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A u t i s m R e s o u r c e P o s t i n g s (Part 1) by the National Autism Association - Northeast Ohio - October 8, 2009

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A u t i s m R e s o u r c e

P o s t i n g s

Part 1

By the National Autism Association - Northeast Ohio Thursday October 8, 2009

In This Issue:IMPORTANT REQUEST - CHILD WITH ASD IN NEED OF A FOSTER FAMILY

Staggering New Data: Survey Shows 1 in 91 Children May Have Autism Spectrum Disorder

YOU CAN HELP!

NEW TO AUTISM? NEED SUPPORT?

LOCAL AUTISM EVENTS AND ACTIVITIES

RECALLS

SURVEYS

IMPORTANT REQUEST - CHILD WITH ASD IN NEED OF A FOSTER FAMILY

A lovely 15 year old girl with ASD is in need to find a foster family. She currently resides at the Monarch Boarding Academy because her mom, her only family, is terminaly ill. She has noone else to care for her so she will need a good foster family. Monarch School will provide maximum support to the foster family that is interested in opening their home and hearts to her. Please contact Debra Mandell at mandelld@... if you are interested in fostering this child in need of a loving and supportive family, or if you know someone else who might.

Feel free to distribute this important request widely.

Thank you!

Staggering New Data: Survey Shows 1 in 91 Children May Have Autism Spectrum DisorderAutism May Be More Common Than Thought: Survey Shows 1 in 91 Children May Have Autism Spectrum Disorder

By Kathleen Doheny

WebMD Health News

Oct. 5, 2009 -- About 1% of U.S. children, or about one in 91, may have autism or an autism spectrum disorder, according to two new national surveys. The new estimate is a dramatic increase from the previously accepted number of one in 150. But experts who discussed the findings of the two new surveys - one released today and the othe r due out before

year's end - urged caution in interpreting the new information about the developmental disorders. "It's important to know potential signs of ASD... Among the potential signs are social interaction problems, language difficulties, or behavior problems such as repetitive behavior."

A new survey by the CDC found that about 1% of U.S. children are affected by an autism spectrum disorder, says Ileana Arias, PhD, deputy director of the CDC. No further details were available on the CDC survey, due to be released in full later this year. The same prevalence, however, was found in the survey released today, says D. Kogan, PhD, of the Maternal and Child Health Bureau of the Health Resources and Services Administration. With his colleagues, Kogan drew on data from the 2007 National Survey of Children's Health, a telephone survey of parents jointly conducted by the Health Resources and Services Administration and the CDC.

Click here for entire article on Autism May Be More Common Than Thought.

Source: USAAA Weekly News

YOU CAN HELP!

What can you do about these staggering data?

Get involved!

Join other families who speak out, volunteer and advocate for all of our kids! Every little bit helps - donate some of your time, fill our a survey, give $10, walk, go to benefit events, ask EVERYONE you know to support your cause because all of our future depends on it!

Why?

Because with these ever increasing numbers of children affected it is certain that our society will not be able to support costly autism services for 1 in 91 children or 1 in 58 little boys. All of us have to work together to halt this epidemic, devastating to our society and personal lives on so many levels!

We have to demand that the cause(s) of the disorder are found!

We have to demand insurance discrimination or individuals with ASD immediately ends so that many of the challenges of ASD can be overcome.

We need to demand safe, sound, and more comprehensive supports in our schools and elswhere in the community as well as in our homes.

There are numerous local and national autism organizations that work very hard to raise awareness and funds for research, to train and educate, to bring resources and funds to families affected by the disorder. Please take the time to learn about them and about what they do, join and support them at their events and fundraisers so they can accomplish more for the entire autism community!

Here's a list of a few of the main national organizations (listed alphabetically):

Autism Research Institute at www.autism.com

Autism Society of America at www.autism-society.org

Autism Speaks at www.autismspeaks.org

Generation Rescue at www.generationrescue.org

National Autism Association at www.nationalautismassociation.org

Organization for Autism Research at www.researchautism.org

Safe Minds at www.safeminds.org

Talk About Curing Autism (TACA) at www.tacanow.com

Thoughtful House at www.thoughtfulhouse.org

Ohio/Regional Organizations Select, listed alphabetically:

Autism Society of Ohio at www.autismohio.org

Autism Society of Greater Akron at www.asagreaterakron.com or call 330-543-3955

Autism Society of Greater Cleveland at www.asgc.org or

call 216-556-4937

Milestones Organization at www.milestones.org or call

216-464-7600

National Autism Association - Northeast Ohio (NAA-NEO) at

www.autismnortheastohio.org or 216-544-1231

Northeast Ohio Autism Group at http://www.northeastohioautismgroup.org/

NEW TO AUTISM? NEED SUPPORT?

