Re: without sore throat???

[Guest guest]

Hi there

I have been looking for a fellow Canadian on this site!

We actually have a prescription for Prednisone but have not used it for our 2.5

year old son as of yet. We are currently using Singulair as a treatment option

and it has seemed to help the severity of the symptoms.

We had been experiencing fevers every 24 days for quite a while and then every

2-3 weeks and we have now been fever free for 28 days, which is something very

new for us!!!

We have seen several specialists in Ontario and they have all said that is

something that should grow out of, so your information about this being a

life long syndrome with decreasing severity is news to me for sure.

I would be interested in any other information that you come across though!

Regards,

Mother to 2.5, fevering since 8 months.

[Guest guest]

OH MY, until your reference to it, I completely forgot about the naprosyn that

we tried. The very first visit to our IFD we tried the naprosyn, but since this

seems to be more of an anti-inflam drug, it didnt help my son . It also did

nothing to the fever. So we did not use again.

Secondly, another email mentioned that sore throats were 'common' in the

. This is news to me. Other than the fever, and mouth sores, doesnt

complain of sore throat (unless there is the sore in the throat.) And the joint

pain, is only if the fever SPIKES incredibly high. We are schedule for a T & A

on Apr 4th, and pray this will do the trick

gOOD LUCK TO ALL!

CINDY

[Guest guest]

Have you been given the diagnosis of ? There are all sorts of periodic

fever syndromes out there. Some are very different than others. We took our

son to an infectious disease doctor who diagnosed him with . He was VERY

clear with is that this does go away with age around 10 to 12 years of age. All

of the literature from around the world I have read supports his position. No

where have I seen or heard about naprosyn being prescribed for this syndrome.

The course of treatment is with cimetidine or Singulair to see if the symptoms

cease. If not then T & A has shown promise. Otherwise, its a wait and see game.

Can you do all of is a huge favor and ask the doctor who told you that they do

not outgrow this to get you specifics? Your post has really alarmed me and I'm

sure others out here. If this is just a misinformed doctor that would be helpful

to know. If however this doctor has some research or other empirical evidence,

then if like to

know what it is. Many thanks

[Guest guest]

Hi

from my expirience with my dauthter the symptoms change with age. she

used to suffer from the throat but in the last episodes she does not.

it is mostly the high fever, the joint pains, feeling very week and

mouth sores.

about - my older son was dignosed with when he was 5 and

it lasted untill he was 8. he is 14 now and god help us he is okay.

on the other hand my little daughter is fevering since she was few

month, and she is 6 now and she has an episode every 20 days. we

started taking singulair and it seemed to help after a while there

was an interval of 40 days, but unfortunately we are back to the 20

days cycle. although some of the episodes are shorter. I am keeping

notes in order to see the influence after a while. so in part I can

reassure you that from my expirince it stops. but it is soooooooo

difficult untill it stops.

if you have fevers every three month you are kind of lucky, pray that

it will only get better.

Gali

mother of Hili 6 with

[Guest guest]

I know this is a really late reply on this topic and I am sure has been answered

or touched on. I just wanted to say with my daughter, her throat looks horrid..

looks like it would be very painful but generally there is no pain. The

swelling is the character trait and as far as I have been told, pain usually

doesn't come with it. Like I said, looking at my daughter's throat you would

think it would be so painful. Not the case.

.