TIPS FOR COPING WITH HAVING A FAMILY MEMBER WITH HEPATITIS C

[Guest guest]

TIPS FOR COPING WITH HAVING A FAMILY MEMBER WITH HEPATITIS C

Remember:

¨ You cannot cure your family member. Despite your efforts, symptoms may get worse or may improve. Enjoy the good times.

¨ If you feel much resentment, you are giving too much.

¨ It can be as hard for you to accept the illness, as it is for the ill family member.

¨ You may learn something about yourself as you learn about a family member¢s journey through illness.

¨ Separate the person from the virus. Love the person, even if you hate the virus or side effects of the medication.

¨ It is not OK for you to be neglected. You have needs & wants too.

¨ Your chances of catching hepatitis C from casual or sexual contact with a family member is extremely low, providing proper precautions are taken to avoid blood contact.

¨ Everyone¢s blood has the potential to make someone else sick. Never share razors, toothbrushes or drug injection/snorting equipment. Make sure that tattoo, manicure, electrolysis and acupuncture establishments use sterile equipment.

¨ The illness of a family member is nothing to be ashamed of.

¨ You may encounter discrimination from an apprehensive public.

¨ You and your family member may have different comfort levels around disclosure of information to others. It is important to discuss this and be respectful of each other¢s needs.

¨ No one is to blame.

¨ Don¢t forget your sense of humour.

¨ Acknowledge the courage your family member may show in dealing with the illness.

¨ Your family member is entitled to his or her own life journey, as are you.

¨ Resist the survival-oriented response of shutting down emotionally. Find someone to talk to. You are not alone.

¨ Sharing your thoughts and feelings with others in a support group is helpful and enlightening for many.

¨ It may be necessary to renegotiate the way things have been done in your relationship, both emotionally and physically.

¨ Recognizing that a person has limited capabilities should not mean that you expect nothing of them.

¨ You may experience grief issues about what you had and lost, or about what you never had.

¨ After denial, sadness, and anger comes acceptance. The addition of understanding yields compassion.

¨ Diseases are a part of the varied fabric of life.

¨ Don¢t shoulder the whole responsibility for your ill family member.

¨ Forgive yourself and others for mistakes made.

¨ Physicians have varying degrees of competence, knowledge and experience.

¨ If you can¢t care for yourself, you can¢t care for another.

¨ The needs of the ill person do not necessarily always come first.

¨ Chronic illness affects the entire family, not just the person who actually has the disease.

¨ It is natural to experience a range of emotions such as grief, guilt, fear, anger, sadness, hurt and confusion.

¨ Support your local Hepatitis C group and the search for a cure!

http://www.hepcbc.ca/help%20friends.htm

[Guest guest]

From: Deb <posttransplant@...>Subject: TIPS FOR COPING WITH HAVING A FAMILY MEMBER WITH HEPATITIS CHepatitis Cfordummies Date: Thursday, July 17, 2008, 10:35 AM

TIPS FOR COPING WITH HAVING A FAMILY MEMBER WITH HEPATITIS C

Remember:

¨ You cannot cure your family member. Despite your efforts, symptoms may get worse or may improve. Enjoy the good times.

¨ If you feel much resentment, you are giving too much.

¨ It can be as hard for you to accept the illness, as it is for the ill family member.

¨ You may learn something about yourself as you learn about a family member¢s journey through illness.

¨ Separate the person from the virus. Love the person, even if you hate the virus or side effects of the medication.

¨ It is not OK for you to be neglected. You have needs & wants too.

¨ Your chances of catching hepatitis C from casual or sexual contact with a family member is extremely low, providing proper precautions are taken to avoid blood contact.

¨ Everyone¢s blood has the potential to make someone else sick. Never share razors, toothbrushes or drug injection/snorting equipment. Make sure that tattoo, manicure, electrolysis and acupuncture establishments use sterile equipment.

¨ The illness of a family member is nothing to be ashamed of.

¨ You may encounter discrimination from an apprehensive public.

¨ You and your family member may have different comfort levels around disclosure of information to others. It is important to discuss this and be respectful of each other¢s needs.

¨ No one is to blame.

¨ Don¢t forget your sense of humour.

¨ Acknowledge the courage your family member may show in dealing with the illness.

¨ Your family member is entitled to his or her own life journey, as are you.

¨ Resist the survival-oriented response of shutting down emotionally. Find someone to talk to. You are not alone.

¨ Sharing your thoughts and feelings with others in a support group is helpful and enlightening for many.

¨ It may be necessary to renegotiate the way things have been done in your relationship, both emotionally and physically.

¨ Recognizing that a person has limited capabilities should not mean that you expect nothing of them.

¨ You may experience grief issues about what you had and lost, or about what you never had.

¨ After denial, sadness, and anger comes acceptance. The addition of understanding yields compassion.

¨ Diseases are a part of the varied fabric of life.

¨ Don¢t shoulder the whole responsibility for your ill family member.

¨ Forgive yourself and others for mistakes made.

¨ Physicians have varying degrees of competence, knowledge and experience.

¨ If you can¢t care for yourself, you can¢t care for another.

¨ The needs of the ill person do not necessarily always come first.

¨ Chronic illness affects the entire family, not just the person who actually has the disease.

¨ It is natural to experience a range of emotions such as grief, guilt, fear, anger, sadness, hurt and confusion.

¨ Support your local Hepatitis C group and the search for a cure!

http://www.hepcbc.ca/help%20friends.htm