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Hi, Jane'e and welcome!

I never had trouble with my ds not wanting to sleep in his room . but plenty of

trouble falling a sleep. but lately he has been insisting on sleeping on the

floor.......

since it is summer and very hot here, we allowed him, just told him that it is

only during summer vacation....

F

Re: ( ) Sleeping issues

In a message dated 7/31/2003 12:51:37 PM Pacific Daylight Time,

davineair3@... writes:

> Hi, I am new to this group my six year old son Hayden has asperger. Does

> anyone here have problems with their asperger children not wanting to sleep

in

> their own bed or their own room this has become quite an issue for us , I

try

> not to make a big deal as we are working on his doing more for himself but I

> am out of ideas.

>

> Thanks in advance

> Jane'e

>

Hi Jane'e,

I have a 4.5 yr old that had trouble sleeping in his own bed. We gave into

his sleeping on the couch and then would transfer him to his bed. He also

wanted to sleep in our bed and when my now 2.5 was a little younger we caved

and

let him. He would go to sleep in his bed initially but then awake and insist

on

our bed....meltdowns etc., at 3 in the morning. We were all sleep deprived

and just trying to make it work. How we got him to sleep in his bed was a

couple of ways. We bought him special dinosaur sheets, put relaxing music on

(same CD every night), and kept our bedtime routine consistent. TV was not

watched before bed and we had a lot of talks about that his room was a " safe "

place

for him to sleep and that he needed to stay in bed. I also told him I'd be

able to hear him if he ever needed anything. He sleeps with my youngest and

therefore I have a babygate up or Sammy would be in our bed or running around

in

the middle of the night! It doesn't seem to bother him now. This took some

time, but I was determined to get my bed back and for my kids to sleep better.

Last night he woke up with a bad dream (big ants) and I had to give him

something to drink, look for ants, and have more light in the room....

I'm wondering if Hayden is having bad dreams? Joe definitely had bad dreams

for awhile and last night was the first one we have had in a long time.

I hope everyone can get some sleep soon :)

Johanna

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I have a 4 1/2 year old who just started sleeping through the night. He

rarely falls asleep without me holding him and he doesn't seem to need much

sleep.

has had severe to moderate reflux since birth so night time vomiting and

pain were always there. I figure when he goes to college I can sleep. LOL!

, Mom to , reflux, hiatal hernia, compacted bowels, asthma, global

hypotonia, motor dyspraxia, SID, Asperger's

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Jane'e...

is now 15, but when he was younger (and not yet dx with Asperger's) we

had much difficulty with him sleeping in his own room. Most nights, even if

he

managed to fall asleep in his own room, he would eventually wind up in a

sleeping bag on the floor at the foot of our bed. Honestly, we never gave

it much

thought. He also needed to have a small night light on in his room until

about a year ago. Now, he goes to sleep in his own room listening to a

favorite

CD or the radio---and without a night light! I believe it was just a matter

of maturity...just my two cents...lol! Try not to stress about this~things

do

get better...

Blessings,

Gail

Hi Jane and welcome to the board. I also have two sons who wouldn't sleep

in their own room when they were younger. The oldest I was finally able to

bride out of our bed when he was 6. But the second son still has sleep

issues. First it was irrational fears at night (and constant battles with

his brother - one wanted the light on and the other wanted it pitch black -

no room for compromise and a lot of bedtime stress. My middle son was still

spending more nights than not in our bed up until he was about 9. Finally

he started sleeping in his own room. But he is a nightowl like his father

and spends most nights this summer up late in the living room watching TV

and reading (at least he's making progress in his summer reading

requirements) and then goes to bed with the hall light on. Even when it's

hot he has to have the cover over his head because he still has fears at

night. And he tells me he has trouble getting to sleep. Not very

encouraging, huh? ;-/

Kathy

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Welcome to the group!

