Re: New Here and to Autism.

[Guest guest]

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]

lr

[Guest guest]

Great suggestions !

Autism Speaks has a local chapter and is willing to help guide you as well. I am the local chapter President and am happy to meet with you if you would like to call me 440-449-9922.

You can also access our web site www.autismspeaks.org for info about our area. Click on the U.S. map, then Ohio, then Cleveland and many resources will be at your fingertips.

Our Walk is coming up on Sat. Oct. 10 at Voinovich Park and we have a Resource Fair with a wide variety of Service Providers. We hope you can come join us, collect info, meet providers, other families on the spectrum and see what Cleveland has to offer.

Take care,

Shari Goldberg

In a message dated 10/1/2009 8:03:18 A.M. Eastern Daylight Time, LBarano710@... writes:

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]lr

[Guest guest]

You are so welcome.

I am happy to help guide you.

All costs for services are different and some are covered by insurance. For that you would need to call each provider that you think would work well with your child's needs.

Shari

In a message dated 10/1/2009 8:36:31 A.M. Eastern Daylight Time, julie21082@... writes:

Thank you very much! I think I found what you're talking about on their website. 105 pages. I can't wait to have time to read it. After I'm done reading, I will call them to see what they can help with. What was the cost, if any, for those services (approx.)?I appreciate your help.

Re: [ ] New Here and to Autism.

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]lr

[Guest guest]

Great, feel free to call.

If you come to the Walk each provider has a little carnival activity to keep the children busy for a few minutes while the parent(s) talk to the provider and gather info.

Looking forward to meeting,

Shari

In a message dated 10/1/2009 9:56:45 A.M. Eastern Daylight Time, julie21082@... writes:

Thank you, Shari! I appreciate the info. I will explore the website more thoroughly as soon as time allows. Yes, I would like to meet with you. I will contact you as soon as I am able to take a breath. We are in a whirlwind of appointments, assesments, tests, etc...and I also have two other children (5 yrs and 6 mos). It's so difficult to find a minute to just breathe. I hope that I will be able to make it for the walk. I will see if my husband or mother will come with me. My little brother has autism as well (and a few others in my family) and I'm sure she could use the resources as well. Thanks again and I look foward to speaking with you soon.

Re: [ ] New Here and to Autism.

Great suggestions !

Autism Speaks has a local chapter and is willing to help guide you as well. I am the local chapter President and am happy to meet with you if you would like to call me 440-449-9922.

You can also access our web site www.autismspeaks.org for info about our area. Click on the U.S. map, then Ohio, then Cleveland and many resources will be at your fingertips.

Our Walk is coming up on Sat. Oct. 10 at Voinovich Park and we have a Resource Fair with a wide variety of Service Providers. We hope you can come join us, collect info, meet providers, other families on the spectrum and see what Cleveland has to offer.

Take care,

Shari Goldberg

In a message dated 10/1/2009 8:03:18 A.M. Eastern Daylight Time, LBarano710aol writes:

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]lr

[Guest guest]

Thank you very much! I think I found what you're talking about on their website. 105 pages. I can't wait to have time to read it. After I'm done reading, I will call them to see what they can help with. What was the cost, if any, for those services (approx.)?I appreciate your help.

Re: [ ] New Here and to Autism.

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]lr

[Guest guest]

Thank you, Shari! I appreciate the info. I will explore the website more thoroughly as soon as time allows. Yes, I would like to meet with you. I will contact you as soon as I am able to take a breath. We are in a whirlwind of appointments, assesments, tests, etc...and I also have two other children (5 yrs and 6 mos). It's so difficult to find a minute to just breathe. I hope that I will be able to make it for the walk. I will see if my husband or mother will come with me. My little brother has autism as well (and a few others in my family) and I'm sure she could use the resources as well. Thanks again and I look foward to speaking with you soon.

Re: [ ] New Here and to Autism.

Great suggestions !

Autism Speaks has a local chapter and is willing to help guide you as well. I am the local chapter President and am happy to meet with you if you would like to call me 440-449-9922.

You can also access our web site www.autismspeaks.org for info about our area. Click on the U.S. map, then Ohio, then Cleveland and many resources will be at your fingertips.