Any of the above organizations will be happy to assist you should you have a newly diagnosed child or any other need or issue you need assistance with.

LOCAL AUTISM EVENTS and ACTIVITIES SATURDAY, OCTOBER 10, 2009

F U N D R A I S E R

Walk Now for Autism ...and raise funds for autism research!

Where?

Voinovich Park/ Cleveland

When?

Registration begins at 8 a.m.

Walk begins at 10 a.m.

More info: www.autismspeaks.org/cleveland

Read a note from AS Cleveland Chapter President Shari Goldberg on why you should walk this year...

"What if you don’t walk this year? It’s just one year, right? Research released this week indicates that the prevalence of autism is now 1 in every 91 births....1 in every 58 boys. But it's just one year....The World Health Organization estimates that autism costs society approximately $35 billion each year…just one year. In the four years since Autism Speaks was founded, we have been able to go from start-up to the largest funder of autism research in the world by committing an unprecedented $130 million to science. It has been the hundreds of thousands of walkers in each community who have changed the future of those who struggle with autism by raising those funds. We need you to register to walk with us this year to keep the momentum going.While we are making strides in leveraging more research dollars through our grassroots advocacy initiatives, autism receives less than 5% of the research funding of many less prevalent childhood diseases. It is up to us, those of us who love someone affected by autism, to continue pushing the

research advances forward. We can’t afford to sit this year out. PLEASE JOIN our team NOAH'S ARK and WALK NOW FOR AUTISM SPEAKSSATURDAY, OCTOBER 10, 2009Voinovich Park/ Cleveland8:00 a.m. Registration begins10:00 a.m. Walk beginswww.autismspeaks. org/cleveland If you cannot join us please consider donating whatever you can to our team.

If you have already donated...THANK YOU!!We hope you will join us in any way you can in our fight against Autism!

Shari, , and Noah Goldberg"sharigoldberg22@ aol.com440-449-9922

SATURDAY, OCTOBER 10, 2009

E V E N T / S A M P L I N G / T O U R

Gluten-Free Taste Fair

Mustard Seed Market & Café, Ohio's largest locally owned natural and organic foods market, is hosting a delicious sampling of foods for this special-needs diet at both of its locations in Akron and Solon. Enjoy samples of all kinds of

gluten-free fare, along with guest speakers and local support groups to learn more about health concerns for those members of our families who are gluten-intolerant or have Celiac Disease (CD). CD arises when the lining of the small

bowel becomes damaged from exposure to gluten, the protein found in wheat, barley and rye.

Being held at both locations:

Montrose

West Market Plaza

3885 W. Market St.

Akron, Ohio 44333

330.666.SEED (7333) 1.888.476.2379

Solon

Uptown Solon Shopping Center

6025 Kruse Drive

Solon, OH 44139 440.519.FOOD (3663)

1.877.496.FOOD (3663)

---> Other GFCF Resources:

Holiday Cookies - cooking videos available online for some delicious Halloween Cookies - click here to view them!

SATURDAY, OCTOBER 10

A C T I V I T Y

Geocaching

The Mayfield Adaptive Recreation Committee is offering…Geocaching!

Geocaching is a high-tech treasure hunting game played throughout the world by adventure seekers equipped with GPS devices. The basic idea is to locate hidden containers, called geocaches, in an outdoor setting.

All equipment will be provided. Dress appropriately.

The event will happen rain or shine.

WHO: 10 year olds - Adults

WHEN: Saturday, October 10, from 1:00 - 2:30 p.m.

WHERE: Chapin Forest Reservation which is off Hobart Rd. in Kirtland

COST: $10 per participant

An aid or assistant (which can be parent/caregiver) MUST BE PRESENT for one on one assistance for any participant who has difficulty following simple instruction, needs individual physical patterning or needs constant guidance.

Call (440) 461-5163 if you have questions.

**REGISTRATION INFORMATION**

Register over the phone with Mayfield Village with Mastercard, Visa, or Discover by calling (440) 461-5163. OR Mail form below/drop off to Mayfield Village Parks and Rec., 6622 Mills Rd., Mayfield Village, OH, 44143. Check payable to Mayfield Village or fill in credit card info.

