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In a message dated 2/24/02 2:38:14 PM Eastern Standard Time, duffey48@...

writes:

> I am very cautious

> now....sure dont' want that experience again!!

>

>

>

That sounds very scary and painful. Thanks for sharing. Makes you count your

blessings. Everyday I wake up and thank God I feel good.

Diane :)

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In a message dated 2/23/2002 5:40:23 PM Eastern Standard Time,

dben937342@... writes:

Hi Diane,

> What do you think of a wiping the nose goal?

I think the handwashing goal would be more important than the nose goal but

that's my opinion. I had issues with this when Zeb was in kindergarten. They

actually called me about 30 min. after school started and told me that Zeb

was contagious because his nose was running. He had been on antibiotics for

three days and was just back at school. I was red hot and dashed to the peds.

office to get a note saying he was fine to attend school. I remember standing

with the nurse telling her you'd better not fight me on this issue or I will

be back with a news crew your choice. she still hates me and it was all about

nose wiping. The less work the staff has the better they like it.

Charlyne

Mom to Zeb 9 DS/OCD ?

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In a message dated 2/24/02 6:50:40 PM Eastern Standard Time,

charlyne1121@... writes:

> I will

> be back with a news crew your choice. she still hates me and it was all

> about

> nose wiping. The less work the staff has the better they like it.

> Charlyne

>

You actually said that!! lololo The aides tell me all the time that they

think Rochelle has a fever or is sick. The teacher tells me she is fine. I

tell them to give me a call if she gets sick but they never call. But she

does have a chronic runny nose. She can't blow it out.

Diane :)

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In a message dated 2/24/2002 9:18:42 PM Eastern Standard Time,

dben937342@... writes:

> You actually said that!! lololo The aides tell me all the time that they

> think Rochelle has a fever or is sick. The teacher tells me she is fine. I

> tell them to give me a call if she gets sick but they never call. But she

> does have a chronic runny nose. She can't blow it out.

>

Hi Diane,

Yes, I did say that and I meant every word of it. Zeb had a chronic runny

nose as well until last year. I can't tell you how many boxes of puffs I

bought. I eventually called a PPT specifically in honor of our nurse. I had a

copy of the ADA and underlined what portion she had violated and also how

much of his education she was denying him of. I made a point to tell her that

I was giving her a last chance before filing charges. She hates my guts but

doesn't give me or Zeb an ounce of trouble. I am not a trouble maker, honest,

but sometimes you just get pushed to the limit and need to take a stance or

it just goes on and on. I had had other issues with the nurse that year and

this was just the end of my patience.I don't want you to think that I just go

into a tangent with every little thing but I often want to. I am grateful

that I am an old mother and have 2 older kids that have graduated so I have

been through the system a few times. I think I wouldn't be as gutsy as I am

now.

Charlyne

Mom to Zeb 9 DS/OCD ?

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I think handwashing is the best goal. It resists

curriable disseaseases, etc.

--- charlyne1121@... wrote:

> In a message dated 2/23/2002 5:40:23 PM Eastern

> Standard Time,

> dben937342@... writes:

> Hi Diane,

>

> > What do you think of a wiping the nose goal?

>

> I think the handwashing goal would be more important

> than the nose goal but

> that's my opinion. I had issues with this when Zeb

> was in kindergarten. They

> actually called me about 30 min. after school

> started and told me that Zeb

> was contagious because his nose was running. He had

> been on antibiotics for

> three days and was just back at school. I was red

> hot and dashed to the peds.

> office to get a note saying he was fine to attend

> school. I remember standing

> with the nurse telling her you'd better not fight me

> on this issue or I will

> be back with a news crew your choice. she still

> hates me and it was all about

> nose wiping. The less work the staff has the better

> they like it.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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Well, I think that the fine motor should stay to

where a child can do. I don't think that it should

be any harder then they can do.

>

>

> > My

> > question would be what if they are never

> developmentally ready. The fine

> > motor stays at what it is or what? I was told that

> once a child with MR

> > reaches about 12 they reach their potential on

> gross and fine motor skills.

> > I

> > am not sure how true this is but time is running

> out for us in this area.

> > Charlyne

> > Mom to Zeb 9 DS/OCD ?

