Jo Lynne

[Guest guest]

Hey Jo Lynne,

I understand your gastroparesis better than anyone since I have it as well with my paralyzed colon. I know the feeling of being sick from not being able to go to the bathroom. I am on colchine , raglan, and probiotic. I have had this for almost 4 yrs now, sometimes it was so rough I thought I was going to pass out from the pain. Thank goodness its getting better now!

Talk to you soon,

Bek

Lactulose

I am 13 1/2 yrs Post Transplant - PBC & AIH has come back.

My ammonia level is very HIGH and with gastro paresis the

lactulose is making me very sick (throwing up). When I

first started on it earlier this year and it sure does not

do what I remember from the last time, it took six days

to have a BM. So do any of you know what else to do

for the ammonia? I live alone and it is to scary with

my ammonia level.

Thanks in Advance.

Jo Lynne

[Guest guest]

I sure wish we were not in this club!! lol Take Care, B. in TEXASFrom: Jo Lynne <jolynne4@...> Sent: Thursday, February 19, 2009 7:28:16 PMSubject: Fw: letter from a florida teacher

My ear has a phone glued to it. If they would

stop changing their mind. I have a huge

stack of letters. When I was on Cobra and

not Medicare D I had NO PROBLEM.

My Medicare D Provider was my prescription

coverage while working and thru Cobra.

The Doctor they have on file is not my

Doctor now and they called him and

asked about my meds. BIG HIPPA

RULE NO NO.

At least they have sent me my life saving

Meds.

So Jeff and B welcome to the club.

Jo Lynne

Re: letter from a florida teacher

I know things like this are out there Jeff because when my COBRA ended from my previous job, I had several months without insurance. I called every agency I could find and one here in Texas (can't remember which one) actually told me, if I was an illegal immigrant they could help me. I was stunned. I never could find any assistance. So until my Medicare kicked in, I had no insurance, fortunately my pain mgt doc continued to see me for $10 a visit

Take Care,

B. in TEXAS

.