Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 this is fantastic - has such courage.! School Hi everyone It has been a while since I have posted anything on the list. But I would like to share with you what is going on with our son and give some hope to parents who have been struggling with their children, specially the nonverbal ones. As you know we were away for a month on vacation and when we got back we had 5 days to be ready for school. Most of you know that I home school my son who is very nonverbal. But this year the Lord provided us with a school who will not only allow me to be his instructor but his shadow as well. It is a private small Christian school and both principal and teacher are wonderful people. His teacher has a multi-grade classroom which include K5 - 2nd grade. is in first grade and the plan was for me to teach him the lesson in a separate room then bring him in to sit with 1st graders for the worksheet and slowly see how he does. Well took us by surprise! His teacher from the beginning, the first week, kept on teaching regardless of his stimming or his behavior. The remaining 17 children had strict instruction not to look at and not to say a word. With her effort and the children ignoring the behavior realized that he did not have a choice; the only thing he can do was sit and obey. I sat with him that first week, signing or writing on a little board what is required of him. The following week the teacher assigned to a reading group. can read silently and answer questions accordingly. But he never had to read aloud to other children. He realized that he was not reading as fast as the other children were and did not want to do it. The teacher simply told him that we will all stay in class and wait till he was done. put in the effort and sounded out the letters and blends. They are choppy but they are coming. The other five 1st graders are cheering him on. The teacher saw in him a bright and an intelligent child and decided to change her schedule to fit 's schedule. So now (with mom) are in the classroom from 8:00 - 1:45. He starts with reading, then handwriting, free time, spelling, recess, math, lunch, recess, and phonics. At home I do heritage or science, and Bible. He takes tests like anybody else and has to turn in his homework like anyone else. We leave school earlier because we go to speech or occupational therapy. The other day I about fell out of my chair when she asked what kind of a word is tomcat and he said very choppy but understood " co - m - poun - d " I had not taught him that but he was listening. We have our days and our ups and downs. The teacher understands that 's problem is a medical not a mental problem. She knows that he wants the easy way out. He was and will still put her to the test. He will misbehave and do whatever to be out of there but she is not going to give in neither will I. I sit next to him, encourage him, repeat instructions if I have too and I make sure he stays on track. We have goals for him and if by the end of this semester he can sit in the class for 25% of the time without mom I will be thrilled. I am so thankful to God for this opportunity and for the improvement I see in my son. I also thank Dr. G for his efforts and for seeing my son for what he is. To all of you moms and dads who are putting in the effort keep it up. is 8 and in 1st grade, a child who we were told will never be able to do anything and is now in a regular classroom. He may be 2 years behind his peers but who said he will not catch up. One day he is just going to say it all. The best for all and for your children Mercy, Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 , what a great story to read this morning---- Original Message ----- From: " Sadka " <psadka@...> < > Sent: Thursday, September 13, 2001 5:57 PM Subject: School > Hi everyone > > It has been a while since I have posted anything on the list. But I > would like to share with you what is going on with our son and give some > hope to parents who have been struggling with their children, specially > the nonverbal ones. > > As you know we were away for a month on vacation and when we got back we > had 5 days to be ready for school. Most of you know that I home school > my son who is very nonverbal. But this year the Lord provided us with a > school who will not only allow me to be his instructor but his shadow as > well. It is a private small Christian school and both principal and > teacher are wonderful people. His teacher has a multi-grade classroom > which include K5 - 2nd grade. is in first grade and the plan was > for me to teach him the lesson in a separate room then bring him in to > sit with 1st graders for the worksheet and slowly see how he does. > > Well took us by surprise! His teacher from the beginning, the > first week, kept on teaching regardless of his stimming or his behavior. > The remaining 17 children had strict instruction not to look at > and not to say a word. With her effort and the children ignoring the > behavior realized that he did not have a choice; the only thing > he can do was sit and obey. I sat with him that first week, signing or > writing on a little board what is required of him. The following week > the teacher assigned to a reading group. can read silently > and answer questions accordingly. But he never had to read aloud to > other children. He realized that he was not reading as fast as the other > children were and did not want to do it. The teacher simply told him > that we will all stay in class and wait till he was done. put in > the effort and sounded out the letters and blends. They are choppy but > they are coming. The other five 1st graders are cheering him on. > > The teacher saw in him a bright and an intelligent child and decided to > change her schedule to fit 's schedule. So now (with mom) > are in the classroom from 8:00 - 1:45. He starts with reading, then > handwriting, free time, spelling, recess, math, lunch, recess, and > phonics. At home I do heritage or science, and Bible. He takes tests > like anybody else and has to turn in his homework like anyone else. We > leave