T & A ... didn't eliminate fevers

[Guest guest]

My son had a T & A in August. He missed a few fever cycles, but has now

started up again, with one in Dec and another exactly 3 weeks later in early

January. All the same symptoms... high fever (104), dark circles under his

eyes, leg pain, and headache.... lasting for 3-4 days.

My son turned 6 in October. He has had since he was 4 1/2 yrs old

(diagnosed by Dr. Feder in CT and at NIH). He has had a fever every 3 weeks

for 32 months, with two breaks of a couple months. His episodes started with

a series of infections - two ear infections and strep throat - all three

weeks apart.

I wish I could do something more for him. I know you all know exactly how

I'm feeling right now!

- Disappointed and Frustrated Mom

[Guest guest]

omg. im so sorry. so what's the plan of action know? is he sad that it

started again? my son started his colchicine two months ago. it's been great

until

last week when we went to Disneyland for winter break. like every other time

he started running a fever mouth sores and stomach pain but very weak. dr. says

due to the colchicine. anyway i gave him his prednisone for the first time

in the two months and now i had to pick him up from school today. mouth sores

and sick to his stomach. so i guess its starting again. good luck to you char.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

omg. im so sorry. so what's the plan of action know? is he sad that it

started again? my son started his colchicine two months ago. it's been great

until

last week when we went to Disneyland for winter break. like every other time

he started running a fever mouth sores and stomach pain but very weak. dr. says

due to the colchicine. anyway i gave him his prednisone for the first time

in the two months and now i had to pick him up from school today. mouth sores

and sick to his stomach. so i guess its starting again. good luck to you char.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Patty,

I'm so sorry to hear that the T & A didn't work for your child. I'm sure

you are very devastated. You are certainly seeing the right doctor,

though.

Just out of curiosity - since you're the first one I recall seeing that

the fevers returned after T & A, do you regret having the surgery done?

Thank you!

Ginger

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[Guest guest]

Patty,

No we aren't in the Hartford Area - I'm actually in Atlanta

(Alpharetta/Roswell area), but my pediatrician follows Dr. Feder's

articles and lectures. My pediatrician actually has 3 cases, so

he does a lot more research than most other pediatricians. We think he

is FANTASTIC. We didn't have to go through so much wondering about the

" it's just a virus " .

Best of luck in finding a cure or method to deal with this disorder for

you, your son, and your family.

Ginger

Ginger M. Hackett, PMP, ABCP

Systems Solutions Principal

CAR Financial Services, Inc.

5 Concourse Parkway, Suite 400

Atlanta, GA 30328

New Work Phone: (770) 828-1397

TREO Phone: (404) 915-5035

[Guest guest]

hi Patty I do not post often but have been a member here for at lest 5 years!

My daughter Breana(7) also had a T & A which did not stop fevers it did increase

the time between and her snoring stopped! So we to are glad we did it...she was

3 at the time. We have been going to NIH since AUg 02. Currently Breana is on

2 meds from NIH and doing OK we still fever but not hardly as much...plus Breana

is not the typical she has other things going on that Dr. Kastner has

seen.

[Guest guest]

hi Patty I do not post often but have been a member here for at lest 5 years!

My daughter Breana(7) also had a T & A which did not stop fevers it did increase

the time between and her snoring stopped! So we to are glad we did it...she was

3 at the time. We have been going to NIH since AUg 02. Currently Breana is on

2 meds from NIH and doing OK we still fever but not hardly as much...plus Breana

is not the typical she has other things going on that Dr. Kastner has

seen.