Need Some Advice

July 1, 2004

,

I also had the thought while reading your post that many people only

wish their greatest concern about vacation was the decision of

whether to rent a house or a condo. Sounds as though you husband is

a lucky man to have you. I think one of the other that responded to

you may be right about men and their reactions to things they can't

control. Your being the major bread winner and ill at the same time

is probably an emotional and psychological overload for you husband.

I am sure that if you can make him see this illness as a real thing

he will come around to realizing that you need his help.

But that is all a side note really. The main reason I am writing you

is to suggest that you have your thyroid check. Shortness of breath

is actually a symptom of thyroid problems. And there is a type of

autoimmune thyroid disease that could be reacting to your PA or visa

versa.

Pamela

July 1, 2004

Dear Fran, I have learned from the best...YOU!!! I have shared those tips with

so many people and they seem to impact everyone I know that reads them. Belated

birthday wishes, and may I say, I am delighted you had some quality time with

your girls!!

be well Fran...

love

annie and the pugherd

July 1, 2004

In a message dated 7/1/2004 5:48:39 AM Eastern Standard Time,

heatherfitz@... writes:

Finally, I started with my first injections of Enbrel

yesterday...keep you fingers crossed!

,

by the way, love the name. It is my daughter's name. Good luck with the

enbrel. Most people are very happy with it. I am taking Humira and it is

helping somewhat. You sound like you have great job. What type of work do

you

do? Hopefully your husband will come around. I used to forward my husband

some postings for this board that I thought would help him make things sink

in more.

Janet

July 2, 2004

Dear Annie, Thank you for the kind words. I wish I could take credit for

the chronic pain tips, but I only found them one night on the Internet and

there was no author listed. I'm glad they have helped you and when I re

read them I'm always amazed at how many of them relate to me that day.

Thanks for the birthday wishes and it was a great day for me. I'm trying my

best to get well and it helps finding the courage to go on from all of you

in this group. Love, Fran

Re: [ ] need some advice

Dear Fran, I have learned from the best...YOU!!! I have shared those tips

with so many people and they seem to impact everyone I know that reads them.

Belated birthday wishes, and may I say, I am delighted you had some quality

time with your girls!!

be well Fran...

love

annie and the pugherd

[

July 2, 2004

It's ironic actually...I work in pharmacutical research (Market not

lab). I rarely tell the physicians this since I have found that

they then either think I am trying to second guess them or talk way

over my head. Unfortunatly, I also get to hear first hand what the

docs think of various drugs - sometimes things they would never tell

us as a patient.

>

> In a message dated 7/1/2004 5:48:39 AM Eastern Standard Time,

> heatherfitz@r... writes:

>

> Finally, I started with my first injections of Enbrel

> yesterday...keep you fingers crossed!

>

> ,

>

> by the way, love the name. It is my daughter's name. Good luck

with the

> enbrel. Most people are very happy with it. I am taking Humira

and it is

> helping somewhat. You sound like you have great job. What type

of work do you

> do? Hopefully your husband will come around. I used to forward

my husband

> some postings for this board that I thought would help him make

things sink

> in more.

> Janet

>

August 1, 2004

I am not sure if it is always the case but in Spanish soy is soya.

> My 6 year old daughter has been on ZP, AFP & NF for 5 weeks now,

> apart from her being a little hyper during the day (I give her

epsom

> salts in a cream for this) I have not seen any improvement in her

> behaviour. I wonder if I am doing something wrong, or the enzymes

> are not the correct ones for her. I give her mostly the ZP & NF

> because she is a big organic rice milk drinker. She hardly eats

but

> what she does, I have it covered with the ZP, AFP & NF. I give her

> one capsule each of ZP & NF with her organic rice milk (on your

> advice). When she does eat food I give her just capsule of each.

>

> My daughter had the PICA test done and was found to have high lead

> and low iron. I give her SNT, Zinc, Vit's C & E, Calcium, Bio Kult

> (Probiotic) & Eye-Q (fish oil)and TMG. I also rub Epsom Salts on

> her 3-4 x per day. Her night sleeping has improved (she often woke

> up several times during the night, or woke up at 3am and stayed

away

> for the rest of the night). Unfortunately she is still eating non-

> food items (she especially likes the cement between bricks!!).

>

> I can honestly say, that behaviour wise she has not changed -

except

> she appears more hyper during the day light hours. She isn't

> talking anymore then she used to, and she is still head banging.

> She hasn't had any bad reactions to the enzymes though, (no stomach

> pains or terrible poop). As far as i know she has never suffered

> with yeast/bacteria, never really been on antibiotics (just

> occasionally maybe once a year if that). No ear infections. In

> fact she is pretty much in good health considering she hardly eats,

> and gets alot of non-food items in her system.

