Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Hi Everyone, I've never introduced myself and my 5 year old daughter, Olivia. Olivia's fevered since about 12 mths of age but her syndrome was only taken seriously after I charted it for four months. Her fevers severity spiked by age two with fevers every two weeks for months and seizures. She was put on Naprosyn (an arthritis drug) and took it twice a day for 18mths which did lower the frequency of the fevers and manage the fevers better (lower temps). We've never received a diagnosis notwithstanding seeing every pediatric specialist and multiple tests. The medical community then settled on her seeing a pediatric rheumatoligist regularly and this summer after longstanding daily stomach complaints we tried her off the Naprosyn (which has a terrible history of stomach irritation) and she did no worse. Her fevers are now about every three months and the local specialists now say that these fever syndromes are not outgrown (as we were told 3 years ago) but just lessen in severity. My Question...Olivia doesn't have a huge history of sore throats...which is one of the hallmarks of ...but she has all other classic symptoms...fevers, mouth sores, severe joint pain during episodes, and stomach aches. Can it be without sore throats???? Second...none of the doctors ever spoke of prednisone. Olivia and I both have asthma (interestingly another auto-immune disorder) so I know what prednisone is...but I've not heard of this use in Canada. Any Canadians out there who have been given prednisone for their kid???? I also found it really off that in all the posts I've read I haven't heard of any other child on Naprosyn????? Mady, Mom of Olivia...5 yrs Quote Link to comment Share on other sites More sharing options...
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