My 5 year old son Noah likes to fall asleep in my bed every night. This

started about a year ago. I told him that he could fall asleep in my bed but

the

deal is that when mommy and daddy go to bed we would carry him to his bed. He

of course didn't like this idea! I told him that the 3 of us would not fit

in bed together. So he agreed to the deal. The first few nights he would wake

up while I was caring him into his own bed he would get angry and I would say

to him, remember our deal? And he would fall back to sleep without a

problem. Some nights he didn't want to hear about the deal and I told him that

if he

didn't like the deal then he could sleep in his own bed at night. No

problems since then! Whatever works!

Hope this helps some! Good Luck!

Mother to Noah 5yrs old AS, 12yrs old ADD, 13 yrs

old NT.

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My almost 10yro HFA son went to his own bed at 4. He spent the next 2

yrs coming in about one hour prior to the alarm, but that was fine.

My 3 yro who is PDD-NOS is still in my bed. I think he will be hard

to put in his own room. I may try the boys together. He's so behind

though. He's very much my baby stil. So I haven't really pushed the

issue.

a

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> Hi, I am new to this group my six year old son Hayden has asperger.

Does anyone here have problems with their asperger children not

wanting to sleep in their own bed or their own room this has become

quite an issue for us , I try not to make a big deal as we are

working on his doing more for himself but I am out of ideas.

>

> Thanks in advance

> Jane'e

>

>

Hi Jane,

Boy this is a BIG problem for us. I could lecture myself forever on

what I *should* do to solve these problems but you know, it is much

harder to do it IRL than to say, " this is what you need to do. " And

frankly, many nights I am just too tired to deal with one more thing.

My 14 yo slept on the family couch up until probably age 11 or so. I

used to sleep in front of his door to " make " him stay in his room, in

his bed, but he would wait for me to fall asleep and then walk over

me on his way to the living room. I finally gave up/gave in and he

made the couch his bed for years. I don't know why. We did

everything to make his room great and that didn't seem to help or be

the point.

Now he's fine and sleeps in his own room/own bed.

My 6 yo started sleeping with us when he was about 18 months old,

coinciding with his ability to speak. He still is in my room with

us. And worse, my 3 yo figures if Reece is there, why can't he

join? I usually wake up in a small square at the top of my bed with

a snoring dog over my leg and kids arms and legs most everywhere.

And my dh? He's usually on the couch having quit the fight.

We are so sad, here, lol. ack! WEll, we are getting some bunk beds

next week for the two little ones and a room " redo " and I am going to

get them in that room asleep if it kills me. I'm going to just sit

outside the room and make them stay inside the room or die trying.

We will find out who wins. The boys are really excited about the new

bunk beds so perhaps this is a good time to do it all????? I hope.

I know it's hard.

Roxanna

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Hi

Ive already replied to this, my 5 y/o aspie also sleeps on the couch, I could

put a circus in his room and he would still prefer the couch. Im not to

concerned about it although it can be alittle inconvenient. Having to be quiet

after he falls to sleep, nowhere to sit after he falls to sleep. Im hoping he

will grow out of this.

Ingrid

( ) Re: Sleeping issues

> Hi, I am new to this group my six year old son Hayden has asperger.

Does anyone here have problems with their asperger children not

wanting to sleep in their own bed or their own room this has become

quite an issue for us , I try not to make a big deal as we are

working on his doing more for himself but I am out of ideas.

>

> Thanks in advance

> Jane'e

>

>

Hi Jane,

Boy this is a BIG problem for us. I could lecture myself forever on

what I *should* do to solve these problems but you know, it is much

harder to do it IRL than to say, " this is what you need to do. " And

frankly, many nights I am just too tired to deal with one more thing.

My 14 yo slept on the family couch up until probably age 11 or so. I

used to sleep in front of his door to " make " him stay in his room, in

his bed, but he would wait for me to fall asleep and then walk over

me on his way to the living room. I finally gave up/gave in and he

made the couch his bed for years. I don't know why. We did

everything to make his room great and that didn't seem to help or be

the point.

