Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 I talked with Dr. G about a year ago about HBOT; he advised against it, due to the possibility of it resulting in the activation of latent viruses---(I'm pretty sure this is accurate recall) Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 There has been some very interesting research done on that. One caution I've heard though is that sometimes blood flow is restricted to the brain due to some harmful substance in the body (viral? toxin?) so the body is protecting the brain as it tries to heal. I do know of a few cases of worsening on HBOT, possibly due to this reason. I also know of several cases of improvement and a few where nothing was seen. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hi , I think this was discussed on the list not too long ago, and it was considered dangerous for our children. I can't remember why though. HBOT > I recently went to a presentation on Hyperbaric Oxygen Treatment. It > is being used to treat patients with Cerebal Palsy, Fibromyalgia, MS, > Stroke, Tramatic Brain Injury, Autism, and more. The information and > stories told were compeling! > While I look at all medical approaches to autism with an eye of > skepticism, this one struck me as somehow related to the reasons the > protocol is effective. HBOT treatment increases oxygen and > blood flow to damaged/ low functioning areas of the brain. > The protocol is achieveing this same goal as proven on a neuro > spect. > Has anyone used this treatment? Does anyone know where Dr. Goldberg > stands on this treatment? I know it is not likely he will approve of > it. It's FDA approved, but not yet a standard treatment for autism. > > Thanks for any feedback. > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Yes . I must say it is an interesting concept. It was introduced to me in a discussion we had at a dinner with some parents interested in the protocol. The discussion of Neurospects lead one person in the group bring Neurospects of peoples brains who had undergone HBOT. It so happened this person was a trained deep sea diver, and knew the technique as relevant to de-pressurising etc. I checked with Dr Goldberg, who is familiar with the process ( " that group in Florida " or words to that effect were his remarks). While it looks compelling on the surface, Dr Goldberg's biggest concerns were the potential to " over oxygenate " in areas of the brain in NIDs kids that show up with " over perfusion " in some areas - the " white " areas on a neurspect - and this could in fact " burn out " cells - literally 'fry " those areas. The thing that strikes me about the technique is that once the procedure is over, then the brain would somewhat return to where it was - ie the effects of the treatment are not constant and blood and oxygenation flow increases would reverse again! But still worth keep an eye on as it may be a technique that does find itself more readily available RW HBOT I recently went to a presentation on Hyperbaric Oxygen Treatment. It is being used to treat patients with Cerebal Palsy, Fibromyalgia, MS, Stroke, Tramatic Brain Injury, Autism, and more. The information and stories told were compeling! While I look at all medical approaches to autism with an eye of skepticism, this one struck me as somehow related to the reasons the protocol is effective. HBOT treatment increases oxygen and blood flow to damaged/ low functioning areas of the brain. The protocol is achieveing this same goal as proven on a neuro spect. Has anyone used this treatment? Does anyone know where Dr. Goldberg stands on this treatment? I know it is not likely he will approve of it. It's FDA approved, but not yet a standard treatment for autism. Thanks for any feedback. Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 I don't know what Dr. Goldberg will say about Hyperbaric Oxygen treatment, but his treatments are also FDA-approved, but also not standard treatments for autism (since autism isn't considered " medical " ), so I don't think that would be a factor in his forming an opinion -- I think mostly he is concerned about safety to the child. I'd be very interested in what he has to say. Donna HBOT I recently went to a presentation on Hyperbaric Oxygen Treatment. It is being used to treat patients with Cerebal Palsy, Fibromyalgia, MS, Stroke, Tramatic Brain Injury, Autism, and more. The information and stories told were compeling! While I look at all medical approaches to autism with an eye of skepticism, this one struck me as somehow related to the reasons the protocol is effective. HBOT treatment increases oxygen and blood flow to damaged/ low functioning areas of the brain. The protocol is achieveing this same goal as proven on a neuro spect. Has anyone used this treatment? Does anyone know where Dr. Goldberg stands on this treatment? I know it is not likely he will approve of it. It's FDA approved, but not yet a standard treatment for autism. Thanks for any feedback. Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 Hi Jill, If this poster is willing, I would love it if she'd provide us with the 'down and dirty' of her progress, the same information I expect to be given in support of any and all such claims, for any treatment, conventional or alternative: 1) Symptoms and objective findings prior to successful treatment 2) Previous treatment history and response 3) Nature and duration of successful treatment 4) Changes in symptoms and objective findings (in neuroLyme, 'objective findings' include cognitive scores) 5) Current status in relation to pre-treatment status, eg, percentage improvement 6) How long have improvements been retained since treatment was discontinued? Note that question 6 eliminates virtually everyone who claims to have been 'cured' by the Unnameable Protocol. This might sound like an unreasonable burden, but I've seen people answer all six questions in less than a page of text. Answering any of them is helpful, not just for establishing the reality of a