Only 11 days between fevers? Is it possible?

[Guest guest]

, 5 Pfapa for 1.5 years, on Pred for 3 mo's, is having a fever

tonight only 11 days after his last attack. Is it possible?

So scared!

nna

[Guest guest]

Prednisone has been known to increase the frequency of the fevers, but

shorten the actual fever cycle so it goes away quicker. Have you

looked into a tonsillectomy?

[Guest guest]

Prednisone has been known to increase the frequency of the fevers, but

shorten the actual fever cycle so it goes away quicker. Have you

looked into a tonsillectomy?

[Guest guest]

I knew it shortned the cycle but this much? So unfair. He seems to be

missing out on so much school, activities and just everyday normal

comfort. We do need to look into T & A.. but I was so ready to just ride

it out with the Pred every 10 weeks or so. Not every weeks.

R

[Guest guest]

I knew it shortned the cycle but this much? So unfair. He seems to be

missing out on so much school, activities and just everyday normal

comfort. We do need to look into T & A.. but I was so ready to just ride

it out with the Pred every 10 weeks or so. Not every weeks.

R

[Guest guest]

Hi nna

One thing to note about the Prednisone - from what I have researched in medical

journals, the length of time between cycles for most child does lengthen after

the consistent usage of Prednisone. I actually posted a reference to a medical

journal which noted this.

I am in the process of determining whether to use the Prednisone(we actually

have a prescription) for my 28 month old son. We are holding off at this point

due to the fact that my son's fevers are only lasting approximately 2-2.5 days.

We think the shortened cycles are due to the Singulair that he has been on since

last August.

Good Luck

[Guest guest]

Hi nna

One thing to note about the Prednisone - from what I have researched in medical

journals, the length of time between cycles for most child does lengthen after

the consistent usage of Prednisone. I actually posted a reference to a medical

journal which noted this.

I am in the process of determining whether to use the Prednisone(we actually

have a prescription) for my 28 month old son. We are holding off at this point

due to the fact that my son's fevers are only lasting approximately 2-2.5 days.

We think the shortened cycles are due to the Singulair that he has been on since

last August.

Good Luck

[Guest guest]

Hi nna

One thing to note about the Prednisone - from what I have researched in medical

journals, the length of time between cycles for most child does lengthen after

the consistent usage of Prednisone. I actually posted a reference to a medical

journal which noted this.

I am in the process of determining whether to use the Prednisone(we actually

have a prescription) for my 28 month old son. We are holding off at this point

due to the fact that my son's fevers are only lasting approximately 2-2.5 days.

We think the shortened cycles are due to the Singulair that he has been on since

last August.

Good Luck

[Guest guest]

Hello,

My name is Suzanne and I'm relatively new to this group. I've been quietly

reading and I wanted to introduce my self and my 6.5 year old sons

problems. I come from a long line of Doctors within my family and extended

family members and its very discouraging for all involved. My son in fact today

has broke out into his fever average 21or 28 day monthly cycle usually 104 temp

for 2-3 days. Horrible puss sacks with swollen tonsils. He has also ulcer

pains within his stomach so eating becomes very light for a few days. His total

cycle lasts anywhere between 4-6 days. He usually never complains of pain but

his attitude is very off he's normally a very sweet child when he's not sick but

cranky as all on the first day of his cycle but then relatively fine, kind of

like a warning sign of whats going to be happening in the next few hours. I

thank God that he's an under sensitive child for pain because the swollen

tonsils and stomach ulcers are

extremely painful but he's a tough kid But he gets very tired as if had Mono.

Which we did in fact test him for but negative and positive for , by our

ENT and Immune and Disease Specialists of San Diego. We have been fighting this

since last May. Our Primary Physician suggested to be seen by an ENT because he

had been treated 4 times straight with antibiotic and his systems were like

clock work. So we went to an excellent ENT practice had put him on a very

nasty antibiotic for chronic tonsillitis. Well 2 more times back to back month

she suggested a T & A. BUT she waned us to see the Disease and Immune Specialists

for a third opinion, she thought she was dealing with but wanted their

opinion before surgery. Which was scheduled 1 month later. Well thank goodness

we did see the IDS they 100% said that he does not need a tonsillectomy. When

these Doctors checked his tonsils they were perfect and in fact they they are

for the 3 weeks

that he's not sick. His suggestion was unless he has apnea than do not do the

T & A. It won't be the cure for his . T & A is done for chronic tonsillitis

in order to have this then the tonsils will remain in somewhat a painful ongoing

process for my son after his cycle he's good as new. Healthy Tonsils do have

the duties that are worth having. Also if your immunity is weak end than

surgery is the last place that I want to send my child, the risk of getting an

infection from the surgery is higher than the normal case. My father as been a

chief surgeon and still performing surgeries for almost 33 years and believe me

you want a strong immunity system going into to surgery. So all Doctors agreed

to not to perform the surgery for the time being,

We love Motrin! and Tylenol they help the pain and when he's taking to medicines

he's looks fine and we just keep things a bit quieter. We mark our calendars

and make sure that we do not overload the day before.

The prednisone does help shorten the times but can actually have the cycles

become closer between as early as 14-21-28 day monthly cycle. The concerns that

putting my child on a steroid when knowing that there is a price to pay for this

treatment....not quite worth it for us. We are going to to begin the Singular

he has other allegory issues so that's going to be a win win situation.

From what many Doctors have told our family they just honestly don't know! What

we do know like a women's period that comes every month so will our sons painful

discomforts will happen. So this is why we love Motrin and Tylenol.

Thank you for taking the time to read on whats going on with my little guy. If

anyone can suggest anything please do! I hate seeing my child sick soooooooo

much!!!

Thank you,

Suzanne