Question about the tests the ID doc ran on Kardyn

[Guest guest]

Hello all,

Kardyn saw ID the other day and the doc ran a bunch of tests on him.

One was his immunoglobins. The doc called me today to tell me that

they were all great. We are still waiting for the other tests that he

says will take a couple weeks to get back.

I am trying to figure the immunoglobins test out. Since they found

nothing wrong with his immunoglobins, am I to assume that Kardyn

doesn't have any kind of fever syndrome? Also, did any of your

children have this test before you actually got the syndrome DX and

how did your child's immunoglobins test turn out?

I am just trying to figure all this out. Kardyn has had soooo many

tests that I am not sure what other labs they could actually do on

him. I want him healthy and I want them to tell me why he is having

these fevers but I am not sure that I should allow anymore tests if

the immunoglobins tests is what they look at when thinking there may

be a fever syndrome, especially since this test came back great. I

just don't want my baby to be tortured anymore.

Please give us your thoughts on what we should do from here and any

info you have on your own child's testing.

Thank you and God bless,

a and Kardyn