>

> Finally, I have just started to use non-fluoride toothpaste

(started

> 2 days ago) and I have started to give her filtered water (again 2

> days ago). She isn't on the gf/cf diet or any other diet because

> she hardly eats (smells everything, before it even goes into her

> mouth......if it ever gets into her mouth!!!).

>

> Can you tell me also, is soy the same as soya? (We don't use this

> product, but have noticed it alot and wondered if soy is also known

> as soya).

August 1, 2004

> My 6 year old daughter has been on ZP, AFP & NF for 5 weeks now,

> apart from her being a little hyper during the day (I give her epsom

> salts in a cream for this) I have not seen any improvement in her

> behaviour.

For my son, the enzymes did not address all foods. You might have

that same problem with your child.

> because she is a big organic rice milk drinker.

My son did not tolerate rice, even with enzymes. Try removing it [yes

I know, probably not an easy thing to do].

> My daughter had the PICA test done and was found to have high lead

> and low iron. I give her SNT, Zinc, Vit's C & E, Calcium, Bio Kult

> (Probiotic) & Eye-Q (fish oil)and TMG.

SNT is notorious for causing eating problems. Try removing it, or at

least reducing it to about 1/4 what you are currently giving her.

>>Unfortunately she is still eating non-

> food items (she especially likes the cement between bricks!!).

This can be zinc deficiency, but for my #3, it meant he was eating a

food or supplement he did not tolerate, or he had a yeast issue.

> I can honestly say, that behaviour wise she has not changed - except

> she appears more hyper during the day light hours.

Rice made my son very hyper and stimmy, even with enzymes. My son did

not tolerate artificials, rice, corn, and luteins, even with enzymes.

Good luck.

Dana

October 11, 2004

Dear Annie, Well I have the guttate form of psoriasis, at least my

rheumatologist says I do. (I've seen two dermatologists who have told me it

is a rare form of skin damage. Personally, I believe my arthritis doctor

since I have every other sign of it pointing to PA.

Anyway, normally my spots are about the size of a cigarette burn. Some are

smaller and very few are larger. I have had them fill with fluid only once,

thank goodness. They didn't change color, but did get really red...since

they are normally red I didn't think that was a big deal. They would itch

and hurt at the same time and when they did drain it normally was a clear

fluid.

It drove me nuts and like I said has only happened one time.

If yours doesn't go away or continues to drain, I would go to the doctor and

get it checked out. I was really ready to go with my situation and it

basically just seemed to clear up on it's own. With all the stories of skin

cancer, it's really important to rule everything out. I'm sure it's only

bad PA, but this way you don't or won't have to worry.

Well I'd say, I know what you are going through, but every one is different.

So I won't Just go to the doctor, the dermatologist just love to hear about

rashes and things like that...lol. Take care and I hope you are feeling

better. Love, Fran

[ ] need some advice

Hello, usually a lurker here, but I have a question..kind of an

indelicate one!! sorry in advance!

I have basic plaque P on my knees and elbows and a little on my

back, and scalp, but I also have the kind that comes up as a bump on

my skin with a little head to it...not sure if that makes it Guttate

or Pustular. Anyway, got a couple of these all in the same area. It

was sooooooo sore! I am used to the first eruption day being sore,

then the the " head " breaks open, relieves the pressure and all it

goes away in a few days. HOWEVER, this time I have had a bit more of

an issue. Apparantly there were 3-4 of these in one area. The small

lumps looked like they were turning black and blue under my skin.

Finally I put a hot wash rag on the area, needless to say, the

draining began. I will NOT describe it!!!

Has anybody ever had anything like this??? I feel like I am turning

into a freak of nature.

Any advice would be most appreciated.

thanks

annie and the pugherd

October 11, 2004

Dear Annie,

Not sure if this helps and I've refrained from writing because I'm not sure it's

the same ~ and I don't recall much of the technical stuff, but it sounds soooo

similar...

My daughter (a few years back) suffered from something very similar. It started

in her armpits and by the time we finally figured out what to do, it was all

down her sides and on her arms and legs. It would get better in the winter

(very dry here) and much worse in the summer.

She had bumps that almost looked like pimples, but the liquid was clear and she

would often get a red circle around the bumps the size of a quarter or bigger

sometimes ~ and it semed they would mutliply in a certain area.

Anyway, the diagnosis finally was a form of infected acne, but this form isn't

the same as what is on the face, but they used the same medicine I had for acne

(I'm one of those lucky 41 year olds that still get cystic acne now and then ~

especailly now ~ seems tied either to the med's or the PA), anyway, it cleared

it up within a week or so!

Good Luck....

From: pugbunch13 [mailto:annie@...]

Sent: Monday, October 11, 2004 2:55 PM

Subject: [ ] need some advice