Need Some Advice

[Guest guest]

Tinea does not survive ozonate olive oil, sold here as Natures's

Gift. Use very little; it works literally in days:

http://aloeessence.com

Duncan

>

> I have been fighting tinea corporis ( on my torso - started on my

bra

> line below my breasts) since 2002 right before I became pregnant

with

> my first daughter. It grew steadily and at its worst it had spread

> from my neck down my sternum, around my boobs, up to my armpits and

> around my back. After my second daughter was born in 2006, it

started

> around my crotch area. Soon after that it started to grow on the

> bottoms of my feet.

>

> Just in the last 6 months, I seemed to have gotten rid of it from my

> torso with medication prescribed by a dermatologist. But it came

back

> again around my crotch or inner thigh, but it's still going full

force

> on my feet. I have taken about 4 different oral prescriptions and 3

> cream prescriptions. None of them put a dent on the infection on my

> feet. It has spread thru the entire bottom of my feet and is now

> crawling up the sides of my feel and onto my toes. Thankfully, not

on

> my nails ...yet.

>

> I have been to a pediatrist 4 times and he has take cultures which

> have shown zero fungal growth ( that means nothing to me either ),

and

> I've been to a dermatologist who said it was psoriasis (He's wrong).

>

> But this is out of control! It's started growing on the palms of my

> hands this month as well. At my last podiatrist visit, I was

> prescribed 2 weeks of vfend. I can tell the doctor is about to give

up

> because he suggested I go see an allergist / infectious disease

> specialist.

>

> Has anybody got any information for me. I am really at a loss here.

>

[Guest guest]

   We just recently brought our 2 1/2 year old son (moderate apraxia and mild

PDD-NOS) to a homeopathic physician, and we also have appts with 2 different DAN

drs coming up (one in Dec who my autistic/apraxic nephew sees, and another one

in May).  My experience is that homeopathy can often be done in combination with

some of the DAN protocols, as long as both drs approve of each other's

methods/procedures going forward, and both are fully aware of everything your

son is taking in regards to any remedies, supplements, etc that the dr(s) put

him on (at least that seemed to be the thoughts of the DAN dr who treats my

nephew).  But one thing I would suggest that it might be helpful to start with

one approach, and wait just a little bit to see how he does with that, and then

add in the next one.

I certainly don't have as much experience as some of the other parents on the

board have with the DAN drs, but I figured I'd share our family's experiences.

I'm sure many more moms/dads will be able to share more insights, which I also

look forward to hearing. All the best!!! :-)

From: haydeegonz <haydeegonz@...>

Subject: [ ] Need Some Advice

Date: Tuesday, November 4, 2008, 10:27 AM

Hi! My name is Haydee and my son is apraxic. He is 5 years old and in

regular school. I was reading everybobies post on homeopathic Dr. and

Dan Dr. My question is do you go to both or just one? Which one is

better? I have found Dr in my area for both types but I don't know

wich one to go to. If anyone can answer my question please do.

Thank you

Haydee

[Guest guest]

I have been told over and over again that chemo is a neurotoxin that will make

CMT worse. Vincristine is listed first on the medical alert for CMT. The CMTers

that I have know with cancer have opted for radiation therapy.

_Medical Alert_ (http://www.charcot-marie-tooth.org/med_alert.php)

May God Bless You

[Guest guest]

Kristy,

So sorry to hear about your lung cancer. Yes, medications for it can make CMT

worse. Look in our Files for the Medications Alert folder, and the Medical Alert

folder for the recent 2008/09 updates.

Gretchen

[Guest guest]

Hi Kristy,

I meant to post this list for you yesterday. Sorry for the delay.

Gretchen

Chemotherapy Agents

Adriamycin

Bertezomib (Velcade)

Chloramphenicol

Cisplatinum (all Platinum analogs)

Doxorubicin

Etoposide (VP-16)

Ifosfamide Nitrous

Oxide (N2O)

Interferon-a

Chemotherapy Agents (Contd.)

