Waiting

[Guest guest]

Hello group,

I recently joined and have been reading daily. This is my first

official post. Thank you all for being here.

I am just about to be 50 years young on July 30. I am married with 3

children. I had to retire as Special Events Coordinator because of HCV

and its friends. So now I am a stay at home lady who volunteers with 4H

when her body allows. The young folks make me feel better. They are

like a tonic.

I was diagnosed in 2003. So far I have tried pegagsys and co-peg with

no response, took a break and then tried daily infergen and ribivirin

for 48 weeks and went to non detectable, but within 10 weeks my viral

load rebounded to 1.4 million with positive cryogobulinemia. Went back

on daily infergen but the Dragon is smart and figured it out and hid

from the meds, this time non-responsive to treatment. Needless to say

the side effects were less than desirable for me and my family members.

So now I am waiting...my latest ultrasound confirms cirrohsis, my latest

endoscopy confirmes esophogeal varices, and weird things are happening

to my body (ie. my fingertips are scaly and hard, almost numb but if I

hit my finger on something it hurts really bad, and recently my feet

swelled so much they spilled out of my shoes). I can't explain it very

well, but I can tell things are not right inside of me. The doctors

don't get it, but I can just tell. I believe its called malaise.

For now the gastro doctor says come back in 6 months which will be

October. He will order labs, viral load, ultra-sound and Alpha Feta

Protein. I will be due for an endoscopy then too. They will say my

labs look typical and come back in 6 months. It makes my husband very

angry. He wants me to be well and wants them to fix me now. For me,

this disease, or Dragon has taught me how to wait. Waiting on a cure,

waiting on a miracle, waiting on the second coming. Waiting is what

I do now and I am good at it!

On the positive side, I will become a grandma in July when I meet my

grandson Tyler.

My middle daughter and youngest son will be away at college in August.

My husband and I will have an empty nest.

I look forward to getting to know you.

K.