Now he's fine and sleeps in his own room/own bed.

My 6 yo started sleeping with us when he was about 18 months old,

coinciding with his ability to speak. He still is in my room with

us. And worse, my 3 yo figures if Reece is there, why can't he

join? I usually wake up in a small square at the top of my bed with

a snoring dog over my leg and kids arms and legs most everywhere.

And my dh? He's usually on the couch having quit the fight.

We are so sad, here, lol. ack! WEll, we are getting some bunk beds

next week for the two little ones and a room " redo " and I am going to

get them in that room asleep if it kills me. I'm going to just sit

outside the room and make them stay inside the room or die trying.

We will find out who wins. The boys are really excited about the new

bunk beds so perhaps this is a good time to do it all????? I hope.

I know it's hard.

Roxanna

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Been there done that. When and Josh were younger 4 & 5 we had the same

problem. I would sit outside their bedroom with a book to read until they fell

asleep. It did pay off. I only had to do this for a month or so. Now we are

going through this with . She slept in her own room until the fire,

after that it was in my bed with me. Just this week I started putting her in

her own bed again. She turned five on Tuesday, and I told her big girls who go

to school have to sleep in their own beds, not with their Mommy's. The first

morning she woke up so happy because she didn't have any bad dreams. My guess

is the fire had more of an effect on her than we thought. Yippee, I have the bed

to myself again! Barb

madassmom <kneeleee@...> wrote:

> Hi, I am new to this group my six year old son Hayden has asperger.

Does anyone here have problems with their asperger children not

wanting to sleep in their own bed or their own room this has become

quite an issue for us , I try not to make a big deal as we are

working on his doing more for himself but I am out of ideas.

>

> Thanks in advance

> Jane'e

>

>

Hi Jane,

Boy this is a BIG problem for us. I could lecture myself forever on

what I *should* do to solve these problems but you know, it is much

harder to do it IRL than to say, " this is what you need to do. " And

frankly, many nights I am just too tired to deal with one more thing.

My 14 yo slept on the family couch up until probably age 11 or so. I

used to sleep in front of his door to " make " him stay in his room, in

his bed, but he would wait for me to fall asleep and then walk over

me on his way to the living room. I finally gave up/gave in and he

made the couch his bed for years. I don't know why. We did

everything to make his room great and that didn't seem to help or be

the point.

Now he's fine and sleeps in his own room/own bed.

My 6 yo started sleeping with us when he was about 18 months old,

coinciding with his ability to speak. He still is in my room with

us. And worse, my 3 yo figures if Reece is there, why can't he

join? I usually wake up in a small square at the top of my bed with

a snoring dog over my leg and kids arms and legs most everywhere.

And my dh? He's usually on the couch having quit the fight.

We are so sad, here, lol. ack! WEll, we are getting some bunk beds

next week for the two little ones and a room " redo " and I am going to

get them in that room asleep if it kills me. I'm going to just sit

outside the room and make them stay inside the room or die trying.

We will find out who wins. The boys are really excited about the new

bunk beds so perhaps this is a good time to do it all????? I hope.

I know it's hard.

Roxanna

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> Been there done that. When and Josh were younger 4 & 5 we had

the same problem. I would sit outside their bedroom with a book to

read until they fell asleep. It did pay off. I only had to do this

for a month or so. Now we are going through this with .

She slept in her own room until the fire, after that it was in my bed

with me. Just this week I started putting her in her own bed again.

She turned five on Tuesday, and I told her big girls who go to school

have to sleep in their own beds, not with their Mommy's. The first

morning she woke up so happy because she didn't have any bad dreams.

My guess is the fire had more of an effect on her than we thought.

Yippee, I have the bed to myself again! Barb

Great news for . I'm glad she had a good dream. THat

really must be hard for her because she has a real fear to deal

with. I hope she continues to do well and congrats on the bed to

yourself. lol, I am jealous. <G>

Roxanna

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  • 2 months later...