Misomidazole adjunct to radiation therapy(Metronidazole)

Suramin

Taxol (Paclitaxel, docetaxel)

Thalidomide

Vincristine (all Vinca alkaloids)

[Guest guest]

If babies have a lot of growth it is not unheard of to outgrow the band in 10

wks. Particularly docbands since they have slightly less foam. However if the

woman is really talking to you the way it sounds - that isn't right. What does

she mean about the back of her head? I have seen some doc bands with a ridge

inside the band, and I've been told it is because they don't want to loosen the

holding points on the non-flat side. However it should not be a ridge on her

head - right? Does she have brachy plagio combo (flat in back and asymmetry)? It

seems like with good growth the 7mm should be easily resolved. Not sure if it is

the brachy you aren't happy about. Certainly her head shouldn't be more flat -

do you have pictures to compare (before you get the exit photos)?

My daughter had brachy with very little asymmetry (only 4.5 mm to start). She

got a lot of correction from her band, but since her head was pretty severe, it

is is still not perfect. Can you post pictures of your child's head to see where

you are? Also is there another clinician in the office you can talk to? If her

head is still flat in back I would think a 2nd band would be a good idea. Are

they saying they don't recommend it? Your baby is still fairly young and you

should get additional rounding.

Please let us know what happens next.

-christine

sydney, 3.5 yrs, starband grad

>

> Hello. I am new to posting in this group. my daughter got her doc band

> 5/22/09 and is set for her exit appt 7/27/09. it will be just bearly 10wks

total in her band. she started at 7ms and will be 9mos when done. the problem is

that she has one adjustment left and i'm not totally satifiyed with the results.

was seen this last thursday b/c i though the band was not fitting right. the

person who have been making the adjustment the whole time looked at her band.

was basically told she is or will be out grown her band and there for she is

done and could get a second band and have to pay again as well.(out of pocket)

me and my husband are a little shocked that at this point would be talking about

a second band. also to note that her measurement was only at 7mm. so not that

bad to begain with.

> i do see improvement with the plagio on the right side. what i'm not happy

about is the back of her head looks more flat and not very rounded out. the

lady(not sure if she is and orthis) said that the back of her head is the way

it's going to be and the band can't be adjusted to fix that part of her head.

she also said my daughter her a huge growth during the banding and there is not

more room for adjustments with the band.(no more foam to shave)

> my this is... if you look inside her band there is only shaved foam on the

right in the back and some in the front on the left side. there is a distenctive

ridge right down the middle in the back. i would think there is still room for

some more adjustments.

> now i am thinking maybe i expected better results then the band ever could of

done. also was spending this about of money evan worth it??? not sure where to

go from here. i feel like i expressed my concerns and was told there is nothing

else doc band can do. any advice offered will be greatly welcomed. next appt is

tuesday.

> thank for reading,

> frustrated mom

>

[Guest guest]

