use of steriod at fever onset

[Guest guest]

Hi

Even if it's , the steroids don't work for EVERYONE, but they do for the

vast majority. Also even if it does work, it doesn't confirm as steroids

also work for various other periodic fever syndromes.

For us, the steroid has worked immediately on about 10 occasions and once we had

to give a second dose 2 days later as the fever came back. What we did find, and

this was confirmed by many parents on this board as well, is that it's best to

wait until the second fever spike (i.e. give tylenol or whatever you use on the

first spike, wait for it to settle, and on the second HIGH spike give the

steroid).

We have found that if the fever isn't as high and other kids around us have

fever viruses that it wasn't a episode usually but the virus. Hard to tell

for us as we don't get the mouth sores etc.

Hope this helps

Take care

Inga

___________________________________________________________

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[Guest guest]

Hi

Even if it's , the steroids don't work for EVERYONE, but they do for the

vast majority. Also even if it does work, it doesn't confirm as steroids

also work for various other periodic fever syndromes.

For us, the steroid has worked immediately on about 10 occasions and once we had

to give a second dose 2 days later as the fever came back. What we did find, and

this was confirmed by many parents on this board as well, is that it's best to

wait until the second fever spike (i.e. give tylenol or whatever you use on the

first spike, wait for it to settle, and on the second HIGH spike give the

steroid).

We have found that if the fever isn't as high and other kids around us have

fever viruses that it wasn't a episode usually but the virus. Hard to tell

for us as we don't get the mouth sores etc.

Hope this helps

Take care

Inga

___________________________________________________________

For Good helps you make a difference

http://uk.promotions./forgood/

[Guest guest]

I am just confused I cannot stand it! So this time she is not super high with

fever...103.2 has been the highest but every time she is sick it's not

necessarily high so I don't get why they think bc I thought HIGH fever was

one of the hallmark signs?! gave her 6ml of orapred Wed when her fever had

been 102.3 and broke after Tylenol but went back to 102.3 after it wore off.

Well now fever stayed 101 yesterday during the day but by evening she was 103.5

again and has been ever since. I wasn't told to give her more steroid and I

don't like giving steroids on top of Motrin and Tylenol. I thought it was

supposed to stop it which means less Tylenol and Motrin and shorter episodes.I

feel like what am I doing to her constantly pumping her with medicines and she

fights so much when I give her anything that one week a month this is a real

issue. Mentally I am on the brink of losing it! I guess nothing is written in

stone. I really feel like her ID doctor is not giving me answers.

Thanks Inga

[Guest guest]

I am just confused I cannot stand it! So this time she is not super high with

fever...103.2 has been the highest but every time she is sick it's not

necessarily high so I don't get why they think bc I thought HIGH fever was

one of the hallmark signs?! gave her 6ml of orapred Wed when her fever had

been 102.3 and broke after Tylenol but went back to 102.3 after it wore off.

Well now fever stayed 101 yesterday during the day but by evening she was 103.5

again and has been ever since. I wasn't told to give her more steroid and I

don't like giving steroids on top of Motrin and Tylenol. I thought it was

supposed to stop it which means less Tylenol and Motrin and shorter episodes.I

feel like what am I doing to her constantly pumping her with medicines and she

fights so much when I give her anything that one week a month this is a real

issue. Mentally I am on the brink of losing it! I guess nothing is written in

stone. I really feel like her ID doctor is not giving me answers.

Thanks Inga

[Guest guest]

,

We would have to rotate tylenol and motrin every 2 1/2 hrs apart and

that still would only get the fever down to 101 maybe 100 and we did

this almost every month for almost a year. in feb and march of last

year before the diagnosis we were having to give it back to back

for a full week every couple of weeks. last year was pretty rough for

us Ramsey was put in the hosp. twice. because we could not break his

fevers. You have to do what you have to do when giving medicines. We

now use prednisone which is a miracle drug. although this last fever

prednisone took 2 1/2 hrs to work and I had to give tylenol too. and 3

days later he had another fever. I think only adverse effects with

motrin and tylenol is if you give it in extremly high doses for a long

period of time.

Angie

Ramsey 23 months