Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 I've never posted but have spent many hours reading on this site. I am dumbfounded yet comforted to know there are other families sharing our fever struggles. I'm looking for a connection between fevers and other things going on that I haven't read in any post- specifically Sweet's syndrome, (still testing), Chiari I malformation and Craniosynostosis. I have an 8 month old that was born with an adrenal cyst that was ruled as a hemmorhage at 2 weeks. Two weeks later, an incredible rash and fever began. We spent 5 weeks at 2 hospitals, got a leukemia cutis diagnosis that was withdrawn a week later (after a central line placement, of course!), had 4 spinal taps, bone marrow aspiration, 2 skin biopsies, many, many x-rays, CT scans, an MRI... I thought they'd covered everything. We left with a clinical diagnosis of Sweet's syndrome and was on Prednisolone for a couple of months. Rash disappeared and hasn't returned. Fevers " due to unknown origin " began in June and have earned us 3 hospital admissions due to elevated WBC. Chiari I and Cranio have come into play just in the past 2 weeks. I guess I'm in denial that our perfect world is being rocked and that our little princess could have so many odd things going on without them somehow being connected. I can't find it- Has anyone else come across any of these weird things??? I would appreciated any feedback!! - mom to Connor, Zack and Riley Quote Link to comment Share on other sites More sharing options...
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