Re: A Reminder: For All Our Members in ESLD from All of Us

[Guest guest]

Thank you for the update, Deb. My prayers are with them all. Hugs, VickieG

A Reminder: For All Our Members in ESLD from All of Us

Our member Glenda here in the U.S. is still waiting on the list for a matching donor and liver transplant. All her directed living donors for 1 reason or another did not match or could not be her donor.

We also have our Suzie now listed in Canada and many quiet members too either in ESLD end stage liver disease from HCV - waiting for higher MELD scores to be actively listed in the U.S. - actively listed or denied unable medically for a liver transplant.

Once in ESLD many members can no longer be active in group. It's too much for them to handle from being too ill total fatigue confusion in a brain fog from severe complications. ......... ...

Please join us too all prayers all faiths all good vibes continuously sent there way.

Our Hopes and Prayers Goes Out To Them All.

Deb

[Guest guest]

many prayers and thoughts from another ESLD with Hep C who just got back from TP eval in SF Newton in Nevada From: VickieG <onelildeltagirl@...>Subject: Re:

A Reminder: For All Our Members in ESLD from All of UsHepatitis CSupportGroupForDummies Date: Friday, August 22, 2008, 6:54 PM

Thank you for the update, Deb. My prayers are with them all. Hugs, VickieG

[Hepatitis CSupportG roupForDummies] A Reminder: For All Our Members in ESLD from All of Us

Our member Glenda here in the U.S. is still waiting on the list for a matching donor and liver transplant. All her directed living donors for 1 reason or another did not match or could not be her donor.

We also have our Suzie now listed in Canada and many quiet members too either in ESLD end stage liver disease from HCV - waiting for higher MELD scores to be actively listed in the U.S. - actively listed or denied unable medically for a liver transplant.

Once in ESLD many members can no longer be active in group. It's too much for them to handle from being too ill total fatigue confusion in a brain fog from severe complications. ......... ...

Please join us too all prayers all faiths all good vibes continuously sent there way.

Our Hopes and Prayers Goes Out To Them All.

Deb

[Guest guest]

The thought of not getting a new liver scares me more than doing Tx.

I start Tx the first of September. It is amazing to me that they have

to half kill you before you can get a new liver. Massive doses of

radiation from CAT scans. All those chemicals to diagnose and treat

various sides from ESLD " sigh " I am in complete awe of anyone who has

made it to liver transplant and actually got a new liver!!!

Geno 3a, ESLD

MELD 11 sick as a dog and still not sick enogh to be listed!!

>

>  

> Our member Glenda here in the U.S. is still waiting on the list for

a matching donor and liver transplant.  All her directed living

donors for 1 reason or another did not match or could not be her

donor.

>  

> We also have our Suzie now listed in Canada and many quiet members

too either in ESLD end stage liver disease from HCV - waiting for

higher MELD scores to be actively listed in the U.S.  - actively

listed or denied unable medically for a liver transplant.

>  

> Once in ESLD many members can no longer be active in group.  It's

too much for them to handle from being too ill total fatigue

confusion in a brain fog from severe complications.............

>  

> Please join us too all prayers all faiths all good vibes

continuously sent there way.

>  

> Our Hopes and Prayers Goes Out To Them All.

>   

> Deb 

>  

>  

>