treatment sides

[Guest guest]

Hi all, I was wondering what anyone going trough treatment or has went

through could answer my a question. I read online that the side

affects that they talk about are more common than they lead you to

believe. It's sort of when someone tells you having a baby doesnt

hurt, so you won't be scared, and that if they told you the whole

truth most won't try treatment and some are sorry they did treatment.

Then it went on to say all the negative and other very serious

conditions can develop way after one stops the treatment. I go

thursday afternoon for my first treatment shot, my doctor wants to

show me how to do it.

My sister had cancer and she said that when they put her on chemo,

they told her the same thing everyones different, well she was sick as

a dog, and everyone she met was also, so is the same,they just tell

you what they want you to hear? marsha

[Guest guest]

>Hi

Im a 1a non-responder

did 48 weeks tx .

sides where no that bad for me

i was able to work 40+ hrs a week

]and yes it is true we all diiferent

donr believe all the horror stories

Tom

> Hi all, I was wondering what anyone going trough treatment or has

went

> through could answer my a question. I read online that the side

> affects that they talk about are more common than they lead you to

> believe. It's sort of when someone tells you having a baby doesnt

> hurt, so you won't be scared, and that if they told you the whole

> truth most won't try treatment and some are sorry they did

treatment.

> Then it went on to say all the negative and other very serious

> conditions can develop way after one stops the treatment. I go

> thursday afternoon for my first treatment shot, my doctor wants to

> show me how to do it.

> My sister had cancer and she said that when they put her on

chemo,

> they told her the same thing everyones different, well she was

sick as

> a dog, and everyone she met was also, so is the same,they just

tell

> you what they want you to hear? marsha

>

[Guest guest]

Oh, my dear Tonni

You have listed all your reasons for living a long, full life. Treatment does not necessarily mean a long life in bed. How will your family be cared for in the future if you have not taken some time to care for yourself and you die of complications before it's your time? All injections do not affect you as you have described here. I had many that didn't affect me at all. Peppered into the bad days were some very good ones in which I felt like traveling to Florida for two weeks or just enjoying my time here at home. Sure, there were those days I spent resting but knowing that my virus would be brought under control made it worth the time in treatment.

I can't say that taking the Ribavirin was any worse thant taking the Pegasys shots. My sides were from the combination of both, I'm sure. You can't take one without the other, so it must be.

You must keep a positive attitude. Before going into tx, inform those who look to you for all their needs about what they may expect before you go into the treatment. Your 17 year old daughter can handle a lot of things you are doing for the family and six year olds love to help when allowed. You sacrifice daily for them, now allow them to learn to give back a little.

Not treating may result in your need for care the rest of your life as well as the need for someone else to handle the care of the rest of your family.

Remember, God never puts more on us than we can handle. He always provides for our needs and He carries us through the difficulties we encounter through our lives here on earth. This is a time when you must be very strong and follow through. For your family and yourself. Hugs, VickieG

[HepatitisCSupportG roupForDummies] treatment sides

Hi all, I was wondering what anyone going trough treatment or has went through could answer my a question. I read online that the side affects that they talk about are more common than they lead you to believe. It's sort of when someone tells you having a baby doesnt hurt, so you won't be scared, and that if they told you the whole truth most won't try treatment and some are sorry they did treatment.Then it went on to say all the negative and other very serious conditions can develop way after one stops the treatment. I go thursday afternoon for my first treatment shot, my doctor wants to show me how to do it.My sister had cancer and she said that when they put her on chemo, they told her the same thing everyones different, well she was sick as a dog, and everyone she met was also, so is the same,they just tell you what they want you to hear?

marsha

[Guest guest]

But in the last year or two, my family has been seriously tried. I use to say God doesn't give us more than we can handle, but now I say God gives us enough to get us on our knees where we belong; i however have been here over a year praying to keep my family together. Life has hit my family so hard in so many different ways that my husband and I are now 2 people within one house. I know I will always have God, but I truly also need my husbands support, especially with raising this family.

When I spoke of commiting to 4 weeks of treatment, my husband reminded me that his x-wife had brain cancer and bucked up and handle her days thru chemo. I do not believe she had 2 small kids and a young special needs child, but again I refuse to have that arguement with him. I need support to handle this. I only have God. I know he does wonders, but truly He can't babysit, he can't be my sons arms and legs and driver to school and appointments. My six yea rold knows he can't live with his real mother casue she is sick....what will he think when I am sick????????????? What of my teenager, that yes, can help, but is a senior and also deserves a life, but yet also needs me to stay on her toes for life is very trying for teenagers today. And who will take care of my mothers medical, her husband is a disabled vet, that can do things only when instructed, and can not transfer to and from appointments, or stay on top of things to be sure all gets done. Or

what of her upcoming surgery to replace her skull? Or my older sons complete knee reconstruction and then intense rehab? Or my constant fight with the school for the basic rights of my special needs son???????????????Or the fact that any day the boys' real mom is to give birth to #4, and if she tests positive for any kind of drug, #3 & #4 will also become mine??? Or the fact that my husbands company is moving to New York and we are not??? Or the bankruptcy we just filed helping some, but truly what use to support this household doesn't even come close any more. I know many families with this struggle, but gee, how much am I to handle. Some days I wish for treatments, so I could lay in bed sooo sick I would not have to face my life today. But because I spent 29 years trying to kill myslef, and now God has shown me a new light, I instead pray for peace, for strength to get thru another day....doesn't mean I don't also pray for a time out.

I have commited to 4 weeks, to be started as soon as I feel I have the basic needs of my kids covered. It may all be unnecessary and treatment may be a breeze; but I have been on this site for over a year and only one person ahs said it was easy.1 person. I know my limits, for now 4 weeks is all I can. Besides, doc says if there is no change in 4 weeks I would not beat the disease any way. If it will get me any way, why put myself and my family thru it.

Either way, until I start and see how it is for me, I will not know what I cna and can't do. THE SPOON THEORY, already have; I can only assume it will get worse in the ways of my life.

I know that without my husbands support, my family will fall apart if I am unable to stand up for what is right, continue going to church and prayer they all wake back up to God's ways and will. It is hard to be a strong Christian when you are the only one in your house. My husband is a good man, he has juist forgotten.

Tonni Brende Wife, Mother, Grandma too WORRY ABOUT NOTHING...PRAY ABOUT EVERYTHING.

"Life's most persistent and urgent question is, 'What are you doing for others?'” ~ MLK JrTrying to earn my wings...one feather at a time.

I would rather walk with God in the dark, then to walk alone in the light. athan, PVL, ACC, Unknown Leukodystrophy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. 11:28-30 "Come to me, all who labor and are heavy laden and I will give you rest. Take my yoke upon you and learn from me; for I am gentle and lowly in heart,

and you will find rest for your souls. For my yoke is easy, and my burden is light."

[HepatitisCSupportG roupForDummies] treatment sides

Hi all, I was wondering what anyone going trough treatment or has went through could answer my a question. I read online that the side affects that they talk about are more common than they lead you to believe. It's sort of when someone tells you having a baby doesnt hurt, so you won't be scared, and that if they told you the whole truth most won't try treatment and some are sorry they did treatment.Then it went on to say all the negative and other very serious conditions can develop way after one stops the treatment. I go thursday afternoon for my first treatment shot, my doctor wants to show me how to do it.My sister had cancer and she said that when they put her on chemo, they told her the same thing everyones different, well she was sick as a dog, and everyone she met was also, so is the same,they just tell you what they want you to hear?

marsha