In order to avoid cancelling programs, we need the cooperation of participants to sign up by deadlines. Mayfield Village will charge an additional $5 per participant if signing up after the deadline. Please note that Mayfield Village reserves the right to deny registrations after the first deadline due to limited enrollment, planning, etc.

Geocaching: Please print clearly

Participant’s Name_________________________________

D.O.B._________ Home Phone______________

Address______________________________________ (street)

_____________________________________________ (city) ____________(zip)

Does participant require any special accommodations (ex: wheelchair, etc)?

____No _____Yes

If yes, please explain:_________________________________

Credit Card Number__________________________________

Exp. Date___________*V-Code________

(*v-code is last 3 digits by signature on back)

I (parent/guardian/caregiver) _____________________ herby release and hold harmless the City of Mayfield Heights including but not limited to the Parks and Recreation Department, Mayfield City School District/Bd. Of Education, Mayfield Community Education Department and Mayfield Village and all employees, agents, and representatives from any and all claims, cost, damages, and liabilities for any injuries sustained by myself (parent/guardian/caregiver)or my minor child’s or adult’s participation in any program offered

by Mayfield Heights Recreation Department, Mayfield City School District/Bd. Of Education Community Education Department and Mayfield Village.

I (parent/guardian/caregiver) _________________ understand that any fees charged for a program do not include accident, or personal property insurance. I further represent that I (parent/guardian/caregiver) and my child/adult are physically capable of participating in the program in which I (parent/guardian/caregiver) or my child /adult are enrolled, based upon consultation with my or my child’s/adult’s personal physician.

_________________________ ______________

Signature of Parent or Guardian Date

FRIDAY OCTOBER 11, 2009

F U N D R A I S E R / R A F F L E

Raffle to benefit the National Autism Association - Northeast Ohio at the moe. show at the House of Blues

All proceeds from the raffle will benefit the National Autism Association - Northeast Ohio Chapter's 2009 Helping Hand Program. Find out more about what we do, here: www.autismnortheastohio.org.

So if you like moe. coe join the party and buy some raffle tickets for a great cause!

For show details including tickets please visit http://www.houseofblues.com/tickets/eventdetail.php?eventid=59521

Thank you!!

SUNDAY, OCTOBER 13, 2009

E D U C A T I O N / T R A I N I N G

Be Prepared: Practical Behavior Plans

EAST SIDE LOCATION!

~Part of MILESTONES Family & Professional Workshops - Fall Series~

Learn how to develop a plan to deal with behaviors. Learn to be proactive rather than respond in the moment. Learn how to encourage positive behaviors and reduce inappropriate behaviors.

Presenter: Nameth

Time: 5:30 pm- 8:30 pm

Cost: $30 ($45 for two people)

Location: Milestones Organization

23880 Commerce Park, Suite 2 Beachwood, OH 44122

Target Audience:

Families & Professionals

CEU(s): Available

Contact Name: Carole Becerra at 216-464-7600

Website: www.milestones.org

TUESDAY, OCTOBER 13, 2009

P R E S E N T A T I O N

ABA Therapy

7:00 pm- 9:00 pm

Cost: FREE

Sponsoring Group:

Autism Society of Greater Cleveland

Presenter:

Kate Boylan Director for Behavioral Intervention Institute of Ohio

Location:

Avon Lake Library, 32649 Electric Blvd., Avon Lake

Target Audience: Families

Contact Name: ASGC

Contact Information: 216- 556-4937

Website: www.asgc.org

WEDNESDAY OCTOBER 14, 2009

P R E S E N T A T I O N

How to effectively support this year’s IEP

9:30 am – 11:30 am

Cost: $5.00; reduced parking for $2.50 (stamped ticket) is available at the Playhouse Sq. garage at East 15th & Chester

Sponsoring Group:

The ARC of Greater Cleveland

Location:

The Arc of Greater Cleveland, United Way Mandel Building,

1331 Euclid Avenue, Cleveland

Target Audience:

Families

CEU(s): Available

Contact Information: 216-622-0755 or arcgc@...

Website: www.thearcofgreatercleveland.org

OCTOBER 17, 2009

A C T I V I T Y

Join Us for Specially Adapted Movies - Where the Wild Things Are

Monarch Center for Autism and Cleveland Cinemas are hosting a unique movie viewing experience for families with children and adolescents with Autism. Join us for private showings of three animated movies, which will be especially adapted for lights and sound. Children are encouraged to bring personal sensory support items and special snacks, however, the

theater’s concession stand will be open as well.