Hi

Just my two cents on the sleeping problem. I'm not sure if this would apply

to your son or not but when I first starting giving my son the Pro

EFA, it gave him nightmares. I was surprised to read Marina's post that

she has very vivid dreams because besides us, I hadn't realized that it

affected anyone else that way. The good news is that it went away after a

few weeks and then the language burst came. I was just about to stop it

because it was breaking my heart but then it seemed to stop. I think it

just " woke his brain up " and suddenly things were more vivid. I always

described it as though it was like a cloud was lifted from over his head

when I put him on EFAs.

There is something I've always done with my kids that has made bedtimes a

little easier. Right before bed, I let them choose a small toy from a

plastic bin where I keep their " bedtime toys " to bring to bed with them.

They are allowed to play with it quietly in their room for a few minutes.

I've found that it gives them something to look forward to because these are

toys that they only play with at bedtime. I keep it high on a shelf during

the day. They're nothing fancy, a kalidoscope (sp?), dice, a couple Happy

Meal toys, a little pinball game. Mostly the kind of little toys you find

at like a Party Store for favor bags. Anyway, it's helped me so I thought

I'd pass it along. Best of luck to you.

in MA

Kdr2@...

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Interesting ! My son is also having more of what may be

nightmares - crying in his sleep, kicking out and rolling around. I

was attributing it to molars coming in but maybe it is the EFA's.

As a side note, I started taking the left over coramega and have

noticed increased vividness of my dreams for the last two nights. I

thought that was just because I'm SO stressed! ;)

I too let Nick pick a toy before we go up for the nightly ritual.

He places it on it's side under a pillow, as if putting it to

bed :) Last night it was the vibrating toothbrush that a month ago

he wouldn't let near his mouth!

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I am so thrilled that you are back with us! Now I don't have

to quote you as " one of our old timers " anymore!

I thought the new members would also enjoy this archived message

about the vivid dreams. (when you think something is a new subject -

just check the archives. Yes EFAs can create more vivid dreams -

which doesn't mean the dreams are necessarily " bad " but vivid.

Vivid dreams can scare a child who never had one before. Don't all

you guys remember being small and waking up confused because you

thought you were just someplace else because the dream seemed so

real? OK so I'm strange -maybe that was just me!)

do you know for sure they were nightmares? Back then since

was nonverbal we didn't know. Did he tell you now that he

remembers (and can talk)? That would be good to know!

~

From: " kiddietalk " <kiddietalk@...>

Date: Thu Aug 14, 2003 9:54 am

Subject: Re: EFA /EPa time of dosage

Hi n!

As you can see from Kathy's post –it really does not matter to most

what time of day you supplement with the EFAs. Some supplement half

a dosage in the morning and half at night –some supplement the full

dosage in the AM or the PM.

However due to one of our member's children –and due to the theory

that EFAs can create more vivid dreams, we recommend starting

supplementation in the AM.

The following is the story of the night crying...and it starts on

Halloween 2000. Sounds scary but it's actually a story with a very

happy ending! I also cut and pasted one of 's most recent

updates from this past Halloween.

I love 's story because it once again reminds us that what we

view as " fact " today can be laughed at tomorrow. In this case in

regards to `negative' signs when supplemented with EFAs, if

listened to me, Dr. Agin, her husband and everyone else and stopped

the EFAs, what then would be the Happy Halloween ending to 's

story? –any thoughts?

The last person I sent the " night crying " story out for was BJ

(another parent with a remarkable EFA success story here in the

archives)

I'll start this archive with 's most recent Halloween story -

but to really appreciate it -read on! (by the way 's son is

another who

attended the Summit Speech School in New Providence, NJ -I didn't

put the name

of the school while our children were still there)

> Hi everyone -

> I havn't written in a while but I wanted to share a happy story

with you.