successful treatment but in alerting us to commonalities or differences with the health status of the person who benefitted. It's the absence of such information that makes a very emphatic endorsement of anything sound badly skewed to me. Cheers, > > Hi jen, > > I have not posted for a while but I was reading back on my old posts > and decided to update you as to my research this past year. > > I worked at a Hyperbaric center for a year. Got my certification and > purchased a sechrist 2500. The chamber has been a blessing for me and > for my husband. We both dive every other day. I also dive a local > lymie who has had great neurological improvement. > > I have noticed that for the most part patients herx about the 8th to > 10th treatment. I have had patients who choose to dive and continue > Abx treatment and I have also had patients who chose the only HBO > approach. > > I noticed that the patients who take the " only HBO " approach seem to > take longer to achieve wellness. However, they have less side effects > associated with Abx toxicity. > > It seems that the more treatments the longer the recovery phase. And > for the most part the patients that I interviewed with extensive > history of hyperbaric therapy seem to agree that they plateau at a > better place then before the HBO therapy. In comparison to prior > relapses on Abx only. > > I wanted to thank you for the links they came in handy ( June 2004) > And apologize for not getting back to you sooner. > > Sudylo RN CHT > > 2) Here is Melody's email to me. She is on lymestrategies. SHe and > hubby also have lyme. She has only done one hbot session: > > From: melodyrae@e... > jenbooks13@h... > Sent: Friday, April 29, 2005 3:29 PM > Subject: Wow! Thanks! > > > Hi, Jill. I hope you are better today and that you are seeing some > positive results from the CS. > > My husband Ed and I met Lance at Dr. B's office yesterday and I > had a one hour demo of mHBOT. I felt so much better afterward! We > are thinking of buying the larger unit. > > Hope you are feeling better! > Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 her email that she wrote me from is BOEJR@... so just write her... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2010 Report Share Posted February 26, 2010 comment from moderator: I don't have experience with this organization and I haven't contacted them for verification if anyone has had experience with this organization I would appreciate your feedback, send to n at: dmhelmick7@... ps I'm allowing this post for you if you want to check it out, but you'll have to research it. I will look into the organization at a later date. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Re: Miracle Mountain HBOT sessions I would like to add that although Miracle Mountain operates almost at cost, if there is someone who cannot come because of additonal expenses like groceries while you are here and if that will keep your child from getting hbot, contact me personally and I will personally provide groceries or whatever it takes to help you get hbot for your child. We operate so closely at MM that I will do it out of my own pocket and it will be confidential. Contact me personally at rhartsoe@... and I'll try to help you in anyway possible. Hartsoe wrote: > > This is to let everyone know about our new scheduling for the 2010 > season at Children's Hyperbaric Center in Miracle Mountain. We will > not be doing the special April Session because of the family deaths we > have had and we will be staying in Florida until the May session. > However, we will be offering your choice of 1.5 or 1.75 ATA. Since we > have a mulitplace chamber, if we only have 2 or 3 people wanting to do > 1.5 then we may do all the sessions at 1.75 ATA. If you are applying > for an autistic child, we highly recommend doing the 1.75 session. And > we may go to 1.75 for everyone. That is the pressure we are having the > most success with for autism and it works great for cp and other neuro > injuries. We will be closing after the Oct. session before > Thanksgiving, which means we will only be doing 6 sessions this year and > probably in the future years. However, we have increased our capacity > and can take more clients for each session. It would be highly > advisable to book early as we already have clients booking for many of > the 6 sessions. Our schedule will be as follows: > *May 2- May 25* > *June 6-June 29* > *July 11-August 3* > *August 15-Sept. 7* > *Sept. 19-October 12* > *Oct. 24- Nov. 16 > > The new rates will be $2800 and this will include up to 40 sessions of > hbot with 100% oxygen, A full session of our Sound Harmonics program > (which is required with autism). This program is also known as AIT and > is a very important and successful program. It includes the use of > our Patterning equipment. Very important is the fact we include > free housing. Since our housing usually is at full capacity, if we run > out of housing, we give you a $300 credit towards local housing which is > available. We normally have housing for the first 10 clients and all > our housing includes free WiFi, Satellite TV and phone, along with full > kitchen and laundry facilities along with a private bath. > > We are excited about our improvements and look forward to seeing > everyone this summer. Our rates are the lowest anywhere, including > Canada. We are aiming all our efforts at those who will not be able to > otherwise afford hbot. > > You may call 336-385-1775 for info, or you may email hbot@... > <mailto:hbot%40skybest.com> > and we will call you and send a registration packet. We have enjoyed > serving you for over 10 years and have provided well over 20,000 HBOT > treatments with wonderful success. > You can see several videos on HBOT at our website, www.miraclemountain.org > > Hartsoe, Director > Alice Todd, Administrator > Michele Acquin, Asst. Administrator Quote Link to comment Share on other sites More sharing options...
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