school earlier because we go to speech or occupational therapy. > The other day I about fell out of my chair when she asked what kind of a > word is tomcat and he said very choppy but understood " co - m - poun - > d " I had not taught him that but he was listening. > > We have our days and our ups and downs. The teacher understands that > 's problem is a medical not a mental problem. She knows that he > wants the easy way out. He was and will still put her to the test. He > will misbehave and do whatever to be out of there but she is not going > to give in neither will I. I sit next to him, encourage him, repeat > instructions if I have too and I make sure he stays on track. We have > goals for him and if by the end of this semester he can sit in the class > for 25% of the time without mom I will be thrilled. > > I am so thankful to God for this opportunity and for the improvement I > see in my son. I also thank Dr. G for his efforts and for seeing my son > for what he is. To all of you moms and dads who are putting in the > effort keep it up. is 8 and in 1st grade, a child who we were > told will never be able to do anything and is now in a regular > classroom. He may be 2 years behind his peers but who said he will not > catch up. One day he is just going to say it all. > > The best for all and for your children > Mercy, > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 hai everyone, nice to have such useful mails. I will tell u about my kid. My kid is 3 year old , but highly intelligent . He could learn all alphabets on laptop wihitn 4 dayz and then spellings shapes and so on. But not yet started talking. Does anyone got idea of suchkids , as when canthey get started their talking. Please let me know if anyone have idea.And how can we start speech therapy. bye swapna.v --- Sadka <psadka@...> wrote: > Hi everyone > > It has been a while since I have posted anything on > the list. But I > would like to share with you what is going on with > our son and give some > hope to parents who have been struggling with their > children, specially > the nonverbal ones. > > As you know we were away for a month on vacation and > when we got back we > had 5 days to be ready for school. Most of you know > that I home school > my son who is very nonverbal. But this year the Lord > provided us with a > school who will not only allow me to be his > instructor but his shadow as > well. It is a private small Christian school and > both principal and > teacher are wonderful people. His teacher has a > multi-grade classroom > which include K5 - 2nd grade. is in first > grade and the plan was > for me to teach him the lesson in a separate room > then bring him in to > sit with 1st graders for the worksheet and slowly > see how he does. > > Well took us by surprise! His teacher from > the beginning, the > first week, kept on teaching regardless of his > stimming or his behavior. > The remaining 17 children had strict instruction not > to look at > and not to say a word. With her effort and the > children ignoring the > behavior realized that he did not have a > choice; the only thing > he can do was sit and obey. I sat with him that > first week, signing or > writing on a little board what is required of him. > The following week > the teacher assigned to a reading group. > can read silently > and answer questions accordingly. But he never had > to read aloud to > other children. He realized that he was not reading > as fast as the other > children were and did not want to do it. The teacher > simply told him > that we will all stay in class and wait till he was > done. put in > the effort and sounded out the letters and blends. > They are choppy but > they are coming. The other five 1st graders are > cheering him on. > > The teacher saw in him a bright and an intelligent > child and decided to > change her schedule to fit 's schedule. So now > (with mom) > are in the classroom from 8:00 - 1:45. He starts > with reading, then > handwriting, free time, spelling, recess, math, > lunch, recess, and > phonics. At home I do heritage or science, and > Bible. He takes tests > like anybody else and has to turn in his homework > like anyone else. We > leave school earlier because we go to speech or > occupational therapy. > The other day I about fell out of my chair when she > asked what kind of a > word is tomcat and he said very choppy but > understood " co - m - poun - > d " I had not taught him that but he was listening. > > We have our days and our ups and downs. The teacher > understands that > 's problem is a medical not a mental problem. > She knows that he > wants the easy way out. He was and will still put > her to the test. He > will misbehave and do whatever to be out of there > but she is not going > to give in neither will I. I sit next to him, > encourage him, repeat > instructions if I have too and I make sure he stays > on track. We have > goals for him and if by the end of this semester he > can sit in the class > for 25% of the time without mom I will be thrilled. > > I am so thankful to God for this opportunity and for > the improvement I > see in my son. I also thank Dr. G for his efforts > and for seeing my son > for what he is. To all of you moms and dads who are > putting in the > effort keep it up. is 8 and in 1st grade, a > child who we were > told will never be able to do anything and is now in > a regular > classroom. He may be 2 years behind his peers but > who said he will not > catch up. One day he is just going to say it all. > > The best for all and for your children > Mercy, > > > __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews./fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 In a message dated 2/15/03 1:02:53 PM Central Standard Time, cdavis@... writes: > I just adding my two cents ....We live in Grapevine, TX and my husband grew > up in ,TX Hey, I grew up in -- went to Canyon Creek Elementary. It would be a hoot if we knew each other back then. I'm 41 now -- if he's around my age and went to Canyon Creek, what is his name? My last name was Arnold back then. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 [ ] School Can anyone suggest a way I could check special education programs and public schools in Oregon? I am having a hard time figuring out the county's and how they interpret out of state IEP's etc. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 In a message dated 4/3/03 5:53:35 PM Eastern Daylight Time, boyersc@... writes: > I'm curious about the same questions. My son is also five and will > be starting school in early August. > > Crissi > > > >Hi, My son was just diagnosed with high functioning autism. I am > dealing with figuring out about schooling next year. He will be five > in May. I don't even know what to ask. Where do I start? > I would start by requesting a full evaluation so that you can see what issues he has to deal with - strengths and weaknesses. I would also make my own list and spend time talking with his current teacher. Write down what ways he needs help in the regular school environment. Write down what things they do that work with your son. These are the ideas you can use to formulate a good school plan. Roxanna ô¿ô Autism Happens... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 In a message dated 4/3/2003 5:54:48 PM Eastern Standard Time, boyersc@... writes: Hi: Have both of your children been transitioned through early intervention into the public system? Have they been evaluated through the school department and deemed eligible for special education? Have you had your eligibility meeting yet? Written IEP's? Remember goals need to be written before a program is choosen. Pam > Hi! > > I'm curious about the same questions. My son is also five and will > be starting school in early August. > > Crissi > > > >Hi, My son was just diagnosed with high functioning autism. I am > dealing with figuring out about schooling next year. He will be five > in May. I don't even know what to ask. Where do I start? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 <<<<<< Why does it take soo long? Ugh.> it is really dumb. they go back to school Sept 1st, tehn by the end of Sept there are lots of vacations throughout Ocotber becasue of the High Holidays. so school really starts only after Ocotber and the holidays..... <<<I'm thrilled the judo is working out. I hope our swim class is half as successful tonight.> how was it indeed ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 <<<<<<<Did you find out if the aide can read and write? I hope she turns out to be worthy of the job. And I was not happy to hear that the fish idea was floating belly up. ugh. That was a neat idea too!!. teh aide does know read and write, and today she accompanied him all day, and she needs to learn his ways so she is not pulled by him to play outside instead of studying in the classroom... ;-) but overall it went well today. the head teacher called me at 12 to tell me he was wonderful today and that he is asking to be picked up because , in his words : " I have ran out of efforts for today " . she felt he really made a huge effort and did not mind him going home one hour earlier, while he was still under teh spell of success. I agreed. the fish incident was fixed : the head teacher told the English teacher it was soomething just between the two of them and she shouldn't have mentioned it, the English teacher said she really only meant to encourage him to behave well and that she did not say it out loud (but in his perception she did) and it seems he is still willing to do the effort to earn that damn fish..... I also think the successul judo lesson gave him a feeling he can hold himself well, so today was a good day....... he even wrote in his notebooks! at home, we did some hw (he dictated and I wrote -which was a way to avoid meltdowns, suggested byt the OT and it worked. we were done in 20 minutes instead of hours of stress). I hope it continues well form now on.... F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 I'm SOOOOOOOOO happy that things were much better today for both of you. Barb Uplift <uplift@...> wrote: <<<<<<<Did you find out if the aide can read and write? I hope she turns out to be worthy of the job. And I was not happy to hear that the fish idea was floating belly up. ugh. That was a neat idea too!!. teh aide does know read and write, and today she accompanied him all day, and she needs to learn his ways so she is not pulled by him to play outside instead of studying in the classroom... ;-) but overall it went well today. the head teacher called me at 12 to tell me he was wonderful today and that he is asking to be picked up because , in his words : " I have ran out of efforts for today " . she felt he really made a huge effort and did not mind him going home one hour earlier, while he was still under teh spell of success. I agreed. the fish incident was fixed : the head teacher told the English teacher it was soomething just between the two of them and she shouldn't have mentioned it, the English teacher said she really only meant to encourage him to behave well and that she did not say it out loud (but in his perception she did) and it seems he is still willing to do the effort to earn that damn fish..... I also think the successul judo lesson gave him a feeling he can hold himself well, so today was a good day....... he even wrote in his notebooks! at home, we did some hw (he dictated and I wrote -which was a way to avoid meltdowns, suggested byt the OT and it worked. we were done in 20 minutes instead of hours of stress). I hope it continues well form now on.... F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 > the head teacher called me at 12 to tell me he was wonderful today and that he is asking to be picked up because , in his words : " I have ran out of efforts for today " . she felt he really made a huge effort and did not mind him going home one hour earlier, while he was still under teh spell of success. I agreed. Yes! Baby steps...and I'm so happy he had a successful day! Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 That sounds very promising. Hope it has continued to go well. a > teh aide does know read and write, and today she accompanied him all day, and she needs to learn his ways so she is not pulled by him to play outside instead of studying in the classroom... ;-) but overall it went well today. > the head teacher called me at 12 to tell me he was wonderful today and that he is asking to be picked up because , in his words : " I have ran out of efforts for today " . she felt he really made a huge effort and did not mind him going home one hour earlier, while he was still under teh spell of success. I agreed. > the fish incident was fixed : the head teacher told the English teacher it was soomething just between the two of them and she shouldn't have mentioned it, the English teacher said she really only meant to encourage him to behave well and that she did not say it out loud (but in his perception she did) and it seems he is still willing to do the effort to earn that damn fish..... > I also think the successul judo lesson gave him a feeling he can hold himself well, so today was a good day....... > he even wrote in his notebooks! at home, we did some hw (he dictated and I wrote -which was a way to avoid meltdowns, suggested byt the OT and it worked. we were done in 20 minutes instead of hours of stress). > I hope it continues well form now on.... > > F > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 In a message dated 9/5/03 9:10:16 AM Eastern Daylight Time, rybabysmom@... writes: > > he even wrote in his notebooks! at home, we did some hw (he > dictated and I wrote -which was a way to avoid meltdowns, suggested > byt the OT and it worked. we were done in 20 minutes instead of hours > of stress). > Fania, and I have used that technique for years. He gets way to frustrated trying to get the words fromhis head to the paper and eh also has some motor skills problems (even with OT and PT he holds a pencil in a death grip and writes very slowly - it literally HURTS ). He has had an accomodation for use of a computer for writting assignments as well as for dictation. I type what he says- and he CORRECTS me. His grammar and spelling are better than mine - even if I do type faster.. He's been allowed these same accomodations in college (dictation and note takers). God never gives you more than you can handle; he just has more confidence in me then I have in myself.********* " Do Little Things With Great Love " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 <<<< and I have used that technique for years. He gets way to frustrated trying to get the words fromhis head to the paper and eh also has some motor skills problems (even with OT and PT he holds a pencil in a death grip and writes very slowly - it literally HURTS ).>> sounds teh same, indeed.... F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi, I don't post here often, but I have to make my point! My kids are currently mainstream and in 1st grade has verbal apraxia and on Proefa, but by having twins and in the same grade I feel its their TEACHERS and their STYLE of teaching which makes a huge difference in our childrens grades and knowledge of the subjects. Last year, one kid had a great teacher and is confident and loved school and they other kid had a young not very experienced teacher and he had hated school last year and didn't write very well and was depressed. Well this year that same kid has a wonderful teacher and her learning style and clear and she is consistant on doing math work on mondays, witting on tues, every Friday a test and he loves her and his school and is doing Very Well. The other son who loved school last year now has an older teacher (with no kids of her own) who her teaching style if very unpredictable, and he is coming home saying he is nervous all the time and his self esteem is lacking.... SO, I know our kids do need a little extra help, but I believe a good teacher can make a huge difference in our kids lives...If I could home school them I would, but they are benefiting so much in the " social " department at school which they have to learn how to react to kids who are nice and not so nice, I don't want to " shield " them either. Just have to write my two cents. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 I feel exactly the same way because my son had a different teacher last summer and he loved it-charlotte- mom to josh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 So what? You could do other work there, surely! The tropism for nerves is her whole point...go find Daedalus and read her essay on Nietzsche and his madness and syphilis. She's one of the great minds of this and the last century. She should've won a Lasker or Nobel already. Its a fricken crime. She's obsessed, brilliant, passionate, and tremendously effective. You should go to her, . You're extremely smart. She loves smart people. You could research spirochetes to your heart's content. Yeah, she thinks they're precursors to the eukayrotic cell but ALSO to cilia, sperm and nerves. See--isn't that interesting? Considering their love of nerves, wrapped around nerves etc. Also she did an interesting experiment with blood cells...I forget the details...got them to emit sulphur like thermophilus used to do (her theory that spirochetes didn't like oxygen so hung out with sulfur spewing thermophilus, and the thermiphilus liked having a tail so they could move around, so the two became buddies). And there is some evidence they penetrate blood cells, right? I'm telling you, I spent a few days with her years ago, she has an outsize mind, far far far better than about any other you could get next to. > > ERic, how old are you anyway----you're about to go to college? I > > recall you're doing much better these days after abx etc. > > > > Why don't you go apprenctice yourself to Lynn Margulis? She's a > > genius and works on spirochets (not bb in particular tho). She's at > > Amherst. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 , My twins also have apraxia and dyspraxia. We are seeing Dr. Rossignol in Melbourne, FL. So, far the tests that we have had run show that they are high in mercury (which can cause autism), lead (which can cause dyspraxia) and arsenic. We have not had our follow up appointment to decide on treatment yet. So, I can't offer any help there yet. I highly recommend Dr. Bradstreet or Dr. Rossignol who share a clinic called Creation's Own. Their website is www.icdrc.org We are already seeing good things with some motor planning after starting MB12 shots and treating them for yeast with Nystatin. They have also been on the Specific Carbohydrate Diet for 1 1/2 years. Hope this is helpful. Dana tracymccausland <tracymccausland@...> wrote: Hi all I've been lurking on this board for some time, and I thought I'd ask for some wisdom on a couple of things... Quick background - I have 2 little boys - Callum, age 5, has severe oral and verbal dyspraxia, and has serious challenges physically in terms of fine and gross motor skills. My other boy, Sam, is 17 months and has just been diagnosed with muscular dystrophy. My questions relate to Callum - he is currently in his first year of primary school (we live in N. Ireland). In last yers ed psychology tests he scored very very low - around 68 average on all his tests. Callum has only got a few words and even those get a bit muddled. He has good communication intent, but working with signing, PECS, etc hasn't really helped. Anyhow - he has a very serious processing delay and 'zones out' quite a lot if left to his own devices. Due to this the recommendation last year was to send him to a school for profoundly mentally challenged children. Callum does have significant problems - but the tests dont allow for 1. the fact that he is non verbal and 2. the fact that he has a severe processing delay - THIS DOES NOT MAKE HIM RETATDED!!! He can add, spell and attempt to read, get meaning from words - all within expectation for his age. Anyway - I fought this decision, got a solicitor and local member of parliament (politician) on my side, and we eventually got him a placement at a special unit attached to a mainstream school, where he receives S & L therapy 3 times a week (2 individual and one small group session) and he is in a small class (12 - all boys) and has a part time classroom assistant (deals mainly with physical needs - he is still incontinent despite 2 years of trying to crack this one). So - its that time again - review of his statement of educational need. We have asked the ED Psych to put off their assessment until after Easter, but the rest of his review is going ahead. I got his reports today from his class teacher and his S & L therapist. They make depressing reading. Despite the fact that Callum has made good progress they have mentioned no less than 8 times the fact that he canbt stay on task, has terrible concentration, zones out, cant follow group instructions and has to have everything repeated to him individually, etc. So - a longwinded question ;-) DOES PROCESSING DELAY RUN AS PART OF THIS DISORDER? IS THERE ANY COHERENT EVIDENCE I CAN PRODUCE TO THEM AT THE MEETING TO PROVE THIS AND SHOW THEM THAT HE IS TRYING AND IS NOT THICK??? Question 2 - we are due to come to Florida (Miami and Key Largo) at Easter - I wondered if it would be a good idea to get him tested or see a DAN doctor while we are there - can anyone recommend one in that area?? Sorry I have ranted on - Dana and Garrett, 3 years old SCD 1 1/2 years!!!!! Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Jeff Bradstreet. > > Hi all > I've been lurking on this board for some time, and I thought I'd ask > for some wisdom on a couple of things... > Quick background - I have 2 little boys - Callum, age 5, has severe > oral and verbal dyspraxia, and has serious challenges physically in > terms of fine and gross motor skills. My other boy, Sam, is 17 months > and has just been diagnosed with muscular dystrophy. > My questions relate to Callum - he is currently in his first year of > primary school (we live in N. Ireland). In last yers ed psychology > tests he scored very very low - around 68 average on all his tests. > Callum has only got a few words and even those get a bit muddled. He > has good communication intent, but working with signing, PECS, etc > hasn't really helped. Anyhow - he has a very serious processing delay > and 'zones out' quite a lot if left to his own devices. Due to this > the recommendation last year was to send him to a school for > profoundly mentally challenged children. Callum does have significant > problems - but the tests dont allow for 1. the fact that he is non > verbal and 2. the fact that he has a severe processing delay - THIS > DOES NOT MAKE HIM RETATDED!!! He can add, spell and attempt to read, > get meaning from words - all within expectation for his age. Anyway - > I fought this decision, got a solicitor and local member of > parliament (politician) on my side, and we eventually got him a > placement at a special unit attached to a mainstream school, where he > receives S & L therapy 3 times a week (2 individual and one small group > session) and he is in a small class (12 - all boys) and has a part > time classroom assistant (deals mainly with physical needs - he is > still incontinent despite 2 years of trying to crack this one). > So - its that time again - review of his statement of educational > need. We have asked the ED Psych to put off their assessment until > after Easter, but the rest of his review is going ahead. I got his > reports today from his class teacher and his S & L therapist. They make > depressing reading. Despite the fact that Callum has made good > progress they have mentioned no less than 8 times the fact that he > canbt stay on task, has terrible concentration, zones out, cant > follow group instructions and has to have everything repeated to him > individually, etc. > So - a longwinded question ;-) DOES PROCESSING DELAY RUN AS PART OF > THIS DISORDER? IS THERE ANY COHERENT EVIDENCE I CAN PRODUCE TO THEM > AT THE MEETING TO PROVE THIS AND SHOW THEM THAT HE IS TRYING AND IS > NOT THICK??? > Question 2 - we are due to come to Florida (Miami and Key Largo) at > Easter - I wondered if it would be a good idea to get him tested or > see a DAN doctor while we are there - can anyone recommend one in > that area?? > Sorry I have ranted on - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 