Re: Is she outgrowing it?

[Guest guest]

I believe my 5-year-old child did outgrow it. It's been a year since she

fevered although she still has the metallic breath and fatigue at times. The

fevers subsided at the same time I started giving her some multi-vitamins with

fish oil, but I can't say there's any correlation.

I've seen a few posts over the years from parents whose children outgrew it. I

think you are right that the parents whose children stopped fevering stop

posting.

Mirth White

[Guest guest]

My son fevered from around December 2001 (almost 1 year old) to June

2006. Then the fevers stopped. Starting in 2004 the fevers tapered

off and each year after that he had a few less fevers. He never had

a T & A. We treated the fevers with prednisone and although it

initially made the fevers come closer together, they eventually

spread out again. The prednisone made the fevers go away within 1

hour of one dose (1 tsp). and always made him sleepy and knocked him

out.

in Tampa.

[Guest guest]

How long did it take for the prednisolone to space the fevers?  It made my sons

come around 8 to 12 days apart.  The last fever it didn't break all the way.  He

ran a low 101 for four days and its been a month since the last fever.  I'm

wondering what to do.  When they were coming so close we scheduled a T & A for

November.  Now I don't know.  Maybe the pred would work if we gave it more

time. 

 

Whitney

[Guest guest]

How long did it take for the prednisolone to space the fevers?  It made my sons

come around 8 to 12 days apart.  The last fever it didn't break all the way.  He

ran a low 101 for four days and its been a month since the last fever.  I'm

wondering what to do.  When they were coming so close we scheduled a T & A for

November.  Now I don't know.  Maybe the pred would work if we gave it more

time. 

 

Whitney

[Guest guest]

Thanks , thats kind of what we are expecting to happen and will

probably still try the prednisone when it does.

[Guest guest]

Thanks , thats kind of what we are expecting to happen and will

probably still try the prednisone when it does.

[Guest guest]

Hi Stacey

We had one 16-week break and one 12-week break before the T & A. We hoped that

meant that Emma was outgrowing it but the the episodes went back to her usual

monthly cycle, sometimes more often with prednisolone.

Hope this helps

Inga

[Guest guest]

Hi Stacey

We had one 16-week break and one 12-week break before the T & A. We hoped that

meant that Emma was outgrowing it but the the episodes went back to her usual

monthly cycle, sometimes more often with prednisolone.

Hope this helps

Inga

[Guest guest]

Once taking the pred. the fevers could come as close to a week a part.

If they came that close together I did not use the pred. for the

second fever. I used tylenol and waited it out for the 3 to 4 days.

Then the next one would come 3 to 4 weeks and then I used pred. again.

When I gave pred., I only gave one dose (1 tsp) of pred. for the

fever. I really don't remember exactly, but I think the fevers started

to spread out again after 2 or 3 months. It seemed like a long time at

the time. I don't think the pred. made the fevers eventually go away,

I think that just occurred on its own. But I don't know for sure.

in Tampa.

[Guest guest]

Once taking the pred. the fevers could come as close to a week a part.

If they came that close together I did not use the pred. for the

second fever. I used tylenol and waited it out for the 3 to 4 days.

Then the next one would come 3 to 4 weeks and then I used pred. again.

When I gave pred., I only gave one dose (1 tsp) of pred. for the

fever. I really don't remember exactly, but I think the fevers started

to spread out again after 2 or 3 months. It seemed like a long time at

the time. I don't think the pred. made the fevers eventually go away,

I think that just occurred on its own. But I don't know for sure.

in Tampa.

[Guest guest]

Once taking the pred. the fevers could come as close to a week a part.

If they came that close together I did not use the pred. for the

second fever. I used tylenol and waited it out for the 3 to 4 days.

Then the next one would come 3 to 4 weeks and then I used pred. again.

When I gave pred., I only gave one dose (1 tsp) of pred. for the

fever. I really don't remember exactly, but I think the fevers started

to spread out again after 2 or 3 months. It seemed like a long time at

the time. I don't think the pred. made the fevers eventually go away,

I think that just occurred on its own. But I don't know for sure.

in Tampa.

[Guest guest]

I think some parent's whose children stop cycling do not post because

they are afraid they may jinx themselves.  I know that how I feel!

I do not want to say it's gone, for fear it will return!

     My daughter (now 7) started fevering when she

was one.  We went years with being told it was viral and she was a

sickly one before finding out it was .  I hope people with

young children are grateful for how quickly they are labeling kids now,

five years ago that was not the case!  If I had known then what I

know now, I would have had the T & A done right away and saved us all!

    My daughter cycled every 21 days with high fever, no

mouth sore, we used pred. and found it very effective.  It did

bring her cycles closer together for about four months, but then they

spread out again.  Last year my daughter only fevered six times

and in 2008 we are down to three and the last one was in June. 

