4 HIDS