>

> On Halloween last year, my son couldn't say trick-or-treat

and just

> kind of stood there with his bag open while his brother said trick-

or-treat

> for the two of them. Yesterday, he was the first one yelling out

> trick-or-treat as soon as the doors started to open. One person

gave him a

> Tootsie-Pop and he took it and then told her really

enthusiastically

> " Thanks! this is just what I was hoping I would get. " What else

was

> heartwarming to see was that every person he spoke to that day,

all total

> strangers, understood him. He was finally just like every other

kid. It

> was amazing to watch and made me pause to think about just how far

he has

> come. His biggest issue right now is probably word retrieval but

even that

> is going very well. Fortunately he has developed ways to work

around it.

> For instance, if he can't remember the word " chocolate chip

cookie " he'll

> say " Mommy, can I have the round things that you gave me in a bowl

for snack

> yesterday? "

>

> I'm so thrilled with his progress. Holidays are especially

amazing for me

> because it's a specific time that I can remember from the year

before how he

> was. I thought I'd share for all those mom's who's children

couldn't say

> trick-or-treat this year, there's a good chance next year will be a

> different story.

>

> in NJ

> kdr@c...

From: "

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  • 1 year later...

Hello

Have been following the recent posts on sleeping issues and Melatonin and wondered what your views are of Gaba in helping with sleep?

>>>I have read that some find it helpful. It makes me feel better LOL. Also, I have rea dof giving it in the day can still help with sleep at night.

Our son goes to sleep Ok but wakes in the night, 2 or 3 times. My understanding is that Melatonin helps them get to sleep but doesn't necessarily help with children that wake in the night. Have tried Magnesium and Zinc and Epsom salts baths and have tried removing them and bringing all supplements forward to earlier in the day, but nothing has made a difference.We have recently started LDN, for one week now,(from Dr Heard) but that seems to have made things worse!

>>>>yes this is common when you first start according to what I have read. I think they say it settles out in 2-3 weeks. Is this TD LDN? Did BS pharmacy compound it?

Mandi x

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  • 2 years later...
Guest guest

Do tell me what kind of TRT your doing if your doing creams, patch or gels this

can mean your levels are falling off. Also when we wake up early some of us

it's low sugar try eating some cheeze or peanut butter before going to bed. Low

sugar will wake you up how do you feel when you wake good or bad. Some men on

gels need to do more there levels end up lower then they started. So if your on

5 grams of gels try 10 grams.

What you need to do is to get your Total and Free T levels up into the upper 1/3

of your labs range and keep your Estradiol down around 20 pg/ml then your body

will start undoing the damage done by the low testosterone and this is a slow

process that takes time. Your start to feel better a little everyday.

Co-Moderator

Phil

> From: Steve <steve@...>

> Subject: Sleeping Issues

>

> Date: Thursday, August 7, 2008, 3:23 PM

> Guys,

> I started taking Testosterone replacement about two weeks

> ago. I had

> been very low, 220 mg/DL, before starting. I had all of the

> classical,

> immediate results. The next morning I woke up with a clear

> head, had

> much more energy, increase libido, etc. My issue is that I

> have been

> getting too little sleep. I traditionally had been getting

> 8 - 8 1/4

> hours per night. I usually go to bed around the same time,

> 10:00 PM

> and would wake up around 6:00 to 6:15. Now, I am waking up

> between

> 4:30 to 5:00 AM and cannot go back to sleep. I feel pretty

> good and I

> am wide awake. My problem is that I am nodding off every

> afternoon.

> This last weekend, I had to crash-out since I was very

> sleep deprived.

>

> I don't know if this is a passing thing or not.

>

> Any suggestions?

>

>

> ------------------------------------

>

>

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Steve,

I had a similar issue. My level was 222, and my E2 level was 37.

Estradiol has an inhibiting effect on thyroid hormones. That is

why there are so many more female thyroid patients than male

ones. It could be that you are now better utilizing your thyroid

hormones. That was what happened in my case. It takes a

couple weeks for TSH to adjust to compensate. Did your labs

include a thyroid panel? Some exercise will help, and

magnesium will help if you wind up with cramps, palps or

just too much nervous energy.