Thanks for responding. There is not a ridge at the back of her head. It just looks more flat. I don't think she had brachy as well if she does its very slight. Maybe I was use to seeing the plagoi on the right I did not notice the flatness on the back. Can try to post some pics. I just don't think it still looks right. Amd not want I thought it would post band. We will not see the same person tomorrow b/c she had her baby yesterday. Was not due till end of july. So will see a diffrent person so hopfully get a second opinion!! Will see how tomorrow goes. Thanks again. Mom to Kassidy 8.5 mosSent via BlackBerry by AT&TFrom: "christineashok" Date: Mon, 13 Jul 2009 05:36:35 -0000<Plagiocephaly >Subject: Re: need some advice If babies have a lot of growth it is not unheard of to outgrow the band in 10 wks. Particularly docbands since they have slightly less foam. However if the woman is really talking to you the way it sounds - that isn't right. What does she mean about the back of her head? I have seen some doc bands with a ridge inside the band, and I've been told it is because they don't want to loosen the holding points on the non-flat side. However it should not be a ridge on her head - right? Does she have brachy plagio combo (flat in back and asymmetry)? It seems like with good growth the 7mm should be easily resolved. Not sure if it is the brachy you aren't happy about. Certainly her head shouldn't be more flat - do you have pictures to compare (before you get the exit photos)? My daughter had brachy with very little asymmetry (only 4.5 mm to start). She got a lot of correction from her band, but since her head was pretty severe, it is is still not perfect. Can you post pictures of your child's head to see where you are? Also is there another clinician in the office you can talk to? If her head is still flat in back I would think a 2nd band would be a good idea. Are they saying they don't recommend it? Your baby is still fairly young and you should get additional rounding. Please let us know what happens next. -christine sydney, 3.5 yrs, starband grad > > Hello. I am new to posting in this group. my daughter got her doc band > 5/22/09 and is set for her exit appt 7/27/09. it will be just bearly 10wks total in her band. she started at 7ms and will be 9mos when done. the problem is that she has one adjustment left and i'm not totally satifiyed with the results. was seen this last thursday b/c i though the band was not fitting right. the person who have been making the adjustment the whole time looked at her band. was basically told she is or will be out grown her band and there for she is done and could get a second band and have to pay again as well.(out of pocket) me and my husband are a little shocked that at this point would be talking about a second band. also to note that her measurement was only at 7mm. so not that bad to begain with. > i do see improvement with the plagio on the right side. what i'm not happy about is the back of her head looks more flat and not very rounded out. the lady(not sure if she is and orthis) said that the back of her head is the way it's going to be and the band can't be adjusted to fix that part of her head. she also said my daughter her a huge growth during the banding and there is not more room for adjustments with the band.(no more foam to shave) > my this is... if you look inside her band there is only shaved foam on the right in the back and some in the front on the left side. there is a distenctive ridge right down the middle in the back. i would think there is still room for some more adjustments. > now i am thinking maybe i expected better results then the band ever could of done. also was spending this about of money evan worth it??? not sure where to go from here. i feel like i expressed my concerns and was told there is nothing else doc band can do. any advice offered will be greatly welcomed. next appt is tuesday. > thank for reading, > frustrated mom >

[Guest guest]

Hi ,I am in the EXACT same boat as you. My son finished his 8 weeks in his doc band last week. He grew out of his helmet-nothing more to shave down. He started around 5 months. We go this week for his exit scan. I am pretty happy with the plagio although I can still see it, but the back of his head is pretty flat. They originally told me he didn't have brachy, just plagio but the back is definitely flat. I'm going to ask about it this week and see what they say. Let me know what happens with your daughter. Hopefully a second opinion will be helpful! TraceySent from my Verizon Wireless BlackBerryFrom: vfraer@...Date: Mon, 13 Jul 2009 13:50:36 +0000<Plagiocephaly >Subject: Re: Re: need some advice Thanks for responding. There is not a ridge at the back of her head. It just looks more flat. I don't think she had brachy as well if she does its very slight. Maybe I was use to seeing the plagoi on the right I did not notice the flatness on the back. Can try to post some pics. I just don't think it still looks right. Amd not want I thought it would post band. We will not see the same person tomorrow b/c she had her baby yesterday. Was not due till end of july. So will see a diffrent person so hopfully get a second opinion!! Will see how tomorrow goes. Thanks again. Mom to Kassidy 8.5 mosSent via BlackBerry by AT&TFrom: "christineashok" Date: Mon, 13 Jul 2009 05:36:35 -0000<Plagiocephaly >Subject: Re: need some advice If babies have a lot of growth it is not unheard of to outgrow the band in 10 wks. Particularly docbands since they have slightly less foam. However if the woman is really talking to you the way it sounds - that isn't right. What does she mean about the back of her head? I have seen some doc bands with a ridge inside the band, and I've been told it is because they don't want to loosen the holding points on the non-flat side. However it should not be a ridge on her head - right? Does she have brachy plagio combo (flat in back and asymmetry)? It seems like with good growth the 7mm should be easily resolved. Not sure if it is the brachy you aren't happy about. Certainly her head shouldn't be more flat - do you have pictures to compare (before you get the exit photos)? My daughter had brachy with very little asymmetry (only 4.5 mm to start). She got a lot of correction from her band, but since her head was pretty severe, it is is still not perfect. Can you post pictures of your child's head to see where you are? Also is there another clinician in the office you can talk to? If her head is still flat in back I would think a 2nd band would be a good idea. Are they saying they don't recommend it? Your baby is still fairly young and you should get additional rounding. Please let us know what happens next. -christine sydney, 3.5 yrs, starband grad > > Hello. I am new to posting in this group. my daughter got her doc band > 5/22/09 and is set for her exit appt 7/27/09. it will be just bearly 10wks total in her band. she started at 7ms and will be 9mos when done. the problem is that she has one adjustment left and i'm not totally satifiyed with the results. was seen this last thursday b/c i though the band was not fitting right. the person who have been making the adjustment the whole time looked at her band. was basically told she is or will be out grown her band and there for she is done and could get a second band and have to pay again as well.(out of pocket) me and my husband are a little shocked that at this point would be talking about a second band. also to note that her measurement was only at 7mm. so not that bad to begain with. > i do see improvement with the plagio on the right side. what i'm not happy about is the back of her head looks more flat and not very rounded out. the lady(not sure if she is and orthis) said that the back of her head is the way it's going to be and the band can't be adjusted to fix that part of her head. she also said my daughter her a huge growth during the banding and there is not more room for adjustments with the band.(no more foam to shave) > my this is... if you look inside her band there is only shaved foam on the right in the back and some in the front on the left side. there is a distenctive ridge right down the middle in the back. i would think there is still room for some more adjustments. > now i am thinking maybe i expected better results then the band ever could of done. also was spending this about of money evan worth it??? not sure where to go from here. i feel like i expressed my concerns and was told there is nothing else doc band can do. any advice offered will be greatly welcomed. next appt is tuesday. > thank for reading, > frustrated mom >