i also recommend Dr. Bradstreet and his office. We use them as our DAN doctor. He is very knowledgable and has a great reputation in the industry. He is always a keynote speaker at Autism Conferences and DAN related conferences. Hetal > > Hi all > I've been lurking on this board for some time, and I thought I'd ask > for some wisdom on a couple of things... > Quick background - I have 2 little boys - Callum, age 5, has severe > oral and verbal dyspraxia, and has serious challenges physically in > terms of fine and gross motor skills. My other boy, Sam, is 17 months > and has just been diagnosed with muscular dystrophy. > My questions relate to Callum - he is currently in his first year of > primary school (we live in N. Ireland). In last yers ed psychology > tests he scored very very low - around 68 average on all his tests. > Callum has only got a few words and even those get a bit muddled. He > has good communication intent, but working with signing, PECS, etc > hasn't really helped. Anyhow - he has a very serious processing delay > and 'zones out' quite a lot if left to his own devices. Due to this > the recommendation last year was to send him to a school for > profoundly mentally challenged children. Callum does have significant > problems - but the tests dont allow for 1. the fact that he is non > verbal and 2. the fact that he has a severe processing delay - THIS > DOES NOT MAKE HIM RETATDED!!! He can add, spell and attempt to read, > get meaning from words - all within expectation for his age. Anyway - > I fought this decision, got a solicitor and local member of > parliament (politician) on my side, and we eventually got him a > placement at a special unit attached to a mainstream school, where he > receives S & L therapy 3 times a week (2 individual and one small group > session) and he is in a small class (12 - all boys) and has a part > time classroom assistant (deals mainly with physical needs - he is > still incontinent despite 2 years of trying to crack this one). > So - its that time again - review of his statement of educational > need. We have asked the ED Psych to put off their assessment until > after Easter, but the rest of his review is going ahead. I got his > reports today from his class teacher and his S & L therapist. They make > depressing reading. Despite the fact that Callum has made good > progress they have mentioned no less than 8 times the fact that he > canbt stay on task, has terrible concentration, zones out, cant > follow group instructions and has to have everything repeated to him > individually, etc. > So - a longwinded question ;-) DOES PROCESSING DELAY RUN AS PART OF > THIS DISORDER? IS THERE ANY COHERENT EVIDENCE I CAN PRODUCE TO THEM > AT THE MEETING TO PROVE THIS AND SHOW THEM THAT HE IS TRYING AND IS > NOT THICK??? > Question 2 - we are due to come to Florida (Miami and Key Largo) at > Easter - I wondered if it would be a good idea to get him tested or > see a DAN doctor while we are there - can anyone recommend one in > that area?? > Sorry I have ranted on - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Our DAN currently sees Tyler every six weeks, so I'm not sure one appointment would be what you are looking for. However, there are some that might be willing to do future consultations over the phone, but I couldn't make a recommendation for you. (I'm in New Jersey.) They could at least order the initial labs for you while you are here. Regarding your argument with the school, that's a tough one. You need to demand a cognitive assessment that is not language-based, but if he has big auditory issues he might score badly due to receptive language issues anyway. While fighting for appropriate services, I would suggest that you try working on the processing issues at home. Since you've been lurking, you know that some of us see the NACD home programs, and some use The Listening Program, etc. You might want to check out the www.nacd.org site to see if they come to Ireland as one of their international locations. Good luck with fight! in NJ (but I am part Irish!) > > Hi all > I've been lurking on this board for some time, and I thought I'd ask > for some wisdom on a couple of things... > Quick background - I have 2 little boys - Callum, age 5, has severe > oral and verbal dyspraxia, and has serious challenges physically in > terms of fine and gross motor skills. My other boy, Sam, is 17 months > and has just been diagnosed with muscular dystrophy. > My questions relate to Callum - he is currently in his first year of > primary school (we live in N. Ireland). In last yers ed psychology > tests he scored very very low - around 68 average on all his tests. > Callum has only got a few words and even those get a bit muddled. He > has good communication intent, but working with signing, PECS, etc > hasn't really helped. Anyhow - he has a very serious processing delay > and 'zones out' quite a lot if left to his own devices. Due to this > the recommendation last year was to send him to a school for > profoundly mentally challenged children. Callum does have significant > problems - but the tests dont allow for 1. the fact that he is non > verbal and 2. the fact that he has a severe processing delay - THIS > DOES NOT MAKE HIM RETATDED!!! He can add, spell and attempt to read, > get meaning from words - all within expectation for his age. Anyway - > I fought this decision, got a solicitor and local member of > parliament (politician) on my side, and we eventually got him a > placement at a special unit attached to a mainstream school, where he > receives S & L therapy 3 times a week (2 individual and one small group > session) and he is in a small class (12 - all boys) and has a part > time classroom assistant (deals mainly with physical needs - he is > still incontinent despite 2 years of trying to crack this one). > So - its that time again - review of his statement of educational > need. We have asked the ED Psych to put off their assessment until > after Easter, but the rest of his review is going ahead. I got his > reports today from his class teacher and his S & L therapist. They make > depressing reading. Despite the fact that Callum has made good > progress they have mentioned no less than 8 times the fact that he > canbt stay on task, has terrible concentration, zones out, cant > follow group instructions and has to have everything repeated to him > individually, etc. > So - a longwinded question ;-) DOES PROCESSING DELAY RUN AS PART OF > THIS DISORDER? IS THERE ANY COHERENT EVIDENCE I CAN PRODUCE TO THEM > AT THE MEETING TO PROVE THIS AND SHOW THEM THAT HE IS TRYING AND IS > NOT THICK??? > Question 2 - we are due to come to Florida (Miami and Key Largo) at > Easter - I wondered if it would be a good idea to get him tested or > see a DAN doctor while we are there - can anyone recommend one in > that area?? > Sorry I have ranted on - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 , I can almost guarantee you that what you are seeing in Callum is auditory processing issues with regards to following instructions, staying on task and having everything repeated to him over and over again is sooooo indicative of Auditory processing. It seems as though a ton of our kids have this issue. This requires therapy to get rid of but diet can help because the first thing you need to do is to find out which foods he is having terrible reactions to. , can I post your message to the Gulf Coast Biomedical Autism Group? I belong to it though I live way up North in Canada.... one of our 'experts' on this board used to live in the Gulf Coast and I joined that group to listen to the collective wisdom of the moms in the warmer climates. At any rate, it is those moms who would know of the best Florida DANS. You need to get on a wait list right away since it can take about 3 months to get seen. In addition, look to see if you can find anybody who specializes in Environmental Medicine. I know you are in England as I am in Canada and our public health system does not 'encourage' DAN doctors as they bill outside of the medical system. I did read of someone who had their child seen at a hospital in London and I just cannot remember the name...... At any rate, you need to try to find someone local if you can. Begin by asking questions of the moms in the local 'special' ed. classes and playgroups. That is how I found my environmental doctor and he is wonderful. You need someone who has a lot of experience working with children. Perhaps you could post a query to Dr. Wakefield at Thoughtful House as to whom you could see in England for your childs GI issues as he used to practice there. Ideas for little Callum.... Anyone? I make the Forest Gump joke but really, I did feel like Sally Fields taking the old teacher out and 'sweet-talking' him/her/the finance committee out of consigning my child to the MR special education room! When you have a child who cannot speak well, they are often at the mercy of a 'kind' person within the system. I would have been home schooling for sure.... You need to get a handle on Callums bowels. This is really, really important. You will see much better global function once you get this under control. I would go completely GFCFSF and work with a naturopath or holistic doctor (they must have those....) to ferrit out the items that are affecting his bowel function. Have you seen a GI doctor? That is definately a must. Callum has been dealing with this for far too long and this has to be #1 priority. I am not the diet guru on this board since we actually got off pretty light with Mark's diet. There have to be some 'old-hands' that really know how to help this child with perpetual bowel problems. I would also consider getting metals testing for Callum; you can do this yourself. Anyone remember the name of the French Labratory that does the porphorin testing? I am so glad you made it on this board . This is the place where the kids are getting better rather than just making it through the day and 'surviving'! Welcome to our crazy gang of mother warriors. Janice PS. Be prepared to do a lot of research..... [sPAM]Re: [ ] School , My twins also have apraxia and dyspraxia. We are seeing Dr. Rossignol in Melbourne, FL. So, far the tests that we have had run show that they are high in mercury (which can cause autism), lead (which can cause dyspraxia) and arsenic. We have not had our follow up appointment to decide on treatment yet. So, I can't offer any help there yet. I highly recommend Dr. Bradstreet or Dr. Rossignol who share a clinic called Creation's Own. Their website is www.icdrc.org We are already seeing good things with some motor planning after starting MB12 shots and treating them for yeast with Nystatin. They have also been on the Specific Carbohydrate Diet for 1 1/2 years. Hope this is helpful. Dana tracymccausland <tracymccausland@...> wrote: Hi all I've been lurking on this board for some time, and I thought I'd ask for some wisdom on a couple of things... Quick background - I have 2 little boys - Callum, age 5, has severe oral and verbal dyspraxia, and has serious challenges physically in terms of fine and gross motor skills. My other boy, Sam, is 17 months and has just been diagnosed with muscular dystrophy. My questions relate to Callum - he is currently in his first year of primary school (we live in N. Ireland). In last yers ed psychology tests he scored very very low - around 68 average on all his tests. Callum has only got a few words and even those get a bit muddled. He has good communication intent, but working with signing, PECS, etc hasn't really helped. Anyhow - he has a very serious processing delay and 'zones out' quite a lot if left to his own devices. Due to this the recommendation last year was to send him to a school for profoundly mentally challenged children. Callum does have significant problems - but the tests dont allow for 1. the fact that he is non verbal and 2. the fact that he has a severe processing delay - THIS DOES NOT MAKE HIM RETATDED!!! He can add, spell and attempt to read, get meaning from words - all within expectation for his age. Anyway - I fought this decision, got a solicitor and local member of parliament (politician) on my side, and we eventually got him a placement at