Re: First appointment with Rheumatology

December 11, 2008

I am not sure what your Rheumatologist will do. Probably more tests? We never

saw an ID doc, just a Rheum. We did more blood work ruling out cyclic

neutropenia and some DNA testing. Ultimately it was our regular Pediatrician

who referred us to an ENT for the T & A. Luckily, our Pediatrician was already

familiar with the study (you really need to take a copy of it on your appt with

the Rheum and your Ped - it is amazing how many doctors are unaware of this!)

Our ENT was also aware of it and was completely in agreement with having the T & A

done after reviewing Tyler's history.

Tyler's surgery was in August and he has not fevered since the episode before

the surgery.

I am hopeful that it will continue be a success, but even if it is temporary I

have seen a huge difference in his communication skills since the surgery.

I wish you the best of luck at your appt and with whatever course you decide to

go with your child's condition (it is a personal choice for all of us).

Happy Holidays

Pruden

Tyler Pruden 3yr old, fevered since 3mo ? - T & A Aug 5,2008 - no fevers

since

Dylan Pruden 9mo

December 12, 2008

Thank you for replying.

So, do you guys suggest we take this study to our pediatrician and ask

her to refer us to an ENT? instead of going the Rheumatology route?

Our diagnosis is two years old though, I am thinking a fresh disgnosis

will be good to convince the ENT. Who gives this diagnosis? Two years

back, it was the Infectios disease speicalist at Childrens who gave us

the diagnosis. I really don't want her to go through so many blood

tests which alwyas came negative for every disease under the sun.

Thanks

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