-Mike

Steve wrote:

>

> Guys,

> I started taking Testosterone replacement about two weeks ago. I had

> been very low, 220 mg/DL, before starting. I had all of the classical,

> immediate results. The next morning I woke up with a clear head, had

> much more energy, increase libido, etc. My issue is that I have been

> getting too little sleep. I traditionally had been getting 8 - 8 1/4

> hours per night. I usually go to bed around the same time, 10:00 PM

> and would wake up around 6:00 to 6:15. Now, I am waking up between

> 4:30 to 5:00 AM and cannot go back to sleep. I feel pretty good and I

> am wide awake. My problem is that I am nodding off every afternoon.

> This last weekend, I had to crash-out since I was very sleep deprived.

>

> I don't know if this is a passing thing or not.

>

> Any suggestions?

>

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Hi Steve,

A couple of thoughts. When I started with testosterone replacement it

seemed to " unmask " my previous slight sleep apnea. I had a hard time

staying asleep, especially staying in bed to get a full nights rest

that we all need to heal our bodies. Do you snore and toss and turn?

It could be this. I now sleep with a CPAP mask and am doing great.

Another thing to consider, as people get older there natural

production of a pineal gland hormone melatonin plummets. If you take

600mcg to 1mg of a time released melatonin (iherb.com has lots of

choices), you may find you are sleeping like a log! You may have to

play with the dose that lets you sleep a full night, but not so much

you are groggy in the AM. Melatonin is not some far out new age

supplement like Dog Root, etc, it is a very important hormone to

sleep. Check out the link...

http://en.wikipedia.org/wiki/Pineal_gland

Neil

Take good care,

Neil

>

> Guys,

> I started taking Testosterone replacement about two weeks ago. I had

> been very low, 220 mg/DL, before starting. I had all of the classical,

> immediate results. The next morning I woke up with a clear head, had

> much more energy, increase libido, etc. My issue is that I have been

> getting too little sleep. I traditionally had been getting 8 - 8 1/4

> hours per night. I usually go to bed around the same time, 10:00 PM

> and would wake up around 6:00 to 6:15. Now, I am waking up between

> 4:30 to 5:00 AM and cannot go back to sleep. I feel pretty good and I

> am wide awake. My problem is that I am nodding off every afternoon.

> This last weekend, I had to crash-out since I was very sleep deprived.

>

> I don't know if this is a passing thing or not.

>

> Any suggestions?

>

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Guest guest

Thanks, I will look into this. My doctor also recommend that I try

GABA (Gama-aminobutyric acid) before bedtime. I have tried it for a

few nights and it seems to help some but I defiantly don't sleep like

I did when I was a young man.

(

> >

> > Guys,

> > I started taking Testosterone replacement about two weeks ago. I had

> > been very low, 220 mg/DL, before starting. I had all of the classical,

> > immediate results. The next morning I woke up with a clear head, had

> > much more energy, increase libido, etc. My issue is that I have been

> > getting too little sleep. I traditionally had been getting 8 - 8 1/4

> > hours per night. I usually go to bed around the same time, 10:00 PM

> > and would wake up around 6:00 to 6:15. Now, I am waking up between

> > 4:30 to 5:00 AM and cannot go back to sleep. I feel pretty good and I

> > am wide awake. My problem is that I am nodding off every afternoon.

> > This last weekend, I had to crash-out since I was very sleep deprived.

> >

> > I don't know if this is a passing thing or not.

> >

> > Any suggestions?

> >

>

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Guest guest

Thanks Mike that was exactly my level. I am hoping that things just

keep improving. I already already feel much, much better.

