Re: Mental effects of

[Guest guest]

,

My son was in special education because of behaviors and that made a

HUGE difference. Is it related to ? I don't know. When he turns

three years old: You can contact your school district (community

education) and they will do an evaluation for you. If he qualifies

qualifies the school will give him education- attend school at no

expense to you and they will transport him as long as he lives in that

school district. Do I want a child with a " special ed " label? No, but

it was the biggest blessing in our lives and he will fall off his IEP

and won't qualify for services after this year (the IEP's last only

three years and he is doing great). You can also have a him on an IEP

(individual education plan) for " other health issues. " I don't know if

the IEP for OHI can be done at 3 years old, but I would look into this

option. My son was at special ed 4 days a week and they also paid for

him to attend pre-school 3 days a week. His IEP this meeting might be

the end of services for behavior reasons, but I will be discussing the

OHI IEP so if he does miss a lot of school he is covered by his plan.

Prior to turning three years old you can contact your school district

and they will evaluate him and they can do services in your home with

your son. This is also free. These are federal grant funded program

because it costs more to do these programs when the children gets

older. They are happy to do this.

My personal theory is possibly your son is not getting the same degree

of developmental needs being met as your other children because your

child is sick. In a young childs life, missing one week of their life

being sick isn't a big deal, but take all those weeks out of one year

and you really are missing opportunities you have with your other two

children. This is only a thought- take it or leave it. Sometimes it's

just temperment. I also have three children with strong wills, but my

son with goes off the charts with strong will. He

has " variations of temperment " according to the psych department at

Mayo Clinic. Only 5-10% of kids have this, but it basically means he

experiences everything with stronger emotions. Best of luck and I hope

if you do decide to do anything I mentioned you send an update. I had

no regrets getting my son what he needed. I cried through the process

and it's humbling, but I made the decision his needs outweigh my

pride. I knew he wasn't happy with himself either when he was out of

control. The school loves him, he is also a gentle child when he is

not challenging a lot. We also have in in Occupational Therapy to help

us with sensory issues he has and helping him to learn to calm down on

his own. Regards, Lynn

[Guest guest]

This is one of the most UPSETTING parts of for myself. Our son

who is now 4 and a half was just diagnosised a couple months ago

after a year of fevers, headaches, throwing up..ect every 3.5 weeks.

My sweet, adorable, kind hearted little man changed when he started

getting sick. He developed sever seperation anxiety (starting jr

kindergarten this fall has been a nightmare), he has developed

horrible temper and tantrums, difficult to displine and become very

aggresive and just a TOTALLY DIFFERENT child then the one we had

prior to the episdoes starting. These symptoms are more apparent

just before an episode and right after, but his anxiety between

episdoes is very elevated.

It's difficult because we know his behaviour is directly linked to

his physical and emotional state due to become ill or getting over

being ill, but his behaviour is just OVERWHELMING on the negaitive

side.

His behaviour has GREATLY improved the past couple of weeks as he's

had a slight low grade fever due to various colds going around at

school (sniffles and cough as well) and as for the first time in a

year missed his routine fever thus far this month (tonight he was

getting warm though and I'm predicting another regular high fever

tomorrow). He's beeing going to school without crying, more

independant, less over the top behaviour...which just solidifies to

me the fact that the drastic mood and behaviour changes we've seen in

the past year are directly due to .

When I talk to family and friends about what we're dealing with as

far as quite often I catch myself saying h0w hard it is to see

your child so sick ect ect...but the worst part is watching my childs

personality change and having him just be MISERABLE...even before and

after all the PHYSICAL stuff.

[Guest guest]

I agree with you and would like to know more about the neurological

and behavioral effects of . When I have asked the doctors if

there is any link between the two, I never get a straight answer. Our

son is 2 1/2 and when he feels good he is an angel, but before, during

and after an episode, he is an entirely different kid. He gets very

irritable, major temper tantrums (out of the blue), mood swings and

super hypersensitive to everything (noise, hot, cold, bright lite,

etc.). The problem is this behavior seems to be becoming more the

norm. If you count all the days he feels terrible: 2 days before, 3-5

during an episode and 5-7 days after to fully recover, so basically

the episode is a two week event and then in two more weeks it happens

all over again. So it is no wonder their behavior is effected.

My son may also have some sensory issues and I wonder if these are

related to the . We had a period of around 8 weeks of no

episodes and all of the sensory issues and behavioral seemed to

disappear. However, the next episode kicked every thing back up. He

also has hyperacusis in his right ear which I wonder if could be

related to , because his right tonsil is always enlarged.

Anyone have similar issues??

I have the in-laws telling me my sons issues are because we do not

dicipline correctly. Please. I would love to find the information on

how it effects them and send it to my in-laws.

SD

[Guest guest]

My husband and I read your post and had to laugh because you described

our son. Our family is also thinking he a difficult child because

they think we do not discipline correctly. You will laugh at this, my

Mother-In-Law is actually suggesting I contact Super Nanny...so very

annoying. I had to really bite my tongue on that one.

What do you say to your family when they say you are not discipline

correctly? I find it difficult to explain how the could effect

their behavior. Just curious what you say.