[Guest guest]

Hi Everyone,

I need some advice on how to handle a situation with my son's school. First a

lil history. My son was first diagnosed with PDD-NOS back when he was 7 back in

2003. We lived in Connecticut at the time, as my husband was active duty navy at

the time. The school system in Ohio was great giving him a 1 on 1 aide as well

as speech, socials skills training in a small group setting with inclusion in

the reg ed classroom for math and science. We then got transfered to California

with the military and they were great as well, providing the exact same services

my son received in connecticut just with new goals.

Now fast forward to 2007,we moved to Ohio, my son was then 11. The school system

here in Brunswick decided he did not need all those services and cut him from 60

mins of speech a week to 60 min per month, and mainstreamed him. They said that

his diagnosis of PDD-NOS is a medical diagnosis, not an educational diagnosis

and said he did not need everything the other school systems had been

providing.Well, since that point my son has has a lot of issues. We have gone

back and forth with the school regarding these issues. Since my son started

school here in Brunswick he begain to have behavioral problems as well as

experience anxiety attacks due to lack of services and also due to the fact the

school refused to believe he was on the spectrum. They began to suspend him

multiple times for his behaviors for things like failing to listen to the

teacher, ignoring the teacher and when they would send him to inschool

suspension, he would receive additional suspension days due to tapping his leg

against his desk or hiding under his desk and rocking.. The school considered

all these behaviors defient. So I decided to pull him out of school and virtual

school him starting this past Aug due to the schools unwillingness to provide

services to him.

In the meantime, I had him reevaluated in August at the Cleveland Clinic Autism

Center, which once again confirmed his diagnosis - PDD-NOS and ADHD.. but they

now additionally diagnosed him with GAD (Generalized Anxiety Disorder) and

Depression. I then found out from the Cleveland Clinic that my insurance was 1

of the few in OH that covers ABA services. So we got my son an ABA therapist,

who suggested that my son return to the traditional school setting because

honestly the home setting just really was not working all that well.

So we set up an IEP meeting prior to re-enrolling my son back in public school.