Time:

Movie begins promptly at 10 a.m., without trailers and ads.

Please arrive by 9:45 a.m. to buy tickets and select seats.

Where:

Solon Theaters

6185 Enterprise Parkway

Solon 44139

440-564-2034

Price: tickets are $5.50 each

To prepare your child with for the movie, we created a social story which is available at www.bellefairejcb.org/monarch

For more information please contact Karin Hess-Hopkins at Monarch School at (216)320-8658 hessk@...

A minimum number of tickets sold is needed to be able to run the program.

---> Upcoming adapted showings:

December 12, 2009: The Princess and the Frog

WEDNESDAY, OCTOBER 21, 2009

O P E N H O U S E

Milestones Open House

Come visit us at our new home!

Wednesday, October 21, 2009

5:00 pm- 6:30 pm

23880 Commerce Park Rd. Suite 2 Beachwood, OH

WEDNESDAY, OCTOBER 21, 2009

P R E S E N T A T I O N

Social/Communication Issues by Audet, PhD

University Hospitals Division of Developmental Behavioral Pediatrics and Psychology Presents its 2009-2010 Autism Series, designed to improve understanding of the medical, behavioral, social, sensory, and educational issues related to Autism Spectrum Disorders.

An emphasis will be placed on practical intervention techniques. Presenters are local and national experts in the field of autism.

Presentations take place on Wednesday Evenings from 7:00 p.m. to 8:30 p.m.

? October 21, 2009 Social/Communication Issues Audet, PhD

? November 18, 2009 People need to talk my language… Adapting Reading and Writing for children with ASD Carole s, Education Consultant

? January 20, 2010 Sleep and Preschool Issues in ASD Max Wiznitzer, MD

? March 10, 2010 Adolescent Issues in ASD T. Barry, PhD

? April 21, 2010 Legal Issues Affecting Children with ASD Judith Saltzman

Cost is $60 for the entire series.

Participants may join at any point in the series. Students and paraprofessionals may attend entire series for $25.

NO REFUNDS WILL BE GIVEN.

Please make check payable to Autism Seminar Series.

Credit card payments will not be accepted.

Fee includes all six lectures, handouts, and refreshments.

Space is limited to 120 participants, so please register early.

If you have any other questions, please leave a message at (216) 844-1289.

To register, mail completed form and check, postmarked by September 23, 2008 to the following:

Division of Pediatric Neurology Attention: Kathy Maxwell, MSN, CNS University Hospitals Rainbow Babies & Children’s Hospital 11100 Euclid Avenue Cleveland, OH 44106

To register by email: Kathleen.Maxwell@...

Name(s): ___________________________________

Address: ____________________________________

___________________________________________

Telephone (evening): _________________________

E-Mail: _____________________________________

Please mail your check with this completed registration form.

Location: UH Westlake Medical Center 960 Clague Road, Suite 1600 (1st fl oor) Westlake, OH 44145

Directions:

Coming from the West: (Avon, Sheffi eld Lake, Lorain):

I-90 East to Columbia Rd. exit. Turn right onto Columbia Rd. Quickly move to left lane. Turn left at traffi c light onto Detroit Rd. Travel approximately 8/10 of a mile.

The Medical Center will be on your left, just before the intersection of Clague & Detroit Rds.

Coming from the East:

I-90 West to Clague Rd. exit. Turn left at traffi c light onto Clague Rd. Quickly move to right lane. Entrance to the Medical Center will be on your right.

Coming from the South:

I-71 North to 480 West. Exit at Clague Rd. and turn right.

Entrance to the Medical Center is on your left, just past the intersection of Clague and Detroit.

www.uhhospitals.org

(216) 884-1289

THURSDAY OCTOBER 22, 2009

P R E S E N T A T I O N

Career and Employment Development Strategies for Individuals with Autism

9:00 am- 3:00 pm

Cost: $150.00

Sponsoring Group: Cleveland Clinic Children's Hospital for Rehabilitation Center for Autism

Location:

2801 Luther King Jr Dr, Cleveland 44104

Target Audience:

Families & Professionals

CEU(s): Available

Contact Information: 216-448-6440 or szabol@...

Website: http://my.clevelandclinic.org/childrens_hospital

Continued in Part 2 of Newsletter.

This message was sent from NAA NEO Resource Posting. It was sent from: NAA-NEO, P. O. Box 221195, Beachwood, OH 44122.

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