SD

[Guest guest]

Tough question. Fortunately for us our son is in enough services that

I mention it in conversation as much as possible when a professional

tells us we are doing a good job. We've gone through behavioral

management classes and that actually was helpful. He's in OT and

special education at school so we have a strong support system

that " gets it. " The sad news for us is that my husband and I avoid

going a lot of places. Our families are small and geographic spread

out. My husbands parents asked if we were going to put our son on

medication for his hyperness when we flew to see them recently and we

told them " no. " We prefer to look at more holistic approaches like

OT. We have isolated ourselves from friends and visits to my dads

house usually are only a few times a year and last about 2 hours. We

leave when we can see our son starting to work up. So a lot our family

has no idea or can't believe what it's like when we try to tell them.

My mom does get critical of us since she's around us the most. I think

I just ignore her or tell her she does not understand what we are going

through. The is one battle and then add on behaviors and it is

exhausting. Also, I have educated my mom on sensory issues and she

will bring him to OT for us since she is retired and is willing to do

this. So our OT person provides my mom with updates and concerns. My

mom called OT " vodoo " when she first heard me talk about it. She

thinks it's awesome now. If you can find a way to reason with a child

with sensory just let me know! I think we have done a lot of educating

on and sensory with our families. Luckily I have a sister that

is a teacher with special education and gifted children and my sister-

in-law is a physical therapist so they can also help those that doubt

certain things to understand. Also, my husband and I went to a great

conference on sensory last November. They are looking at trying to get

that as a diagnosis in the DSM (diagnostic mental health book of

disorders). Not that I want my child to have a diagnosis, but we are

dealing with something real. I think that would add some validation to

families dealing with sensory issues. It is nice to read something

that connects with your situation so you don't feel like you are the

only one out there dealing with this. I also tell my mom things I have

read on line and on this site. I just try to out educate myself on

different things and sound like I'm an expert when I talk to them so I

don't need their input. (I'm not on expert). So I might say, " I was

reading this article and they said this. That makes me feel good

because we have been doing that so I know we are on the right track. "

I take the wind out of their sail before they have a chance. I'm not

rude and I don't throw it in their face, it's done in casual

conversation, although I have a purpose. Instead of your family

sending in super nanny, maybe your family should send you and your

husband to a spa retreat. That sounds more like what you need! At

least I could use that:) I'm long winded, sorry. Best wishes. Lynn

[Guest guest]

Im reading these posts and is so emotional. She is in tears over

little things. She is always tired and she has mood

swings. " everything sucks " is the best way to describe it. She eats

very little. Nibbles most of the time and is exhausted. She is now

in day 3 of a mild episode but her pain is through the roof. She has

a mild fever, mouth ulcers, and pain in her hips, back of knees and

shoulders. Lower back as well. I only do the pred when her fever is

much higher.

She just had an episode not but 2 weeks ago.

Im also wondering if stress has anything to do with the episodes.

is the " Make up my school work Queen " and is always stressed

about it. We had meetings with all her teachers last week and she

was worried about it. Now , 5 days after, she is in another episode.

Anyone?

Thanks

Marcie

New Jersey

, 14

[Guest guest]

sounds like your having a hard time with your teen. trust me you are not

alone. my son also 14 is the same way. pms 28 days out of the month. he hates

getting sick all the time and he just wants to be able to do sports without all

the pain that comes with it. these are tough cranky kids, they go threw more

then we could ever imagine. when he really gets me mad i just have to walk

away stop and think what is causing him to go off at this moment. when i go back

he is either done with the fit or still cooling down in which case i just

leave again. i chose to pick my battles and its usually over brushing his teeth.

besides all this he is the best son a mom could want, smart and knows what

is going on in the teen world so he is not swede by pier pressure. but he has

missed out on all the fun kids have, and that eats at him too. anyway his

specialist has put him on naproxen 375mgs twice a day for the next six months

for his lower body pain its a non steroid anti-inflammatory drug. seems to be

working he is more pleasant anyway good luck char

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[Guest guest]

My daughter has always been difficult, stubborn, obsessive, complicated, easily

frustrated, quick to melt down...she has regulatory disorder, sensory processing

disorder, possible ADHD.

One OT we saw thought the fevers must be related to an underdeveloped regulatory

system in her brain...but then why would prednisone work? I don't know.

Dr. Feder said is not connected with any behavioral problems. This kind

of question here makes me wonder if that's true or if it just hasn't been

noticed yet.

>

> Hello!

>

> When you read post in this forum, many describe altered behaviour in

> their kids. In our case, Fabian does get upset for smaller things, do

> not want to go to kindergarten, gymnastics and football.

> Things that he used to like before.

> This behavior is not only related to the days he is actually fevering.

> I first thought that maybe it was something age-related, but when

> Fabian missed two periods this fall his anxiety disappeared, but when

> it started again, was the anxiety and sadness back again.

> Please note that he is not worried about the fever itself, so

> there is no direct link to the disease.

>

> I sent an email to our Dr who responded:'

>

> " .... it is biologically reasonable with a connection.

> Inflammationsmediatorer as TNF-alpha and IL-6 provides a

> psychological effect with depressive symptoms, increased need for

> sleep, poor appetite, etc. during experimental conditions. "

>

> Have you also noticed that your children are more easily sad and

> anxious?

>

> MVH Adam

>

[Guest guest]

hi

my son who is now just 4 years of age has had since he was about 9 mths of

age we did have T & A about a year ago and he has been fever free for about 10mth

but still gets the canker sores. he also was said to have receptive and

expressive language disorder.he is getting help now and is very smart just has

a lot of trouble with speech we take him to the ear nose throat doctor at the

end of month because said he also has had fluid that will not drain so hopefully

we can get some tubes. has any others with has severe constipation.

thank you emily