a special unit attached to a mainstream school, where he receives S & L therapy 3 times a week (2 individual and one small group session) and he is in a small class (12 - all boys) and has a part time classroom assistant (deals mainly with physical needs - he is still incontinent despite 2 years of trying to crack this one). So - its that time again - review of his statement of educational need. We have asked the ED Psych to put off their assessment until after Easter, but the rest of his review is going ahead. I got his reports today from his class teacher and his S & L therapist. They make depressing reading. Despite the fact that Callum has made good progress they have mentioned no less than 8 times the fact that he canbt stay on task, has terrible concentration, zones out, cant follow group instructions and has to have everything repeated to him individually, etc. So - a longwinded question ;-) DOES PROCESSING DELAY RUN AS PART OF THIS DISORDER? IS THERE ANY COHERENT EVIDENCE I CAN PRODUCE TO THEM AT THE MEETING TO PROVE THIS AND SHOW THEM THAT HE IS TRYING AND IS NOT THICK??? Question 2 - we are due to come to Florida (Miami and Key Largo) at Easter - I wondered if it would be a good idea to get him tested or see a DAN doctor while we are there - can anyone recommend one in that area?? Sorry I have ranted on - Dana and Garrett, 3 years old SCD 1 1/2 years!!!!! Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. 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Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Many would do the phone thing. If you come up short email me as I know of at least one I'd trust. > > Our DAN currently sees Tyler every six weeks, so I'm not sure one > appointment would be what you are looking for. However, there are > some that might be willing to do future consultations over the phone, > but I couldn't make a recommendation for you. (I'm in New Jersey.) > They could at least order the initial labs for you while you are here. > > Regarding your argument with the school, that's a tough one. You > need to demand a cognitive assessment that is not language-based, but > if he has big auditory issues he might score badly due to receptive > language issues anyway. While fighting for appropriate services, I > would suggest that you try working on the processing issues at home. > Since you've been lurking, you know that some of us see the NACD home > programs, and some use The Listening Program, etc. You might want to > check out the www.nacd.org site to see if they come to Ireland as one > of their international locations. > > Good luck with fight! > in NJ (but I am part Irish!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Hi all I agree that callum has auditory processing disorder - the paed will tell me off for self-diagnosing again, but I believe thats whet he has. So far to try to address this we've done the following: When he was 3 we took him to Scotland for 2 x 3 week blocks of Tomatis therapy (like the Listening Programme i think?). We saw no real improvement from this except perhaps in oimproved balance. We repeated the programme in Dublin this time, at a ridiculous cost I have to add!! Our kids dont come cheap! We did 3 weeks at the start of last summer, another 2 weeks end August and a further 2 weeks in october. I have to say we saw absolutely NO difference. We havs also been doing neuro-developmental therapy with him - I think similar to some of the NACD stuff - moving in and out of slow positions in an attempt to eliminate the primary reflexes and replace them with the ones he needs - we have been doing this since last summer - and agin its made no difference. Diet - we eliminated milk just over a year ago and that may have helped a little, but not a really discernable change. Havent gone GFCF yet... We saw a GI specialist here last year and he put Callum on awful medication (Movicol) which was not the solution I wanted - it made things worse as he was having constipation one day then would do 6 dribbly poohs in his pants the next - school were at the end of their patience with him... We have seen a naturopath and she suggested the enzymes and probiotics and they have helped much more than the medication ever did. He still needs suppositories approx once every 2 weeks. He has a healthy well balanced diet with everything cooked fresh and only organic meat and veg. he has a reasonable appetite. When he is backed up he presents like a profoundly autistic child. When he is not backed up he is much better. We always try to ensure that if he has an assessment he is well cleared out. If he is not they chuck him on the autism pile...I sometimes think they are on a bonus for every child they diagnose autistic! I have ordered the testing kits from Great Plains Laboratory - I think thats the first step. But what then?? How do I fix this auditory processing disorder? How do I fix the gut issues? Maybe both of those could take us a few steps in the right direction??? Whats my action plan? Get the testing done, see a DAN doctor? Do the diet? Am a bit overwhelmed - I am also still trying to get my head round the fact that I can do nothing to help my 17 month old with this awful diagnosis of Muscular Dystrophy... Feeling very very fragile. PS - We are taking Callum to the Kendall S & L centre in Miami for a week at Easter for them to assess him. They do PROMPT and lots of other therapies. If they feel they can help we are planning to be there for 6 weeks in the summer. I hope it helps as this will literally put us on our knees financially... T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Dana, Can you please elaborate on the lead-dyspraxia connection? Do you have some research you can point me towards? I am in no way challenging the assertion, I'm just very interested and would like to learn much more. Thanks for mentioning this. > So, far the tests that we have had run show that they are high in mercury (which can cause autism), lead (which can cause dyspraxia) and arsenic. > Quote Link to comment Share on other sites More sharing options...
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