Our Walk is coming up on Sat. Oct. 10 at Voinovich Park and we have a Resource Fair with a wide variety of Service Providers. We hope you can come join us, collect info, meet providers, other families on the spectrum and see what Cleveland has to offer.

Take care,

Shari Goldberg

In a message dated 10/1/2009 8:03:18 A.M. Eastern Daylight Time, LBarano710aol writes:

There is a group in Beachwood called "Milestones"....It's a non-profit group started by a woman whose daughter has autism. They have been very helpful! They have lists of resources---I got a resume from them for a college student I used to do aba with my son and it was the best therapist we ever had! I would suggest calling them and telling them some of your needs and see what ideas they have. [They have a binder full of resources that was given out at their annnual conference--ask them if these resources are available online! They have a website--I think it's just Milestones.org]lr

[Guest guest]

When our son was that age, we participated in a study at CWRU that trained us in

Responsive Teaching. We had weekly and then bi-weekly sessions. We got trained

in the RT techniques and it was all free. If they are still doing this program I

highly recommend it.

http://msass.cwru.edu/childrenandfamilies/projectbridge.html

-kim

>

> Hello! My name is and my 21 month old daughter, Roan, was just diagnosed

with autism. We live in Cleveland. Does anyone know of any resources that will

help financially to get my daughter the treatment she needs. We are working with

Help Me Grow, but the services they can offer us are minuscule. Everyone kept

telling us that we needed a diagnosis in order to get her the services she

needs. What they failed to tell us was that getting the diagnosis would also

prevent the services from being covered by the insurance company. She needs

Speech, OT, and behavioral therapy. We are not under the poverty level, far from

it actually, but very far from being able to afford these services out of

pocket. It was suggested to me to try colleges for students who need practice.

Does anyone know anything about this? If so, where and will they be able to do

this at her age? Any insight would be incredibly helpful and extremely

appreciated. I thank you for allowing us to join your community and look forward

to sharing with all of you.

>

> Thanks

>

[Guest guest]

Hi !!!

Welcome! Your story sounds very similar to ours...my son was dx'd at 22 months and he is now four and doing pretty well. We have been in the same boat with insurance and just do whatever we can with whatever resources are available to us.

I also urge you to check out Milestones...they have a lot of resources here on the local level and low-cost workshops that could be very helpful for you and the rest of your family. We also participated in the RTI study at CWRU and it was WONDERFUL...we have done ABA/behavioral techniques with our son but I think the RTI approach can be very beneficial to everyone, and it is very easy to carry over at home. If nothing else, it helps you and your child connect at whatever level he/she is at, and that is always a good thing;-)

Check with your county board of DD for any family resources you can use, such as yearly funding, waivers, BCMH, etc.

Push for Early Intervention...in Cleveland I think that those services are carried out at Day? Not sure.

You can always apply for a Helping Hand grant to help defray the costs of some therapies. And, when your daughter turns three, there is always the autism scholarship program if you think that a placement other than your school district would be more beneficial to her.

We understand...we have been there. We know what a time this is after the diagnosis is new and how frustrating it is not to be able to provide everything under the sun b/c insurance will not cover costs, etc. It seems that there are not enough hours in the day!! This group is wonderful and can really help you get answers quickly b/c everyone has "been there" ,too! Feel free to email me privately if you want to. Best of luck to you and just take one day at a time;-)

JOct 1, 2009 01:37:20 AM, wrote:

Hello! My name is and my 21 month old daughter, Roan, was just diagnosed with autism. We live in Cleveland. Does anyone know of any resources that will help financially to get my daughter the treatment she needs. We are working with Help Me Grow, but the services they can offer us are minuscule. Everyone kept telling us that we needed a diagnosis in order to get her the services she needs. What they failed to tell us was that getting the diagnosis would also prevent the services from being covered by the insurance company. She needs Speech, OT, and behavioral therapy. We are not under the poverty level, far from it actually, but very far from being able to afford these services out of pocket. It was suggested to me to try colleges for students who need practice. Does anyone know anything about this? If so, where and will they be able to do this at her age? Any insight would be incredibly helpful and extremely appreciated. I thank you for allowing us to join your community and look forward to sharing with all of you. Thanks