> >

> > Guys,

> > I started taking Testosterone replacement about two weeks ago. I had

> > been very low, 220 mg/DL, before starting. I had all of the classical,

> > immediate results. The next morning I woke up with a clear head, had

> > much more energy, increase libido, etc. My issue is that I have been

> > getting too little sleep. I traditionally had been getting 8 - 8 1/4

> > hours per night. I usually go to bed around the same time, 10:00 PM

> > and would wake up around 6:00 to 6:15. Now, I am waking up between

> > 4:30 to 5:00 AM and cannot go back to sleep. I feel pretty good and I

> > am wide awake. My problem is that I am nodding off every afternoon.

> > This last weekend, I had to crash-out since I was very sleep deprived.

> >

> > I don't know if this is a passing thing or not.

> >

> > Any suggestions?

> >

>

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Guest guest

My wife tried this and it did nothing poor women is up all night walking the

house nothing works.

Co-Moderator

Phil

> From: Steve <steve@...>

> Subject: Re: Sleeping Issues

>

> Date: Friday, August 8, 2008, 4:42 PM

> Thanks, I will look into this. My doctor also recommend that

> I try

> GABA (Gama-aminobutyric acid) before bedtime. I have tried

> it for a

> few nights and it seems to help some but I defiantly

> don't sleep like

> I did when I was a young man.

>

> (

> > >

> > > Guys,

> > > I started taking Testosterone replacement about

> two weeks ago. I had

> > > been very low, 220 mg/DL, before starting. I had

> all of the classical,

> > > immediate results. The next morning I woke up

> with a clear head, had

> > > much more energy, increase libido, etc. My issue

> is that I have been

> > > getting too little sleep. I traditionally had

> been getting 8 - 8 1/4

> > > hours per night. I usually go to bed around the

> same time, 10:00 PM

> > > and would wake up around 6:00 to 6:15. Now, I am

> waking up between

> > > 4:30 to 5:00 AM and cannot go back to sleep. I

> feel pretty good and I

> > > am wide awake. My problem is that I am nodding

> off every afternoon.

> > > This last weekend, I had to crash-out since I was

> very sleep deprived.

> > >

> > > I don't know if this is a passing thing or

> not.

> > >

> > > Any suggestions?

> > >

> >

>

>

>

> ------------------------------------

>

>

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  • 7 months later...
Guest guest

we have not had any issues with sleep. Is he too warm maybe? We usually have

his ceiling fan on low.

Good luck!

Robin SW Ohio

>

> My son has been DOC banded since 1/12/09.  He is 9 months old.  He used to

sleep thru the night until he started cutting teeth and then a month later

got his helmet. Now he is up about every 1-2 hours when he tries to move to get

comfortable and it just seems like he cant.  Sometimes I think its a combo of

teething (he has bottom two and top two just broke thru) and the helmet but I

was wondering if anyone else's child had sleeping issues with a helmet on? 

>  

> ~Very tired mom

>    Lori

>

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Guest guest

VERY hard to tell what hte problem is when he's teething and just getting used

to his helmet. If he had been sleeping in the helmet already, I'd assume the

problem is teething and use Motrin, Tylenol (or a combo...ask your pediatrician,

but since they have different active ingredients you can usually use both

together; I stagger them at night when the teething is really bad so one is

always in effect even if the other is at the end of its usefulness and/or Baby

Orajel on his gums. If he isn't used to sleeping in the helmet yet, you might

consider having him wear it to bed and then take it off in the middle of the

night if he wakes up uncomfortable or after he's woken up a few times if he

isn't sleeping.

Our orthotist said the helmet might make his jaw hurt worse if he's teething

since it may press a bit on it (especially the sideburn area), so it is possible

that he needs a little break from the helmet...ideally a little bit at a time a

few times a day rather than a complete break.

Definitely make sure he isn't too hot, and I nursed my son a lot more often at

night when he was getting used to the helmet (AND teething at the same

time)...it soothed him back to sleep....bad habit, but it helped us get through

the worst of it. Now he's got a few more teeth coming in and he's REALLY

uncomfortable, but Motrin and teething toys are helping and I'm leaving the

helmet on while he sleeps since he's used to it.