> >

> >

> >

>

> They asked me why I wanted Rochelle to practice

> drawing lines. Really now.

> What kind of question is that? I said, " So she can

> write her name " Duh....

>

> I would keep working on it Charlyne. Rochelle's

> brother does not like to

> write either. But we make him do it. He is learning

> to type which helps

> frustration. But we still make him write.

>

> I hope there is not a magic age where you can't

> teach them. I for one don't

> believe there is but it is probably easier to

> influence them when their

> younger.

>

> What do you think of a wiping the nose goal? This is

> one the school district

> came up with. Said it was a social goal. Kids won't

> hang out with her if she

> has a runny nose. Like Rochelle cares if other kids

> pay attention to her? She

> totally ignores all the kids who try to say hi and

> interact with her and they

> keep trying. They said, she doesn't like for them to

> wipe it. I felt like

> telling them to just leave her nose alone. But, I

> know they think it is

> unhygenic yet they never clean the toys the kids all

> drool on. Oh, and they

> forget to wash their hands before eating sometimes.

> And the washing hands

> goal has not been worked on even though it was on

> the IEP.

>

> Well, I said, wiping the nose was not a goal I

> wanted on the IEP and that

> they can work on it anyway if they want to. Rochelle

> can't even blow her nose

> yet. And, she can wipe her nose if you give her the

> tissue but she usually

> misses. I let them keep the nose goal but I think

> I'll get rid of that one in

> a few weeks.

> Diane :)

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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I know has mastered the hand-washing issue because I was told

he washes them like if he is preparing for surgery, plus everyone

feels safe eating on what the meal of the day when he is helping in

the kitchen. also does well with wiping his nose, that I can't

remember when that occured but he does have his set backs on needing

to know the next step after sneezing or having a running nose.

Everytime someone sneezes he yells out loud " Bess you " !

Irma, 13,DS/ASD

> I think handwashing is the best goal. It resists

> curriable disseaseases, etc.

>

>

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I am not sure that you run out of time on fine motor skills, when someone has

a stroke and loses control of their fine motor skills with adequate therapy

they some times gain their fine motor skills back maybe not to what they once

were but enough that they can function. The problem with our children is

that the schools often don't provide enough therapy, or the appropriate

therapy and then want to put the blame on our children for not advancing.

Ex. the schools worked with Trisha for over 3 years on using a mouse for the

computer and then said that she would probably never be able to use a mouse,

I worked with her for a few days and she is now using the mouse, she is a

little awkward right now but the more she uses it the better she gets. She

gets OT for and hour a week, now how can anyone expect her to make progress

at that rate and they don't really seem to work in the area she needs instead

they work on what the books tell them is appropriate and we all know each of

our kids are different and may need different therapies. When the schools

learn to address our children's individual needs and then make a plan of

action according to their needs and not generalized needs then we may see

more progress. It is my belief that you never stop trying to help a child

even if they aren't showing a lot of progress because those are the children

that need the help the most, instead you continue to work with the child and

it may be a life long process but believe me it is well worth the time and

energy it takes to help our children.

Carol aka Trishasmom

She isn't Typical, She's Trisha!

<A HREF= " http://hometown.aol.com/csvillars/trishapage.htm " >Trisha's Pooh

Page</A>

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I am not sure that you run out of time on fine motor skills, when someone has

a stroke and loses control of their fine motor skills with adequate therapy

they some times gain their fine motor skills back maybe not to what they once

were but enough that they can function. The problem with our children is

that the schools often don't provide enough therapy, or the appropriate

therapy and then want to put the blame on our children for not advancing.

Ex. the schools worked with Trisha for over 3 years on using a mouse for the

computer and then said that she would probably never be able to use a mouse,

I worked with her for a few days and she is now using the mouse, she is a

little awkward right now but the more she uses it the better she gets. She

gets OT for and hour a week, now how can anyone expect her to make progress

at that rate and they don't really seem to work in the area she needs instead

they work on what the books tell them is appropriate and we all know each of

our kids are different and may need different therapies. When the schools

learn to address our children's individual needs and then make a plan of

action according to their needs and not generalized needs then we may see

more progress. It is my belief that you never stop trying to help a child

even if they aren't showing a lot of progress because those are the children

that need the help the most, instead you continue to work with the child and

it may be a life long process but believe me it is well worth the time and

energy it takes to help our children.