This time I came with additional people to the meeting, I came with an Advocate

as well as my son's ABA therapist. The school finally agreed to list his

disability code as Austism and provide 60 mins of speech a week as well as

social skills training... along with some other accomadations to make his day

easier.. he was now going to be in a small group class for english and reading

skills as well as for tutoring. They also agreed to implement a behavior plan as

well as provide him assistance with organization as well as reminders such as

picture schedules and such to help him along in his day.

Well my son has been back in school for 2 weeks and it been complete hell. The

special ed teacher has only been there 1 out of the 10 days. They now refuse to

give him the reminders they said they would in the meeting stating that they

feel an 8th grader should not need reminders, they said he should be old enough

and responsible enough to remembers things. They agreed to send me daily emails

which would describe how his day went both good and bad info was to be

exchanges.I have only received 1 email. They have sprung school assemblies on

him with no warning, which it was stating in the IEP would not occur as he has

issues with changes in routine as well as large crowds. He often becames

stressed, anxious and overwhelmed which ultimately leads to either a meltdown or

panic attack. If the emails were sent it could have warned about the assembly

allowing me time to prepare my son for it. Unfortunately due to the lack of

preparation with my son he had a panic attack during the assembly, which the

school now denies happened.

Lastly, My son, just like in previous years, in again being teased and bullied

in the school and on the bus. I have informed the school and from the email I

received back it appears to me that they are once again trying to turn it around

and blame it on my son. This time using the disability that up until recently

they didnt believed exsisted.

I have included the email I received from the school boards director of student

services regarding the situation. I received an email reply from her due to the

fact that my son's school had no administrators in the building from Wed - Fri

of the past week, because everyone was away at a conference. So when I reported

it to the school, the counselor that was in charge of the school contacted

higher district level administrators who had my husband and I as well as my son

meet with her to explain the situation. Any advice on how to proceed would be

greatly appreciated..

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Dear Mrs. XX,

Dr. Duelley shared her notes from her meeting with you and your husband

this morning. She indicated that you had said that Jake had been the target of

teasing both on the bus, and in the special ed. classroom this week when there

had been a substitute. You were concerned that no one was taking your complaints

seriously. I want to assure you that various people have been looking into

these situations.

First, Mrs. Tomashefski, Assistant Superintendent, contacted the Transportation

Dept. about the situation on the bus. Mrs. Koesel, secretary in the

Transportation Office, watched 4 days of bus video (Nov. 2, 3, 4 and 5 ---both

a.m. and p.m. runs) and she did not see anyone doing any of the things that Jake

described. Jake already sits directly behind the driver so she can keep an eye

on him. I also called Mrs. Koesel to talk to her. She informed me that there

are 3 boys who sit in the seat behind Jake and the 2 seats across the aisle

behind Jake who are constantly talking to each other. On occasion, Jake turns

around to talk to them. The driver will continue to watch for any inappropriate

behavior or conversation that may be directed at Jake.

I will ask Mrs. Shaffer to speak with the class and the girls that Jake

identified as the ones who were throwing pencil erasers at him. We do not want

inappropriate behavior to occur in any classroom. Mrs. Conway removed Jake

from this same class today, even though there was a different substitute,

because Mrs. Shaffer was out ill again.

On another note, I think that everyone needs to understand that while Jake may

be vulnerable to teasing, he often misperceives the behavior of others as a

result of his autism. Together, we need to work hard not to react every time

that Jake has a complaint. This teaches him to gain attention in negative ways

and further contributes to his poor relationships with peers. We need to teach

Jake to analyze the situation and put it into perspective. Students who behave

inappropriately toward Jake should have consequences for sure. However,

sometimes, Jake misperceives the behavior of others as an affront to him.

Mrs. Yost will be back in the building on Monday. Please feel free to contact

her if you would like to arrange to have a meeting to discuss this further.

Sincerely,

Gale A. Harr, Ph. D., NCSP

Director of Student Services & Special Education

Brunswick City Schools

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

HELP???? Any advice would be greatly appreciated.