>

> My baby has been in his helmet for ~2 weeks and he has just started getting

back to his normal sleep pattern.� He would still cry out couple times in the

night, but will go back to sleep right away. The only thing that worked for us

is co-sleeping in our bed. He also had a cold a week after we got the helmet,

which probably also delayed his adjustment.

>

>

>

>

>

> ________________________________

> From: " mane5476@... " <mane5476@...>

> Plagiocephaly

> Sent: Wednesday, March 25, 2009 3:17:27 PM

> Subject: Re: Sleeping issues

>

>

> Hi,

>

> My son was also teething at the time he got banded and was also having

sleeping problems.. I started using a soft pillow and it seemed to help. I also

gave him homeopathic teething tablets..

>

> Marina

> Sent via BlackBerry from T-Mobile

> ________________________________

> From: Lori Riolo

> Date: Wed, 25 Mar 2009 08:39:38 -0700 (PDT)

> <Plagiocephaly>

> Subject: Sleeping issues

>

> My son has been DOC banded since 1/12/09..� He is 9 months old.� He used

to sleep thru the night until he started cutting teeth and then a month later

got�his helmet.�Now he is up about every 1-2 hours when he tries to move to

get comfortable and it just seems like he cant.� Sometimes I�think�its a

combo of teething (he has bottom two and top two just broke thru) and the

helmet�but I was wondering if�anyone else's child had sleeping issues with a

helmet on?�

>

> ~Very tired mom

> �� Lori

>

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  • 1 month later...
Guest guest

Huh. That's a tough one. I'm not sure what advice to give. My son preferred to

sleep on his stomach while he was in his band, but was able to turn his head

without a problem. What kind of helmet is it? Some bands I think are just too

thick and cumbersome, and just aren't comfortable for the baby. Can you go in

and just turn her head for her? Will she fall back to sleep like that? Maybe she

just needs to be shown how to do it? I'm not sure. Sorry I can't be of more

help.

Please let us know if you figure anything out. Good luck!

Jake-2.5 (DOCBand Grad 9/08)

Jordan-5

>

> Hi.....my 5 1/2 month old has been wearing her helmet for 3 weeks. She just

started turning onto her stomach in her crib. She can't turn her head to the

side due to the helmet, so she is laying face down and crying all night. HELP!

We're having trouble keeping her on her back to sleep now. Thanks!

>

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Guest guest

Hi ~ I am not even sure what kind of helmet Nora has. It is pretty

cumbersome. Last night we put the wedges around her, but had to go in twice

because she could not get comfortable on her back. It's just so ironic, because

that is what caused this whole problem to begin with! We also practiced having

her on her stomach during the day, and she just plants her face into the

blanket. The helmet really won't allow her to turn easily. Hopefully she'll

learn soon! Have a good night! :)

> >

> > Hi.....my 5 1/2 month old has been wearing her helmet for 3 weeks. She just

started turning onto her stomach in her crib. She can't turn her head to the

side due to the helmet, so she is laying face down and crying all night. HELP!

We're having trouble keeping her on her back to sleep now. Thanks!

> >

>

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Guest guest

That is a tough one. Luke started sleeping almost on his stomach too (he's

completely on his tummy except that his right arm is tucked under him so that

he can still suck his thumb). My only suggestion is the memory foam. It seems

like it allowed him to get more comfortable because the helmet would sink into

the foam a bit and cradle his head so that he could turn it to one side. But I

would only do the memory foam if you are comfortable that she can turn over.

Luke 5.3 weeks, severe brachy, mild left plagio

3.3 weeks in STARband

NYC

> >

> > Hi.....my 5 1/2 month old has been wearing her helmet for 3 weeks. She just

started turning onto her stomach in her crib. She can't turn her head to the

side due to the helmet, so she is laying face down and crying all night. HELP!

We're having trouble keeping her on her back to sleep now. Thanks!

> >

>

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