Carol aka Trishasmom

She isn't Typical, She's Trisha!

<A HREF= " http://hometown.aol.com/csvillars/trishapage.htm " >Trisha's Pooh

Page</A>

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In a message dated 2/25/2002 7:11:00 AM Eastern Standard Time,

Csvillars@... writes:

> . The problem with our children is

> that the schools often don't provide enough therapy, or the appropriate

> therapy and then want to put the blame on our children for not advancing.

>

Hi Carol,

I totally agree but not being OTs getting our message across is exhausting

and many times feudal. I know that the schools are supposed to provide OT but

I find in many school systems they provide the same time for each student

and use a generic style just to meet requirements of the law.

Charlyne

Mom to Zeb 9 DS/OCD ?

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In a message dated 2/25/02 7:10:19 AM Eastern Standard Time,

Csvillars@... writes:

> It is my belief that you never stop trying to help a child

> even if they aren't showing a lot of progress because those are the

> children

> that need the help the most, instead you continue to work with the child

> and

> it may be a life long process but believe me it is well worth the time and

> energy it takes to help our children.

>

> Carol aka Trishasmom

>

I totally agree with you. I have come to the conclusion that the more

cognitive ability they think your child has the more therapy they will get

regardless of fine/gross motor ability. Or if they just want to shut you up.

Diane :)

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intellideys are special keyboards to learn how to type, words or even sentences,

using letters or blocks of actual words or story lines etc layed out on overlay

keyboards, very nice shawna.

Re: fine motor - writing -horizontal/vertical

In a message dated 2/22/02 11:11:57 PM Eastern Standard Time,

greenpak@... writes:

> i would start implementing these type of things such as rubber stamp for

> names and words, keyboarding, intellikeys, and continue a short block of

> handwriting/cutting OT stuff dly, this way she isnt held back just cause

> she cant write. shawna.

>

a, What are intellikeys? Thanks for the imput.

Diane:)

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In a message dated 2/26/2002 8:38:35 PM Eastern Standard Time,

greenpak@... writes:

> Weve had arguments with school in the past about the runny nose or drainging

> ears, etc, and also have to had Rx from doc saying he was NOT contagious,

> the nurse at the lower elementry hates me too. shawna.

>

Hi a,

I don't feel so alone. The nurse walked by me today and physically turned her

head as she passed me. I couldn't resist telling her to grow up. She might

turn her entire body next time.LOL

Charlyne

Mom to Zeb 9 DS/OCD ?

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Weve had arguments with school in the past about the runny nose or drainging

ears, etc, and also have to had Rx from doc saying he was NOT contagious, the

nurse at the lower elementry hates me too. shawna.

Re: fine motor - writing -horizontal/vertical

In a message dated 2/23/2002 5:40:23 PM Eastern Standard Time,

dben937342@... writes:

Hi Diane,

> What do you think of a wiping the nose goal?

I think the handwashing goal would be more important than the nose goal but

that's my opinion. I had issues with this when Zeb was in kindergarten. They

actually called me about 30 min. after school started and told me that Zeb

was contagious because his nose was running. He had been on antibiotics for

three days and was just back at school. I was red hot and dashed to the peds.

office to get a note saying he was fine to attend school. I remember standing

with the nurse telling her you'd better not fight me on this issue or I will

be back with a news crew your choice. she still hates me and it was all about

nose wiping. The less work the staff has the better they like it.

Charlyne

Mom to Zeb 9 DS/OCD ?

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heheeheh, nathan says bess you too, but doesnt wipe his nose, has to be

reminded often to get a kleenex and to try and blow his nose. shawna.

Re: fine motor - writing -horizontal/vertical

I know has mastered the hand-washing issue because I was told

he washes them like if he is preparing for surgery, plus everyone

feels safe eating on what the meal of the day when he is helping in

the kitchen. also does well with wiping his nose, that I can't

remember when that occured but he does have his set backs on needing

to know the next step after sneezing or having a running nose.

Everytime someone sneezes he yells out loud " Bess you " !

Irma, 13,DS/ASD

> I think handwashing is the best goal. It resists

> curriable disseaseases, etc.

>

>

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