Dr. Feeder (CT Children's) declared her " cured " last month!  We

are keeping our fingers crossed!! 

Amy

[Guest guest]

That sounds so similar to my daughter.

[Guest guest]

Did you have her tonsils and adnoids removed? I'm curious as my son, age 6, his

cycles/history sounds very much like your daughters. He has not outgrown it yet.

We are going to see an ENT next week. Since I've joined this group, I've learned

so much and now feel like I know what I'm talking about when I talk with the

doctors !

Amy Ryken, mom to Tommy (age 6 fevering since age 3), Lucy (age 4 no fevers),

ny (age 1 no fevers!)

[Guest guest]

Amy R.-

My daughter never had a T & A done.  By the time we knew about

is she was cycling less and less and it didn't seem worth it to put her

through surgery.

Amy Abbati

[Guest guest]

Amy R.-

My daughter never had a T & A done.  By the time we knew about

is she was cycling less and less and it didn't seem worth it to put her

through surgery.

Amy Abbati

[Guest guest]

Sorry for the late response - I, like you, have been swamped and have

not been able to keep up with the messages the last couple of weeks!

I haven't gotten to any of the other responses you may have received,

but my daughter, who just turned six on Saturday, seems to have

outgrown this. Like your child, she never received any medications

other than Motrin and (once or twice) Tylenol. This controlled her

fevers completely. Over the past year and a half, they have just

stopped coming. Her last fever was in March and I'm hoping that I've

seen the last of them.

Michele

Mother to (16), Abigail (13) and (just turned 6 - no

fevers since March)

[Guest guest]

Thats kind of what we are hoping is happening with Teagan. Thursday would be

her cycle day and if she skips this cycle as well (she skipped the last one) we

will be very hopeful.

Stacey

[Guest guest]

Thats kind of what we are hoping is happening with Teagan. Thursday would be

her cycle day and if she skips this cycle as well (she skipped the last one) we

will be very hopeful.

Stacey

[Guest guest]

Thats kind of what we are hoping is happening with Teagan. Thursday would be

her cycle day and if she skips this cycle as well (she skipped the last one) we

will be very hopeful.

Stacey

[Guest guest]

Hi Amy -

Just wondering how old your daughter is now and when she started to cycle less

and less. Also, did you ever use steroids to control the fever?

My daughter is 5 and has been fevering since 16 months, we tried cimeditine and

it did not work, so we use steroids and have not had a T & A. She is also

cycling less and less, but says her tummy hurts at times. As for the steroids,

she did not have bad behavior while on them and they came slightly closer

together at times, but not for long.

Lynn

[Guest guest]

Hi Amy -

Just wondering how old your daughter is now and when she started to cycle less

and less. Also, did you ever use steroids to control the fever?

My daughter is 5 and has been fevering since 16 months, we tried cimeditine and

it did not work, so we use steroids and have not had a T & A. She is also

cycling less and less, but says her tummy hurts at times. As for the steroids,

she did not have bad behavior while on them and they came slightly closer

together at times, but not for long.

Lynn

[Guest guest]

Hi Lynn,

You say that your daughter's fevers came slightly closer, but not for long.  Did

they eventually go back to a longer cycle period?

Olga

[Guest guest]

Hi Olga,

Yes, they did. The few times at the beginning when she started on the pred. the

fevers came within a few days of eachother, then eventually went back to a 3-5

week schedule, and have gotten farther and farther apart over the years. I give

her the pred. 1 time when the fever gets high (around 102) or if I can tell she

has not something else I will give it to her around a temp of 101. I did

have to give her the pred. again those times it was and the fever went

away until the next cycle. Her longest break was August 2007 to March 2008.

Lynn

[Guest guest]

Lynn-

My daughter turned seven in August, she began fevering about one

year.  We also tried cimendine which she broke through and didn't

work for us.  We have used the pred. and is was a godsend for us,

the fevers did come closer together for several months and then spread

out.  My daughter got such relief from it and it was such a small

dose, it never worried us- we rather do that than half a bottle of

tylenol / IB.  Once we started using the Pred., right when our

daughter started kindergarden, she never missed a day of school because

of , except for one day, the first time I gave her pred. and I was

not sure it would work!! 

has been " cycling out " as her Dr. calls it for the last year and

half.  Her Dr. (Feeder) feels most children fever for a period of

five years, which put her right on target.  She fevered 6 times in

'07 and three times in '08, the last being in early July.  That is

the reason we never did a T & A, if I had know about it about it 3 or

4 years ago I would have jumped at the opportunity to end it all.

As I have said before my daughter was never severe, no mouth

sores or joint pain - just high fevers, stomach pain and headache.

I will admit my chest still tightens when I hear her say " Mommy I don't

feel good " and my hand goes for her forehead!  We hope it's gone

for good, and if not the breaks been great!

Amy